New to board

[Tricia7]

Hi everyone,
I was diagnosed with YOPD a little over 2 years ago. My first treatment was Requip. I had very little success with the Requip but the side effects were terrible - I fell asleep often even while driving.
A positive effect though is that while taking meds I became pregnant. I had a miscarriage about 5 wks in - though the Drs did not believe it had to do with my PD. My family Dr joked that he wondered what fertility drug was in the Requipp
for several months following the miscarriage I stayed off meds as we tried to get pregnant again. Right after I started new meds (my symptoms were getting out of control) we found ourselves pregnant again. I immediately stopped meds and on Oct 8th we had a beautiful healthy baby boy. Because my symptoms were very bad w/o meds we chose to formula feed instead of the breastfeeding.
At this time we tried the patch - I had heard of people who had great success and since I am not really disaplined about taking meds the patch seemed a good idea. I found again very little success with the patch.
Dr put me on Azilect (very expensive even with good insurance) and Artane. Though he said the Artane was kind or archaic and not used often for PD anymore I had almost immediate success. Almost on day 1 I actually slept normally! I started to write and type again with my right hand and had an arm swing and almost normal walking gait. On the bad side I had terrible memory loss and was often confused - I would stand up from desk and then not remember what I was doing or where I was going.
When I saw Dr last he was not as pleased with the results as I was. He did not want to increase the Artane b/c of the memory loss so we decided to add Sinemet to my meds.
When I ran out of Artane and was off it for a few days everything stopped working - could not write or move my fingers - had trouble walking again.
Now I am still all 3 meds but I want to talk to my Dr about the azilect - at 60 dollars for only a month supply I am not sure there is benefit from the azilect.
Currently my side effects are memory loss and very dry mouth - I started sucking on my teeth and I sway when standing and rock when sitting. If I concentrate I can stop these movements but they start right up again.
I wonder if anyone else has these movement issues? I see Michael Fox and can relate to his constant movements.
I am so frustrated with meds right now. But again I can write and type (job requires me to be at a desk doing exactly these things) it is still hard to decide if the side effects are worse then PD itself.
Tricia

[tinkerbell]

hi,
i take requip, azilect and sinemet plus, i find i do not have the problems you say.i do have a bit of forgetfulness but nothing much apart from being very tired. sorry i can't be of any more help.

tinkerbell

[heather]

Tricia7
hope you are well



what's his name
I'm a carer for my hubby Jim
sorry i'm not into medication, but some one will catch up with you ,the time difference,means sometimes it takes a day

[susan wheatley]

hi tricia, i have pd i am 48 was diagnosed 5yrs ago i am on the patches, levadopa, and selegaline which seem to work most of the time, i get very dry mouth and find it difficult to get the words out, since i started on levadopa my right foot is always twitching but my r/hand has more movement so i guess you cant have everything i still work and drive so its not to bad speak to you soon susan.

[Pauline]

Hi Tricia Welcome congratulation on the new baby a lot of nice people here hopefully some one will be able to helpPauline

[suzie Q]

Hi Tricia

sorry cant answer your question on medication but welcome to the forum .It is a great way to talk to others who understand .I cant wait each morning to log in and see what everyone has done each day .Goog luck hopefully some one will know about the medication .

Sue

[bruce]

Hi,Tris, glad to have you on board. I know you will find it a great place to meet great peole who really understnd what you are going through.bruce