hallucinations

[beaderpd]

Has anyone here experienced drug-induced hallucinations? I just had two of them, and they were so scary and frustating, because nobody saw what I did; and it was so real! My meds have been readjusted and I now on an anti-hallucinative drug caled Clozapine. I have to have a blood draw weekly for a white cell count. Seems sometimes not worth all the trouble!

[Diane]

Originally Posted by beaderpd

Has anyone here experienced drug-induced hallucinations? I just had two of them, and they were so scary and frustating, because nobody saw what I did; and it was so real! My meds have been readjusted and I now on an anti-hallucinative drug caled Clozapine. I have to have a blood draw weekly for a white cell count. Seems sometimes not worth all the trouble!

Hi. I am married to a man with PD, and he has had hallucinations, mainly late at night. Dr. doesn't know whether they are drug-induced or just PD symptoms. Dr. now thinks they might be caused by Ambien, so is changeing his sleep medication to Restoril. This is ironic, because same Dr. put him on Ambien a couple of years ago, because he thought the hallucinations might be caused by sleep deprivation.

I know the hallucinations my husband has are very real-seeming. He told the Dr. that he sometimes reaches out to the people he believes are there.

Personally, I still think much of this is because of sleep deprivation. My husband has a very hard time sleeping because of pain in his back and legs, and because he needs to go to the toilet several times every night. He naps during the day, but it is not the same as uninterrupted sleep. The Ambien has not really helped that much. Dr. has also referred us now to a urologist for treatment of enlarged prostate. If we could get that problem fixed, maybe he could sleep better.

Are you missing sleep, too?

Hope this is helpful.
Diane

[joy]

I understand completely how terrrifying it is to have hallucinations, I suffer with them too . The neurologist was not certain which drug was to blame. I take sinemet plus and ropinirole and have learned to live with it. They appear to be real and they do frighten me. It is a big relief to hear from you. You have lifted a big weight off my shoulders. I wll let you know if I hear of anything new. I really appreciate you bringing this out into the open. I will go to sleep much happier now. Take care and God Bless. joy

[heather]

Hi Joy
my husband gets them he is on sinemet plus for12 years
he was given Tegatrol at night as he was screaming kicking etc
he did have them twice a day,but he slept to much,the night
screaming etc have gone, but sometimes in the day he sees things, I thought he was getting dementia

[pogo1960]

May I ask what you mean by "hallucinations"?
I have dreams that feel very real at times. Feels like the people are standing right next to me. Is this the same thing?

pogo1960

[heather]

Hi pogo 1960

No that's more like a bad dream
Hallucinations
are when someone sees something that's not there, and they are awake


"Hallucinations are defined as "an apparent perception of an external object when no such object is present"

Jim points to some thing, and gets anxious , and there is nothing there

This can be caused by some medications

dehydration

infection

dementia/Alzimers [spelling

and in some cases cataracts, in people with dementia etc
and once they have been removed , they are a lot better

[Tricia7]

I had hallucintions for a bit - mine was always the feeling that a shadowy figure was behind me and several times I would feel like my horses were running up behind me. I am not having the hallucinations on my current meds - Azilect, Artane and Sinemet.

Tricia

[laseecan]

Originally Posted by beaderpd

Has anyone here experienced drug-induced hallucinations? I just had two of them, and they were so scary and frustating, because nobody saw what I did; and it was so real! My meds have been readjusted and I now on an anti-hallucinative drug caled Clozapine. I have to have a blood draw weekly for a white cell count. Seems sometimes not worth all the trouble!

Good morning, this is laseecan and i'm now back on this forum.

I have been diagnosed with PD 17 yrs ago at the age of 40..but had the signs 2 yrs prior. As everyone else, thinking I was too young, I denied it for 5 yrs but joined 2 groups of people meeting every month & helped each other in discussing meds, relationship with family, acceptance of this awful & dreadful disease and tried to keep our fears away.. I really think that stress has a lot to do with PD. I am lucky that I have the best neurologist in Canada. Over the years, I took different combination of meds that kept me feeling pretty good and nearly no tremors during the day... As yrs went by, I developed more dyskenesia, elocution problems, laps of memory , etc to the point that I had to quit my stressful job 2.5 yrs ago.
I was taking Sinemet, Artane, Mirapex, Amantadine from almost the beginning of the diagnosis.... 2 mos ago, my meds were changed and Artane was taken off and replaced by Clonazepam. After 3 days of taking 1/2 a pill/day I started to
hallucinate, loose balance, speech problem and ended up falling and break my wrist. The hallucination were real: I could see a pond of water (in color) on my bathroom rug w/fishes & could see pictures of the house I was raised in & my life as a child go by in front of my eyes.. scary!!! very scary...

I am now on Sinemet, Mirapex, Amantadine and Comtan...So far so good!! I've not felt so good in yrs.. tremors gone, no movements, almost back to normal(usually takes 6 mos to prove themselves). Hopefully this will last....

Stay positive!! This is what keeps us going. When you feel down, think of all your friends on this forum.

Have to go, Chow

[heather]

Hi laseecan


look forward to chatting soon

[Gail]

Originally Posted by laseecan

Good morning, this is laseecan and i'm now back on this forum.

I have been diagnosed with PD 17 yrs ago at the age of 40..but had the signs 2 yrs prior. As everyone else, thinking I was too young, I denied it for 5 yrs but joined 2 groups of people meeting every month & helped each other in discussing meds, relationship with family, acceptance of this awful & dreadful disease and tried to keep our fears away.. I really think that stress has a lot to do with PD. I am lucky that I have the best neurologist in Canada. Over the years, I took different combination of meds that kept me feeling pretty good and nearly no tremors during the day... As yrs went by, I developed more dyskenesia, elocution problems, laps of memory , etc to the point that I had to quit my stressful job 2.5 yrs ago.
I was taking Sinemet, Artane, Mirapex, Amantadine from almost the beginning of the diagnosis.... 2 mos ago, my meds were changed and Artane was taken off and replaced by Clonazepam. After 3 days of taking 1/2 a pill/day I started to
hallucinate, loose balance, speech problem and ended up falling and break my wrist. The hallucination were real: I could see a pond of water (in color) on my bathroom rug w/fishes & could see pictures of the house I was raised in & my life as a child go by in front of my eyes.. scary!!! very scary...

I am now on Sinemet, Mirapex, Amantadine and Comtan...So far so good!! I've not felt so good in yrs.. tremors gone, no movements, almost back to normal(usually takes 6 mos to prove themselves). Hopefully this will last....

Stay positive!! This is what keeps us going. When you feel down, think of all your friends on this forum.

Have to go, Chow

Hi laseecan, It is very encouraging to hear you are still going strong after 17 plus years. I thought at 50 I was too young. It doesn't look like PD cares how old you are. I hope you continue to improve. Gail