Margie

[MargieB]

Hi Everyone,

I'm feeling sad. This past weekend a seventeen year old son of one of our good friends died in a car accident. It greatly upset us and everyone who knew him. He was much loved. My husband, who as you know is a PD patient took it very hard. His PD symptoms are acting up more than usual and his voice is almost inaudible. I'm hoping this shock won't have permanent results. I am so afraid.

Thanks for listening.

Margie

[grldnklly]

Hi Margie,
I am sorry to hear about your friend's son. It puts everything to perspective when something like that happens. I am carer for my father who has Parkinsons. If my father is stressed or down about anything it effects his overall condition, but it isn't permanent. That is the thing about parkinsons, the sufferers condition can change hour by hour, never mind day by day. You are in my prayers.
Geraldine

[MargieB]

Hi Geraldine,

Your kindness in writing to me means a lot. Thank you so much.

Your prayers are more than welcome. God bless you for taking the time to care.

I hope you have a nice day.

From today on, you will be in my prayers too.

Margie

[heather]

Hi Margie
this is such a sad time for you all
Like Geraldine said , speech is often affected with stress
but not long lasting, just be very patient, give him time he will get over it, encourage him to talk slowly,
Our thought's and prayers are with you all

God bless
Heather

[MargieB]

Oh Heather, thank you for your encouraging words. They meant so much to me.

I will try to get Tony to talk slowly. He tends to talk fast, almost as if he wants to get everything he has to say out before his voice turns in to a whispher.

He cried today. He was remembering when we would take little drives and then stop for an ice cream. Tony can no longer drive and I haven't driven in over 15 years. It is so sad and hard to see someone cry, especially if it is your best friend and partner in life. Tomorrow will be better :).

Today we went for a little walk with our son. Tony started getting leg pains and his legs stiffened up on him. I remembered reading somewhere that if someone with PD freezes to have them point their toes upward if they can and it will help them to continue to walk. It did help. Sometimes the little things mean so much.

Your prayers are much welcomed. God bless you always in all ways for thinking of us.

Margie :)

[Pauline]

Hi Everyone,

I'm feeling sad. This past weekend a seventeen year old son of one of our good friends died in a car accident. It greatly upset us and everyone who knew him. He was much loved. My husband, who as you know is a PD patient took it very hard. His PD symptoms are acting up more than usual and his voice is almost inaudible. I'm hoping this shock won't have permanent results. I am so afraid.

Thanks for listening.

MargieHi Margie I am so sorry about your friend son I will say a special prayer for him and his family and for you and Hubby just hang in there there is alway light at the end of the tunnel I know I am new but I have found my symtoms geat worse under stress but they do get better after awhile my smiles and hug s are with you Pauline:):)

[heather]

Oh Heather, thank you for your encouraging words. They meant so much to me.

I will try to get Tony to talk slowly. He tends to talk fast, almost as if he wants to get everything he has to say out before his voice turns in to a whispher.

He cried today. He was remembering when we would take little drives and then stop for an ice cream. Tony can no longer drive and I haven't driven in over 15 years. It is so sad and hard to see someone cry, especially if it is your best friend and partner in life. Tomorrow will be better :).

Today we went for a little walk with our son. Tony started getting leg pains and his legs stiffened up on him. I remembered reading somewhere that if someone with PD freezes to have them point their toes upward if they can and it will help them to continue to walk. It did help. Sometimes the little things mean so much.

Your prayers are much welcomed. God bless you always in all ways for thinking of us.

Margie :)
Hope it's a good day for both of you

I found by Jim speaking slowly his voice was stronger, he would talk quick before he forgot what he wanted to saying
have you thought of going back to driving,i don't no what we would have done if i couldn't drive
just getting out when we want to is great
we have even been out for a run to no where special, late in a evening or early morning
have you tried just a gentle rocking back and forward if Tony freezes ,Jim learnt to do this on his own,he would hold on to the wall and his stick or chair and rock himself, then his foot lifted enough to move it , it takes a little practice but it does work,get him to practice when he hasn't friezed [spelling] hope that makes seance

[MargieB]

Hi Heather,

Thanks for the good day wish. It came through. I think you might be partly responsible for it.

