Frustrated with PD

[pogo1960]

Hi,
As some of you may know, I am 47 years old and I was diagnosed with PD seven months ago. I am struggling over the acceptance of what I have. Not too long ago a friend who has serious health issues heard me say, "Why Me?" He responded by saying, "Why Not Me?"
At times I find myself feeling bitter and angry. Also when I am out in public, at times I find myself resentful toward those who appear to be healthy. I try to remind myself, "Why Not Me?' Has anyone out there ever felt or feels the same?

[susan wheatley]

hi pogo1960, i felt exactly the same as you but you learn to accept it and deal with it you may have pd but it does not have you, your still the same person inside you just haveto learn to adjust i have had it for 5yrs and was devistated at first but it does get better you learn to live with it, what symptoms do you have if you dont mind me asking.

[heather]

Hi pogo1960
hope you are having a good day
I think everyone has had that feeling, after all we are all human ,being a carer i had terrible envy of people our age [60 and Jim 65 just out walking together and ,adverts on the TV of people going on holiday,but it does pass,
we have said why us ,like your friend said why not, one day we will may get the answer, not that it will make any diffrence
what i do no is that it made Jim and i much closer,we have learnt to appreciate each other , and value [don't no if that's the word I'm looking for] the time we have together, at least we no what's what, some people never get that chance .

[pogo1960]

Hi Susan......
My Symptoms So Far Are Tremor In My Left Hand, I "shuffle" When Walking And Very Rigid And Slow Moving. I Believe I Have Actually Had Pd For Several Yrs. Am Still Adjusting To Meds.

Pogo1960

[ltd-addition]

Originally Posted by pogo1960

Hi Susan......
My Symptoms So Far Are Tremor In My Left Hand, I "shuffle" When Walking And Very Rigid And Slow Moving. I Believe I Have Actually Had Pd For Several Yrs. Am Still Adjusting To Meds.

Pogo1960

Hi Pogo1960
Im not going to cheek my elders since i'm born in 1963 but I'm about to give you some sound advice.

You cant change the clock back so its sink or swim

Why you ? well its because you are a stonger person than the one who was supposed to have been diagnosed with PD. Now if you realised you were the stronger person, I'd bet you said to God (or fate or destiny, whatever or who ever makes the decision & dishes it out ) I'll take it for them God, because to give them PD would be too much for them to cope with.
(So when you think about it you are a Hero a knight in shining Armour)

Build up your shoulder and back muscles because God only puts on your shoulders which he knows you can handle. Thats the reason why you are shuffling . Give it a bit of time & you get used to the weight.

Soon you will be so used to it you should feel like "A young spring Gazelle" just like me!

You'r plate is full and thats why your slow, you don't want anything to fall off it yet. (Greedy !)

Don't be angry just get even against PD

There are a few hundred people on this sight, if we give everyone a task to wish you well,I reckon you'd be flying around town.

When you first noticed something was wrong go back 5 yrs again and thats about the time you put your Brain cells on sale. Now by the time your diagnosed, you only have 20% left so no more sales please , because to replenish your stock is too costly at present.

Anyway pet i'm up late so got to go, keep safe, i'm here if you want any questions answered.
ltd-addition

[Pauline]

We have all had those feeling but I really like ITD -addition answer I am sure none of us would wish this on any one we are strong we can do this smile's your way Pauline

[parkie]

hi pd sufferer, I have had pd for 9 years started meds with sinemet like you, and as time went by and I got worse, I added to my sinemet tabs, Requip 3 tabs 0.5 ml per tab per day. Some improvement in walking, however 18 months ago I tried Azilect. Big improvement one pill per day plus my sinemet dose. Now no tremor unless really stressed, normal walking, much better feeling of well being, I can laugh and smile now,and that awful feeling of tiredness has much reduced. I know I still have pd but all my friends tell me the change is remarkable

[heather]

Hi Parkie
it was so nice reading your very positive post ,and how your determination has turned your life around
thank you for sharing

[parkie]

hi heather as this is my first time to enter a forum would you help me to understand threads, postings, and quotes, parkie

[pogo1960]

thanks everyone for your wonderful advice!!! I already feel much better. I know I will be ok

pogo1960