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General Questions About Parkinson's Here is the place if you have any questions or situations you would like help with, and to share any tips and ideas that make living with Parkinson's easier.

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  #1  
Old October 27th, 2011, 02:43 PM
cindyc cindyc is offline
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Default Abdominal Weakness

My mother has PD. She has been trying to find out what is causing a feeling in her lower abdomen since March 2011. Have had multiple CAT scans, ultrasounds, colonoscopy and have seen 4 different types of doctors. Her primary physician says it is due to PD and posture. She feels a pressure in her lower abdomen, feels like what she thinks a hernia would feel like. When she stands her stomach gets hard and she describes feeling a "ball" or "weight" in her stomach. When she lies down, it disappears. Does anyone else have these symptoms with PD?
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  #2  
Old October 27th, 2011, 03:41 PM
Edun Edun is offline
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Default Re: Abdominal Weakness

Hi Cindyc, welcome to the forum....
I never heard of this feeling before "Abdominal Weakness". I've heard of dystonia (cramping) in the abdomin muscles, but not the weakness your mother is feeling. I tried to look it up for you, but the only thing I found was this...sorry I couldn't find more....maybe someone else will be able to help...

http://www.livestrong.com/article/184240-abdominal-symptoms-of-parkinsons/

Abdominal Symptoms of Parkinson's

Jul 25, 2010 | By Lori Newell Lori Newell of Living Well Yoga and Fitness holds a master's degree in health promotion. She is a certified personal trainer and yoga instructor. Newell has taught classes for the general public and those with chronic illness for 25 years. She has four books and writes for many sites and magazines, including the "International Journal of Yoga Therapy."
Parkinson's disease is a neurological condition that can cause tremors and difficulty coordinating movement. It can cause many other symptoms as well, including trouble chewing and swallowing, depression and gastrointestinal problems. In addition to the disease, the medications taken to manage Parkinson's disease can cause or exacerbate symptoms.

Stomach Cramps
Parkinson' disease affects each person differently. No two patients have the same exact symptoms, and the severity of symptoms varies as well. This disease interferes with the ability of the muscles to move properly, and any area of the body can be affected. This includes the stomach muscles, which may be prone to cramping, states the Penn State Milton S. Hershey Medical Center. In severe cases, stomach cramps may be accompanied by incontinence or constipation.

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Fullness and Bloating
In a healthy system, food does not stay in the stomach for too long. However, diseases such as Parkinson's can affect the vagus nerve, which controls the movement of food through the digestive tract. If signals are not traveling through this nerve properly, food may stay in the stomach for too long, causing a condition called gastroparesis.

Gastroparesis can cause symptoms such as feeling full or bloated, nausea, vomiting and weight loss, warns the Ohio State University Medical Center. This condition can become serious, as it can cause a bacterial infection or the food can harden and form a mass, which may block the intestines. If this complication occurs, there are dietary changes, medications and surgical techniques to help manage the symptoms.

Abdominal Pain and Diarrhea
Some of the common medications used to treat Parkinson's disease, such as carbidopa, levodopa, ropinirole, tolcapone or entacapone can cause abdominal pain and diarrhea. In many cases, patients with Parkinson's may need to be on many medications at the same time, which can make it challenging to tell which one is causing the problem. Given this, it may take a period of trial and error to find a dosage and mixture of medications, that helps control the symptoms while causing the least amount of side effects.

Read more: http://www.livestrong.com/article/184240-abdominal-symptoms-of-parkinsons/#ixzz1c1pnhva5
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  #3  
Old October 27th, 2011, 05:48 PM
ludiemae ludiemae is offline
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Default Re: Abdominal Weakness

Hi! CindyC, welcome to the forum. I'm sorry I can't help you either, Sweetie, but hang on, someone will be able to. Ludie
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  #4  
Old October 28th, 2011, 07:16 AM
Endurance Endurance is offline
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Post Re: Abdominal Weakness