Tony and I will talk more about him talking slower. He tried last night. Although I'll have to keep reminding him at first (be a pest but don't upset him ;).

Yes, I'm thinking of going back to driving but at this moment in time I am afraid to. Here in Queens, New York the traffic is tremendous. Even in the residential areas where we live. The thing you said about going out late in a evening or early morning sounds soooooooooooo good. I'll have to keep pondering and then one day hopefully I'll drive :eek:

No, Tony hasn't tried rocking back and forward. He is going to try it.

Don't you dare worry about spelling. It's just fine. What you write and how you write to me is just great.

I will try to always remember to forget the troubles that pass my way and not forget the blessings that come each day.

God Bless You and Jim

Margie

[MargieB]

Hi Margie I am so sorry about your friend son I will say a special prayer for him and his family and for you and Hubby just hang in there there is alway light at the end of the tunnel I know I am new but I have found my symtoms geat worse under stress but they do get better after awhile my smiles and hug s are with you Pauline:):)

Hi Pauline


Thank you for your prayers for our friend's son Peter and his family.

Tony and I will definitely hang in there. Your optimism is catching. Yes, there is always light at the end of the tunnel. Until I joined this forum I had no one to talk to about my husband's PD. No one understands unless you have experienced PD in your life. It is so great to be able to talk to people who understand and can offer friendship.

I am just beginning to realize that Tony's symptoms get worse under stress and as you said, they do get better after awhile when the stress subsides. I just blamed the PD but now when there is stress mounting we try to deflate it. It really helps.

Here's a great big smile for you too :D and a gazillion hugs.

Margie

[Drew Saunders]

Oh Heather, thank you for your encouraging words. They meant so much to me.

I will try to get Tony to talk slowly. He tends to talk fast, almost as if he wants to get everything he has to say out before his voice turns in to a whispher.

He cried today. He was remembering when we would take little drives and then stop for an ice cream. Tony can no longer drive and I haven't driven in over 15 years. It is so sad and hard to see someone cry, especially if it is your best friend and partner in life. Tomorrow will be better :).

Today we went for a little walk with our son. Tony started getting leg pains and his legs stiffened up on him. I remembered reading somewhere that if someone with PD freezes to have them point their toes upward if they can and it will help them to continue to walk. It did help. Sometimes the little things mean so much.

Your prayers are much welcomed. God bless you always in all ways for thinking of us.

Margie :)

Hi Margie, Have you given any thought to getting Tony a mobility scooter? I have mobility problems and bought a 4mph pavement scooter (scooters come in 3 different categories. Pavement scooter max 4 mph, licenced 6 and 8mph scooters). Having my scooter enables my wife Elaine and I to get around and see different places whereas before we couldn't. Pride and stubberness put me off buying one until I realised I was restricting my wife and I getting around. It is so different now. Alternatively, most Council owned large parks will hire you a scooter for a limited period to enable both of you to enjoy the outdoors and get the most out of life together. For example we are frequent visitors to Kingsbury Water Park in Warwickshire and scooters are available free of charge for 3 hours which is more than enough time to go round the various attractions which are on offer. I highly recommend you look into this facility.
If finacies allow may I also recommend a cruise especially with P & O. We have had 2 to date and they do look after you. Nothing is too much trouble. I highly recommend them.
God Bless you both, Drew

[MargieB]

Hi Margie,
I am sorry to hear about your friend's son. It puts everything to perspective when something like that happens. I am carer for my father who has Parkinsons. If my father is stressed or down about anything it effects his overall condition, but it isn't permanent. That is the thing about parkinsons, the sufferers condition can change hour by hour, never mind day by day. You are in my prayers.
Geraldine

Hi Geraldine,

Hope you and your father had a good day today. Thank you for telling me about the fact that when your father is stressed or down about anything it effects his overall condition. You're right, it isn't permanent but I always get afraid and think it is. I have to throw that fear away. I have to Let Go and Let God. Yes Tony's condition changes hour by hour. It's like living with a different, yet the very same person that you love so much. You know what I mean.

