Medication

[pogo1960]

I have a question about the medications prescribed to treat PD. Do they "slow down" the progression of the disease or just help ease the symptoms? My doctor has never really explained to me.:(
I am on Sinemet 3 x day and Azilect 1 x day. I am in stage one.
Any feedback would be appreciated!!

Cathy

[ann]

I am on Ladopa /cardopa three times a day......as I understand they only help the symptoms..............I am also on coq10 which like azilect is the only thing that my doctor suggest to slow down the process....but there is weak evidence

[Drew Saunders]

I have a question about the medications prescribed to treat PD. Do they "slow down" the progression of the disease or just help ease the symptoms? My doctor has never really explained to me.:(
I am on Sinemet 3 x day and Azilect 1 x day. I am in stage one.
Any feedback would be appreciated!!

Cathy

Hi pogo1960, Medication does not unfortunately slow down the progression of the disease but of course does ease the symptons. No one knows what causes PD and their is no cure. Right, that's the doom and gloom out of the way. Try and enjoy every day. Surround yourself with people who make you laugh. A keen sense of humour and seeing the funny side of life is as good as any medication. I get great support from my wife and the Leicester Branch. Your local Branch is there for you. If you have not already done so then do join them. Support nurses are the best people to talk to for advice. Consultants have limited time to see you but I have found that Branch members/officials do. Hope this helps - keep smiling :)

[heather]

Hi Cathy
I totally agree with Drew
make the most of what you have , enjoy every day,most of all "A keen sense of humour and seeing the funny side of life is as good as any medication."

[ltd-addition]

I am on Ladopa /cardopa three times a day......as I understand they only help the symptoms..............I am also on coq10 which like azilect is the only thing that my doctor suggest to slow down the process....but there is weak evidence

Iv'e been thinking of you Ann I hope all is well with you at home.
ltd-addition

[MargieB]

Iv'e been thinking of you Ann I hope all is well with you at home.
ltd-addition

Hi ltd - addition,

I'm sorry to butt into this quote you sent to Ann. I'm in a little distress. I wrote you somewhere else in the Forum that I went to your Profile and got your e-mail address. I sent the information through with a little note and it was returned to me saying "UNDELIVERABLE - ADDRESS UNKNOWN".

So I thought I would send an instant message. I have never sent an instant message but I tried and it still wouldn't go through that way either. I feel so bad about this and I don't know what to do. I know you were going to work on my floral arrangement today but please be patient with me until I figure out how to send you my information. If you can give me any advice on what to do, I'd really appreciate it. :confused:

Hope you have a very good day. Looking forward to hearing back from you.

With love,

Margie :)

[ltd-addition]

Hi ltd - addition,

I'm sorry to butt into this quote you sent to Ann. I'm in a little distress. I wrote you somewhere else in the Forum that I went to your Profile and got your e-mail address. I sent the information through with a little note and it was returned to me saying "UNDELIVERABLE - ADDRESS UNKNOWN".

So I thought I would send an instant message. I have never sent an instant message but I tried and it still wouldn't go through that way either. I feel so bad about this and I don't know what to do. I know you were going to work on my floral arrangement today but please be patient with me until I figure out how to send you my information. If you can give me any advice on what to do, I'd really appreciate it. :confused:

Hope you have a very good day. Looking forward to hearing back from you.

With love,

Margie :)

im here Margie dont worry ill ensure you got correct email so look again in a minute

[ltd-addition]

Hi ltd - addition,

I'm sorry to butt into this quote you sent to Ann. I'm in a little distress. I wrote you somewhere else in the Forum that I went to your Profile and got your e-mail address. I sent the information through with a little note and it was returned to me saying "UNDELIVERABLE - ADDRESS UNKNOWN".

So I thought I would send an instant message. I have never sent an instant message but I tried and it still wouldn't go through that way either. I feel so bad about this and I don't know what to do. I know you were going to work on my floral arrangement today but please be patient with me until I figure out how to send you my information. If you can give me any advice on what to do, I'd really appreciate it. :confused:

Hope you have a very good day. Looking forward to hearing back from you.

With love,

Margie :)
Margie look again on my profile

[MargieB]

Margie look again on my profile

Just looked on your profile and a thought came to me. I was trying to send you an e-mail from my AOl on line site. Did you mean an e-mail you have here at the Forum? If so, please, where would I find it?

Thank you for walking me through all this. I know I'll get it.

Looking forward to hearing from you.

Margie :)

[MargieB]

Margie look again on my profile

OK. Here I go.

