A Newbie to this site

WELCOME
BUTTERFLY...


You will soon find out what wonderful people there are on here. They will try to help you whenever you need it. Give you a chuckle or two on any given day. Give excellent advice when you have a question and they have the answer. All in all I think you will soon be a permanent member visiting whenever time allows.

I am a caregiver along with my son to my husband who has PD. He was diagnosed 5 years ago but now we realize that he had PD a few years before he was diagnosed.

Hope to see you on here again. If you have difficulties with using the site you can try using the Help Page that is in the upper left hand corner in white lettering. Just click on this and see what it has to offer for your needs. If that doesn't help you much, just ask and someone will guide you through.

Again, . Glad to have you aboard!

Lately I can't be on here as often as I used to be, or as wish I could. So I'll be here intermittently.

Margie2

Originally Posted by Diane

Hi, Butterfly. Welcome. Are you a parkie or a caregiver? I am caregiver for my 69-year-old husband, who was diagnosed ten years ago. He is still quite mobile, but he has the dementia that develops in a minority of PD sufferers. Everyone is different and every situation is different. Good luck on navigating the site.

Diane

Hi Diane, I've been thinking about you. I read your meaningful note to me a few days back but didn't answer to it. Please forgive me. i didn't do it on purpose.

It's so good just to be able to say hello.

Have you seen anything about the party that I think Pauline started? I must be looking in the wrong place. But I will catch up to everyone.

Save me some pizza and a cold glass of good beer . But you and the rest of our friends have to join us. OKAY? Have a pleasant day.
Margie2

Originally Posted by suzie Q

hI BUTTERFLY


WELCOME TO THE FORUM HOPE TO HEAR MORE FROM YOU SOON

SUE

Sue, I'm just here for a few minutes and I wanted to send you a special hello. I hope everything is going well for you. How have you been feeling? I've missed so many posts and threads I can't possibly catch up so from time to time I will have to ask different friends on here what they are feeling and what's new?

I have to sign out right now. Tony needs something.

Before I go I'm sending you these flowers and the little kitten just to make you smile.

Margie2

[Diane]

Margie, we miss you. I Hope everything is going well for you and Tony. I haven't seen any posts from Heather or Hope in recent weeks, either. If you can, please leave just a "Hello" note here, even if you don't have time to write a lot.

Diane

[Hope]

Hi, Everyone!
I didn't think this site was active anymore. I never received notices of people writing - so I stopped visiting. Bad idea!
I see some "old" names and lots of new ones. I'll come back. I'd love to know how everyone is doing.
I have so little time to get on the computer these days. I'm back at work; I have a caregiver for 4 hours a day. I leave for work late and leave work early to get back to my husband. When the caregiver leaves, he sits in his chair, takes a nap, then watches TV til I come home.
I'd love to keep in touch with all of you. Take care. I hope to read your writings and write back to you as well. Hope

[Juanita Mullin]

Welcome back, Hope! Its been a long time since we have seen you. It has been pretty slow on the forum for several months. Hopefully our friends will all be back on soon.
Hope to see you again soon, Hope.
Juanita

[suzie Q]

Hi Hope and everyone else.i have also not been on as much as usual,mainly because there has not been much happening on here .hello to everyone even if you just come to look we should say hello i will in the future we dont want to loose the forum it is us who must keep it alive ...all the best to every one untill next time.


sue

[Diane]

Hello, everyone. I just wanted to say Hi. Not much going on here. I took a trip to California for a niece's wedding and my husband stayed home. He had help from his sister, our housekeeper/caregiver, our 18-year-old son, and a "night sitter". Everyone is saying, "I don't know how Diane does it!" Helping him is a full-time job best shared among lots of loving family and friends.

Diane

[Juanita Mullin]

Hi Diane,

Did you get your jacket finished? It was good that you could be away for a bit. Good that you have people to help out when you need them. How can we keep this forum alive until our people get back on again? It's hard to think of anything that may be of interest. I just read some crazy jokes so will put one of them on.

Our granddaughter who lives in New Zealand called to see if she and her family could spend two nights with us in the middle of November! But, OF COURSE!!! It will be great to have them visit. She has a two year old and a baby.

Hi and good night to anyone else who may be on.
Juanita

[heather]

Originally Posted by patsywilliamb

Hi Heather Thank you so much for your reply the
photographs made me smile they are so friendly i am a bit of a novice on my laptop working out the website is taking some time i notice you are from north wales are you welch like me i was born in north wales you seem to be coping well i find that talking about pd and learning about the drugs from the internet helps and also as you said we are all only human bryan has trouble opening his eyes his sight is ok but he keeps shutting them have you heard of this i know some eyelids can remain open but have not heard of the reverse.
Patsy.

Hi Patsy
sorry been so long getting back to you
Jim always sits with his eyes closed most of the time if it's just him and me, or if nothing much is going on, if i put a cowboy on the TV he watches it all the way through, or my brother visits and talks about when they worked together, i think it's a sign of boredom or lack of interest with Jim