I'm sending you a great big hug.

Good night for now. You and your father are in my prayers also.

Margie :):)

[heather]

Hi Heather,

Thanks for the good day wish. It came through. I think you might be partly responsible for it.

Tony and I will talk more about him talking slower. He tried last night. Although I'll have to keep reminding him at first (be a pest but don't upset him ;).

Yes, I'm thinking of going back to driving but at this moment in time I am afraid to. Here in Queens, New York the traffic is tremendous. Even in the residential areas where we live. The thing you said about going out late in a evening or early morning sounds soooooooooooo good. I'll have to keep pondering and then one day hopefully I'll drive :eek:

No, Tony hasn't tried rocking back and forward. He is going to try it.

Don't you dare worry about spelling. It's just fine. What you write and how you write to me is just great.

I will try to always remember to forget the troubles that pass my way and not forget the blessings that come each day.

God Bless You and Jim

Margie

Hi Margie
so so glad you had a good day,and if i helped then that makes me feel good my friend
take the speech slowly, but please don't give up communicating you no the old saying if you don't use it you lose it,then it does get hard , please don't be tempted to speak for him. ie finish his sentences even if you no what he is saying,this is where we went wrong, i thought i was being kind ,but it made him lazy, which happens very quickly , with all aspects of neurological illness even cutting up his food,independence is so important, and you will be tempted to want to help him ,but i'm sorry another well no saying, be cruel to be kind
I like that saying be a pest but don't up set him

we find if we go out shopping etc when it's very busy,it gets to much for him, and he is very tired when we get home,we love garden centres, we have2 local ones, that have a small cafeteria,and we can site and have a drink [he has thick and easy in his drink] and a naughty cake Jim loves egg custard minus the tart now me it has to be the biggest chocolate cake :D, often we don't buy any thing but we have a lovely time
Hope the rocking helps Tony, as we no not everything works for every one, so good luck
I have just been telling Jim about you and Tony,and he has put his thumb up so you have had a pass mark :D
take care, and don't forget to look after yourself
going to bed soon 12.45 am in the UK

[MargieB]

Hi Drew,

My computer was down for quite awhile so I couldn't do anything. My youngest son fixed what was wrong.

I welcome your suggestion very much about getting Tony a mobility scooter. Unfortunately, Tony won't even use a walker and/or a cane as his doctor suggested. He is a very good man but a bit stubborn. He insists that he is ok the way he is. Meanwhile, he has fallen several times, cannot dress or shower himself and has difficulty getting in and out of bed and our sofa and kitchen chairs. His neurologist has told me to keep being patient. He said as long as Tony won't consent to use these things, there is nothing I can force him to do.

Our youngest son is still living at home. Chris is a tremendous help. He gives of his time with love and caring and strength both emotional and physical. There is no way I could get Tony into the shower so Chris does this plus so many more things.

Tony has not only been hit with PD he also has the problem of not being able to urinate on his own. He has to be catheterized 4 to 6 times per 24 hours so we have to plan our time around this. He has gone through several medications and none of them have rectified the problem. Right now surgery is not feasible the doctor told us.

But through everything we do keep a positive outlook. Our Internist just told us a few weeks ago that there is a new medicine on the horizon for PD patients. It should hopefully be coming out next year. I don't know the name of it. But if the FDA approves it, let's hope that it helps every single one of PD patients.

I keep on thinking of getting to drive again after 20 years but I get a bit nervous. Here in Queens, New York the traffic is a little :eek: scary. Chris takes us for rides now. Who knows, one of these days maybe I will! The three of us go for walks together almost every day. Getting out in the fresh air is a wonderful thing. It gives one a lift in body and spirit.