Hello Cindy,
How old is your mother? Is she exercising?
If this abdominal spasm occurs only when she stands up you might want to check her mineral and electrolyte intake. I would go to her PCP and suggest an electrolyte panel test. Up her potassium intake and lower her sodium intake. Also, magnesium helps; but most of all ask her to drink WATER WATER WATER. In the meantime, ask her to try this simple exercise - lying down and stretching in the opposite direction of the spasm. (that is, put a pillow under her lower back and ask her to stretch her arms back over her head. I hope this helps.
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  #5  
Old October 28th, 2011, 07:25 AM
cindyc cindyc is offline
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Default Re: Abdominal Weakness

Thank you for the tips. I will suggest that we have her doctor check some of these levels. She isn't experiencing any stomach spasms, she feels like there is a hard place and a weight in her lower stomach. But this is a great start. If anyone else has these feelings, pleae share with me. She thinks she is going crazy because not any doctors give her complaints any vallidity.


Thanks again.
Cindy
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  #6  
Old October 28th, 2011, 09:22 AM
lanab lanab is offline
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Default Re: Abdominal Weakness

cindyc, you didn't mention how long your mother has had PD. The reason I ask is if she has been diagnosed for a while I was thinking on the same line of Edun as far as stomach problems go. Is it possible that her stomach in not emptying out well? here is a link to the Parkinson Foundation where you can get fact sheets to help you understand things better. The one I am sending is called Gastrointestinal & Urinary Dysfunction. http://www.pdf.org/pdf/fs_gastrointestinal_urinary_10.pdf
You mentioned that your mother has had a colonoscopy and I was wondering if she has had an Upper GI Endoscopy this would show if there are problems with the stomach. Just a suggestion. good luck and I hope you find an answer soon. Lanab
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  #7  
Old October 30th, 2011, 06:39 AM
cindyc cindyc is offline
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Default Re: Abdominal Weakness

Thank you to everyone on here that has commented. We have an appointment with a gastroenterologist in two weeks. I plan on mentioning several of the things I have read on here and other places. My mother has been diagnosed with PD for approximately 4 years. It wasn't official then, but suspected. She has a neurologist, but not a PD specialist. I have heard that it is best to have a PD doctor. Any opinions on that?

Thank you again for making a new comer feel welcome
Cindy
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  #8  
Old October 30th, 2011, 07:18 AM
Endurance Endurance is offline
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Post Re: Abdominal Weakness

Dear Cindy,

In our case we totally trust Dan's PCP who recommended the neurologist. In addition, I checked his credentials online and he seems experienced in PD.

Here are some tips you might have read already; if not, you will find them extremely interesting. I do hope your mother will feel better after your visit to the gastroenterologist, especially that all prior MRIs and other tests were OK.

Your first task is to find a neurologist who specializes in movement disorders (like Parkinson’s). You need someone who is familiar with PD, who can tell you what to anticipate and who can put you in touch with the best resources and treatment options available. This neurologist will know when to start medications and when to adjust the dosages of those medications to achieve maximum benefit and so forth. How do you find such a specialist?

Your primary care doctor will certainly be able to point you in the right direction. You can also find a local support group for PD patients and ask those individuals for recommendations on PD specialists. You can get information on local support groups as well as local PD specialists from the local or regional chapters of a national PD organization, see the links to resources below:
You might call anyone of these organizations and ask for a list of PD specialists in your area:
•National Parkinson’s Foundation (NPF): 800-327-4545
•American Parkinson’s Disease Association (APDA): 800-223-2732
•Parkinson’s Action Network (PAN): 800-850-4726 or 202-638-4101
•Parkinson’s Disease Foundation {PDF): 800- 457-6676

What to Look for in a Parkinson’s Disease Neurologist?

Here is a checklist of basic questions for your prospective neurologist:
•How long have you worked in the field? How many PD patients do you see a year?
•Do you have special training in movement disorders? Are you Board Certified?
•Who do I see when you are not available?
•What hospital do you use for treating patients?
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  #9  
Old October 30th, 2011, 06:51 PM
ludiemae ludiemae is offline
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Default Re: Abdominal Weakness

Hi! Cindy, Your welcome! It is most definitely better to see a movement disorder specialist,if you have access to one. They are neurologists with usually at least two years more training in PD and other illnesses that affect movement. They understand PD better and get the right combination of meds and needed therapies quicker because of that. Hoping things get better soon, Ludie
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