Nerve pulsations in arms & chest at nite

[smilin' dog]

This is my very 1st question but before I can go on would someone please help me with this one. I was only diagnosed 2weeks ago but for the past year & 1/2 I have been waking up after being asleep for about 3-4 hrs with pulsating nerve sensations in the upper trunk of my body and my arms. I was orginally told that this was a carpal tunnel & cubital tunnel problem and so I had the surgery but to no avail. Has this all been a part of the PD prior to being diagnosed or is something else going on? Thanks everyone.....

[heather]

Hi smilin dog

Welcome
carpel tunnel , usaly only affects the wrist and hand, and some times shooting nerve pain up to elbow, have never heard of it the chest , I could be wrong though
hope you enjoy your stay in our humble aboard :):)

Could you be having slight Panic attacks , just a thought ,

[Patsy]

Hi Smilin' dog
I have pd for 10yrs. for the last 4yrs i have the same symptoms that you describe and also in my legs. It starts when i go to bed, by morning time it is gone.
I presume it is part of having pd, it did scare me at first now i have it so long i have learned to live with it.
Hope this helps you.

Patsy :):)

[Rikki]

Hi,

I've certainly had nerve spasms and 'jumping' in both upper and lower body at night - in fact my wife deserves danger money for sleeping next to me (I've unknowingly convulsed and hit her a few times). I've always believed that this was linked to the medication but you are so recently diagnosed it couldn;t be that. However go back to your neurologist and insist on some informed prognosis - you are entitled to that.

Best wishes,

[heather]

Rikki

hope you had some luck with your doctor

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[Rikki]

Thanks for your concern Heather. Unfortunately the doctors have been unable to 'knock me out' at night, and my wife is refusing any suggestion that I might sleep elsewhere (as I've offered - she still has to go to work ro support both of us each day). Apparently there is a portion of the brain that normally paralyses the body's nervous system while we sleep. This allows the brain to 'dream' without the body actually going through the actual motions. They think that the PD has crippled that brain function in me, so I actually 'live out' whatever my poor brain is dreaming. A bit scary really.

Rikki

[heather]

Hi Rikki

Hope all is well with you and your wife
Before i start, i would like to remind you Jim's illness only mimics PD , and the medication for PD doesn't work, which is the reason I don't comment on medication, as i believe only in saying what has worked for us

Please don't try and force your wife or you to sleep elsewhere, time will /may come when you both believe it's for the best, Jim was terrible and was having nightmares, and fighting in his sleep, we did work out that what he watched on TV before bed did make a difference, he loved watching boxing :eek::eek:
so we stopped that :p, and there was some improvement

The only reason we had to sleep in different bedrooms, was because he had to have a special bed/electric air wave mattress, and our bedroom was not big enough for that and my bed

Because of his depression he saw a psychiatrist , who tried him on a antidepressant Tegretol Retard M/R 200mg am and PM, but we found it was making him very slow in the day, so we then stopped the am and he was much better on just one tablet PM

Drew on hear suggested Diazepam 2 mg to help him relax, this he also only has at night,[2mg] though his doctor says he can have 4 mg 4 x a day, and only when he gets a little stressed does he get any extra
like i said my dear friend this is what works for us, and with everyone being so different doesn't say it will for anyone else

I sat and thought heard about his medication, as i don't believe that drugs cure everything, I/ we had to decide, to weight up the odds, I believe, we don't get addicted to medication that enhances our lives for the good
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[Rikki]

Thanks for your kind thoughts and the advice. There's a few things in there that are certainly worth a try.

Thanks again and best wishes,
Rikki

[heather]

Hi Rikki
hope all is well with you and your wife
and things are getting better

Take care my friend

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[suzie Q]

Hi Riki

sometimes it is hard to distinguish what is caused by p.d and what is caused by the medication .i also have times at night when my arms do things that they are not supposed to. thought it was medication cause it only happens at night seems to be after i take my meds .Who knows .............

Hope you are well

Sue