You mentioned Kingsbury Water Park in Warwickshire. Where is this park? Is it England where you and your Wife Elaine live? Isn't it amazing that this Forum is world wide? It is the first time I have ever been able to talk with patients and their care giver. Thank you so much for your positive and up beat Post.

Please say hello to your wife Elaine. Hope you both have a good day tomorrow.

God bless you both too. Thank you Drew and Elaine :):)

[MargieB]

Hi Drew,

My computer was down for quite awhile so I couldn't do anything. My youngest son fixed what was wrong.

I welcome your suggestion very much about getting Tony a mobility scooter. Unfortunately, Tony won't even use a walker and/or a cane as his doctor suggested. He is a very good man but a bit stubborn. He insists that he is ok the way he is. Meanwhile, he has fallen several times, cannot dress or shower himself and has difficulty getting in and out of bed and our sofa and kitchen chairs. His neurologist has told me to keep being patient. He said as long as Tony won't consent to use these things, there is nothing I can force him to do.

Our youngest son is still living at home. Chris is a tremendous help. He gives of his time with love and caring and strength both emotional and physical. There is no way I could get Tony into the shower so Chris does this plus so many more things.

Tony has not only been hit with PD he also has the problem of not being able to urinate on his own. He has to be catheterized 4 to 6 times per 24 hours so we have to plan our time around this. He has gone through several medications and none of them have rectified the problem. Right now surgery is not feasible the doctor told us.

But through everything we do keep a positive outlook. Our Internist just told us a few weeks ago that there is a new medicine on the horizon for PD patients. It should hopefully be coming out next year. I don't know the name of it. But if the FDA approves it, let's hope that it helps every single one of PD patients.

I keep on thinking of getting to drive again after 20 years but I get a bit nervous. Here in Queens, New York the traffic is a little :eek: scary. Chris takes us for rides now. Who knows, one of these days maybe I will! The three of us go for walks together almost every day. Getting out in the fresh air is a wonderful thing. It gives one a lift in body and spirit.

You mentioned Kingsbury Water Park in Warwickshire. Where is this park? Is it England where you and your Wife Elaine live? Isn't it amazing that this Forum is world wide? It is the first time I have ever been able to talk with patients and their care giver. Thank you so much for your positive and up beat Post.

Please say hello to your wife Elaine. Hope you both have a good day tomorrow.

God bless you both too. Thank you Drew and Elaine :):)

Margie
PS I goof once in awhile on the Forum so if you get this twice, I made a mistake:confused:

[MargieB]

Hi Geraldine,

Hope you and your father had a good day today. Thank you for telling me about the fact that when your father is stressed or down about anything it effects his overall condition. You're right, it isn't permanent but I always get afraid and think it is. I have to throw that fear away. I have to Let Go and Let God. Yes Tony's condition changes hour by hour. It's like living with a different, yet the very same person that you love so much. You know what I mean.

I'm sending you a great big hug.

Good night for now. You and your father are in my prayers also.

Margie :):)

Dear Geraldine,

My computer was out of service for a time. My son Chris was able to get it to work again. I'm so glad.

Just dropping by to say hello to you and your father. I think of you often throughout my day. I send many :) to you.

Tony is having a tough day. When your father has a tough day, is it hard for you to get him to get out of his mood of not wanting to do what he needs to do? Also, I do my hobbies to keep my spirits up but I feel so guilty that I can do these things and Tony can't do things he used to enjoy. I'm working on the guilt feelings but somedays I just can't knock them out. Think I'll go watch a funny tv show with Tony and we'll have some laughs together.

Good night for now.

Margie :)

[Pauline]

Hi Thank you for the hug and smiles I agree this forum is the best thing it is so good to talk to people that are going through the same thing I don't feel alone so much any more I have even talked to John about thing that I have learned from being here instead of is stead of throwing every thing at him at once I am taking it slow so maybe he will take his head out of the sand but any way he is listening bye for now smiles your way:):):)Pauline

[MargieB]

Dear Pauline, It's 2:32 am here in Queens and I just opened the Forum a little bit ago. I wrote you and Heather earlier this evening. Maybe I goofed and the posts didn't go through. Please let me know is you got my 2 posts. This one and the earlier one.