[MargieB]

Margie look again on my profile

I looked on your profile and got your e-mail written down. Should I try to send it now on my AOL ?

Margie

[MargieB]

im here Margie dont worry ill ensure you got correct email so look again in a minute

I sent one e-mail and it got returned. I sent another one and am waiting if I receive the same notice that "returned mail, user unknown" .

Talk to you in a little while.

Margie

[MargieB]

I sent one e-mail and it got returned. I sent another one and am waiting if I receive the same notice that "returned mail, user unknown" .

Talk to you in a little while.

Margie

Here I am again. The computer said: Mail sent. Did you get my e-mail? :confused::confused:

[MargieB]

Here I am again. The computer said: Mail sent. Did you get my e-mail? :confused::confused:

Hi ltd - addition,

I've got to go now. Tony needs me to help him.

Hope to resolve this tomorrow. I feel like such a dunce :o.

Sorry to cut you off so fast.

Let me know if my e-mail arrived?

With love,

Margie

[ltd-addition]

Hi ltd - addition,

I've got to go now. Tony needs me to help him.

Hope to resolve this tomorrow. I feel like such a dunce :o.

Sorry to cut you off so fast.

Let me know if my e-mail arrived?

With love,

Margie

Top of the Class ! Distinction , Teachers report - Lacks confidence in their own very capable ability but this will abide as they realise how intelligent they are & learn to enjoy their talents. Excellent
ltd-addition aka Gazelle

[heather]

Hi Margie
It was in her profile , under where ltd-addition lives,but it seems to have gone, so sorry can't help

[MargieB]

Top of the Class ! Distinction , Teachers report - Lacks confidence in their own very capable ability but this will abide as they realise how intelligent they are & learn to enjoy their talents. Excellent
ltd-addition aka Gazelle

Hi Teacher,

Your report you hit a bulls-eye! The lack of confidence is slowly building into confidence :eek:. Your compliments are gratefully accepted. Boy, did they make me feel good...thank you! Also, enjoying my talents...that's another story. I must learn to enjoy my talents. I do love to do them but am always in a rush. Have to learn to slow down and enjoy the process of creating and then appreciate when done.

You are wise beyond your years.

Love,

Margie :)

[MargieB]

Hi Margie
It was in her profile , under where ltd-addition lives,but it seems to have gone, so sorry can't help

Hi Heather,

Thank you for looking. You've helped just by thinking of me and trying to do a kindness.

Love,

Margie :)

[heather]

My pleasure my friend ,

glad to see you have got it sorted.
Just be patient, and remember, every one has had to learn ,

Know http://i10.photobucket.com/albums/a126/maesisaf/b_shake5.gif
Tomorrow
http://i10.photobucket.com/albums/a126/maesisaf/computerguy.gif

[ltd-addition]

I have a question about the medications prescribed to treat PD. Do they "slow down" the progression of the disease or just help ease the symptoms? My doctor has never really explained to me.:(
I am on Sinemet 3 x day and Azilect 1 x day. I am in stage one.
Any feedback would be appreciated!!

Cathy

Hi Cathy as I understand it, by the time you are diagnosed you have already lost 80 % of the cells in your brain which sends the signals to your body to instruct them to move. The signals are called dopamine.
Now the drugs can have different purposes
one drug can irritate the remaining 20% of the cells into producing more dopamine
another drug could mimic dopamine to a certain degree etc
So the drugs are to alleviate the symptoms , because with no cure yet it's all we got..
Every person is different and therefore only you & those in the know can determine how progressive it is by your symptoms & how well you respond to your medication.
If you and I took the same tablets we more than likely wont respond the same as each other. So in essence it's trial & error of whether we think a particular drug is slowing down the parker's or just the symptoms.
However being a spring Gazelle I look & respond better whilst on stage in my tutu ha haa ha only kidding ! (I wear it whilst out shopping )

Yes you guessed it I must put more water in it !!
On a serious note just enjoy how well you move from day to day I do !
Keep safe & Well

[heather]

Hi Ltd-edition
that was very interesting, and once more you have put another piece in my PD jigsaw

[pogo1960]

Thank you for your input. I really have learned alot from this forum. I enjoy it very much..

Cathy

[Pauline]

Thank you for your input. I really have learned alot from this forum. I enjoy it very much..

Cathy

Cathy your not the only one that has learned a lot and the more knowledge we have the better we can fight:):):)Pauline

[heather]

Very true Pauline
i find if my coping mechanising kicks in then my fighting gets stronger