My computer was not working for a time. My son Chris was able to fix what was wrong today so I'm back :D. Still have trouble with computer but not so bad.

Tony is really having a hard time. He is so good but he is quite stubborn. His internist had told him to use a cane and to get a walker (the doctor even wrote a prescription for a specific walker) but he refuses to get them. I did get him two canes but they just hang there.

The walker is another story. The doctor said if Tony will not use the walker I can't force him. I know this is true so I will try to be patient and understand. I can just imagine how Tony feels. He doesn't talk about his PD to anyone, including me. There are very few exceptions when he mentions one or two things and then nothing. I only know what I read and guess at and what the doctors say. That's why having you and the Forum means so much to me.

My eyes are closing on me. I had better get to bed and try to get some good sleep.

It is so good to have you to talk with :):)

Good night for now, or should I say: Have a really good day.

Love,

Margie

[MargieB]

Hi Drew,

Besides still learning how to use everything available to us on the Forum, my computer was down for quite awhile so I couldn't do anything on it. My youngest son was able to fix what was wrong so I can be on the Forum again.

Drew, if you receive this post a few times don't think I've gone bonkers. I'm doing something incorrect in sending my posts. There is something I mix up and I haven't figured it out yet but I will.

I welcome your suggestion very much about getting Tony a mobility scooter. Unfortunately, Tony won't even use a walker and/or a cane as his doctor prescribed. He is a very good man but a bit subborn. He insists that he is ok the way he is. Meanwhile, he has fallen several times, cannot dress or shower by himself and has difficulty getting in and out of bed and our sofa and kitchen chairs. His neurologist has said as long as Tony won't consent to use these aids, there is nothing we can do to force him. It would be a disadvantage instead of a help.

Our youngest son is still living at home. Chris is a tremendous help. He gives of his time unselfishly and caring and strength both emotional and physical.

Tony has not only been hit with PD he also has the problem of not being able to urinate on his own due to an enlarged prostate. He has to be catheterized 4 to 6 times per 24 hours so we have to plan our time around this. He has gone through several medications for this and none of them have rectified/helped clear up this problem. Right now surgery is not feasible the doctor told us.

But through everything we do try to keep a positive outlook. Our Internist just told us a few weeks ago that there is a new medicine on the horizon for PD patients. It should hopefully be coming out next year. I don't know the name of it. But if the FDA approves it, let's hope that it helps every single one of PD patients.

I keep on thinking of getting to drive again after 20 years but I get a bit nervous. Here in Queens, New York the traffic is a little scary :eek: Chris takes us for rides now. Who knows, one of these days maybe I will start to drive again. The three of us go for walk's together almost every day. Getting out in the fresh air is a wonderful thing. It gives one a life in body and spirit.

You mentioned Kingsbury Water Park in Warwickshire. Where is it? Isn't is amazing that this Forum is world wide? It is the first time I have evern been able to talk with patients and caregivers. Tony doesn't talk about the PD with anyone and rarely to me about it. Thank you so much for your positive and up beat Post.

Please say hello to your wife Elaine. Hope you both enjoy your day together tomorrow.

God bless you both too. Thank you Drew and Elaine :):)

[MargieB]

Dear Heather,

I've tried to get to sleep but sleep is busy in someone else's home right now. Maybe it'll come to me next!

My computer has been out for a time so I was unable to write anything. My son Chris was able to fix what was wrong with it. I hope it stays ok.

Sometime on Saturday I wrote you and Pauline. I don't know if the posts went through ok. There is still something I mix up. Please let me know if you got Saturday's post and this one :confused:

Tony's legs are really starting to give him pain and trouble walking. Unfortunately he won't even use a walker and/or a cane as his doctor prescribed. He such a good person but stubborn. He insists that he is ok the way he is. Meanwhile, he has fallen several times, cannot dress or shower himself and has difficulty getting in and out of bed and our sofa and kitchen chairs. His neurologist hs told me that as long as Tony won't consent to use these things, there is nothing I can force him to do. It would be a disadvantage instead of a help to him.

I might be repeating myself on this. Tony has not only been hit with PD he also has the problem of not being able to go to the bathroom on his on. He has to be catheterized 4 to 6 times per 24 hours so we have to plan our time around this. He has gone through several medications and none of them have worked for him. The doctor told us surgery is not feasible at this time. I can only imagine how all this must be for Tony. He doesn't speak about the PD to anyone and rarely does he mention anything to me. I just know from what I read and guess. Being married to Tony for almost 46 years allows my guesses to be on target a lot of times. But I do wish he would open up a bit about his feelings and fears. I would so like to help him.

Our internist told us a few weeks ago that there is a new medicine on the horizon for PD patients. It should hopefully be coming out next year. I don't know the name of it, but if the FDA approces it, let's hope that it helps every single one of PD patients.

How are you and Jim? I hope the weekend is a really pleasant one for both of you. Thank Jim for the thumbs up for Tony. It means a lot :).

It's 3:56 am here and I'll have to get up in a few hours so I better get to bed.

I am so grateful to have you to talk with.

Love,

Margie

[heather]

Hi Margie
Don't think we got you post Saturday, your profile said you last was on Friday, as Pauline was concerned about you bless her.
my heart goes out to you Tony and your son
you feel like your in a terminal and all you want to do is scream and even through things,you will get through this my friend i promise
It took sometime for Jim to accept the stick at first, but after a fall up the garden that frighten both of us, me screaming it wouldn't have happened if he had his stick,he agreed for using it outside, i bought him a frame with 3 wheels basket on front which a tray sat on then top,and a bag on the back, [ we called it his butlers mobile], this meant he could go in the kitchen put things on the tray, lay the table etc, go get the mail/paper out of the door , even sit in his chair and have a snack,it folded small to put in the car, you may be able to get one from his PD nurse
do you have a double or single bed ,we had a double bed,soi changed it for 2 single electric beds , best thing since sliced bread ,lol lol, I was getting no sleep as he was so restless, and twitched occasionally,he could put the back up,so he only needed one pillow, but most of all he could raise it till he was in the sitting position,so i only had to help him lift his back in bed at night night as he could get them out no problem.also a electric chair that raises and lowers him

Sorry the bladder problem is part of the PD the brain is not telling the bladder muscle to work, encourage him to drink at least 2 pint's of water a day as well as his tea or coffee [not gone metric in this house lol lol ] or he will get urine infections , it's a catch 22 situation, the more you drink the more you need the toilet,
Jim went to see a urologist,and they scanned his bladder to see how much he was emptying ,and did other tests to eliminate prostate gland.We did the catheter routine
but found it was taking over our day,and no matter how careful we where, he started to get soar and infections. so he agreed a perminate [spelling] one would be less embarrassing and he could drink so much as he liked , and go out with out thinking is it time , or must do that before we go out , it only gets it changed ever 3 months [it was another thing we shelved ],and have never looked back

Can i correct you on something,as this where i went wrong Imean this in the nicest way.
"I just know from what I read and guess. Being married to Tony for almost 46 years allows my guesses to be on target a lot of times."

Jim and i have been married for 39years this August so you and i are in the guineas book of records ;)I like you can read him like a book, but after a time i realized he was getting lazy [part of pd] he had no reason to work things out for himself, i was doing all the thinking for him, he didn't have to
talk about it, as all the things he was wondering about, i solved,so i started to ask him "what he thought we could do, for want ofa better word, i acted thick" it took some time but he started to tell me this would be easier, especially if i was hurting him or me

Hope the above helps, but you will have to be very careful if any of them are useful how you approach him, take it slowly, make out it's a idea you or your son have just had, when you are in a situation

Your doctor is correct, you can't make him do what he doesn't want to do ,he will only dig his heels in more

Jim still has days when he gets d**** stubborn., we call it "i'm not going to do what you say day " I just leave him alone tell him the situation, and walk away,it's then up to him what he does about it,if you try to force him, then you will both get stressed, and that's no good

http://i10.photobucket.com/albums/a126/maesisaf/sit%20pictures%20not%20used/384db72f.gif
p,s
Margie please can you tell me if you see my picture or is just a link thanks

[MargieB]

Hi Heather,

Yes, I was last on Friday and then my computer went beserk. It got fixed by my son Chris and it was pretty good for awhile. Then it went bonkers again, got fixed again, and then Chris installed a little box about 7" x 2" and made a new hook up. Now the computer is running very smoothly and here I am back again :). It's so good to be here.

You are right on! I do feel like I'm in a terminal and all I want to do is SCREAM :eek: I'll let you in on a secret, sometimes when Chris takes his Dad out and I don't go along I WILL just let out one loud, heart rendering scream and then put on some soothing music and watch television and it helps a lot. If the neighbors hear me (I don't think so :rolleyes:) they must wonder what the one scream once in awhile means.
Have you ever given in to something like that?

There is a good sign. Tony has hung one of the canes near where he sits in our living room. I have hung the other one on the headboard on his side of the bed. I do believe he is trying to accept. As Pauline said, it takes awhile to get the head wrapped around what is happening. Tony has always been a very self motivated and independent person. I have just realized that if I think of this whenever I get frustrated that he isn't accepting the aids available to him because he has lost so much and is slowly adapting, it will not only help me but it will benefit Tony as well. In his own time he will use the aids as he needs them.

Yes, I realize we were doing almost everything for Tony. Even to get an apple. Today he asked for an apple and I very calmly said, "would you mind getting it, I'll be glad to cut it up for you?" Well, not only did he get the apple, I got a smile to go with it. Thanks Heather...slow but sure. And also what you said make as if an idea was mine or Chris' and handle it SLOWLY. I'm going to do just that.

Yes, with your help and dear Paulines and the other friends on the Forum, WE WILL GET THROUGH IT. I believe your "promise.

Me yelling or screaming for Tony to use an aid doesn't do anything positive. It puts him in a complete sulk of sadness. Then nothing is accomplished. Who better than me should know and realize this.

The butler's mobile tht you made for Jim sounds wonderful. I imaine it would be something like the special PD walker one of Tony's doctors wrote out a prescription for. It never got filled because Tony wants to wait on this and I understand. Maybe when he uses the cane he'll feel good about it.

Correction well taken about what I said: "I just know from what I reaad and guess. Being married to Tony for almost 46 years allows my guesses to be on target a lot of times."


So dear friend, welcome with me to the Guiness Bok of World Records. Yes you too can read Jim like a book but as you pointed outJim got lazy (part of PD) and he had no reason to work things out for himself because you were doing all the thinking for him, etc. I'm going to start "acting thick". I have the patience to do it and I love Tony so very much that I will do it to help him and it will make me happy also to see him do things and get a satisfaction from accomplishing something on his own.

You did definitely help me with your suggestions. I will be very careful in approaching him with ideas, suggestions, etc. and will go slowly. Your advice is going to help both me and Tony. Chris also.

I chuckled when I read Jim still has days when he gets d*** stubborn, we call it "I'm not going to do what you say day". Can I borrow that and use it here? :confused:

Oh Heather, what a beautiful picture with the little angel on it and what you wrote to Tony and me that you Said A Prayer For Us Today love Heather. I don't know how you got it to come through but am very grateful that it did. Thank you friend. It means a lot.

God Bless
Love, Margie

[MargieB]

Hi Margie, Have you given any thought to getting Tony a mobility scooter? I have mobility problems and bought a 4mph pavement scooter (scooters come in 3 different categories. Pavement scooter max 4 mph, licenced 6 and 8mph scooters). Having my scooter enables my wife Elaine and I to get around and see different places whereas before we couldn't. Pride and stubberness put me off buying one until I realised I was restricting my wife and I getting around. It is so different now. Alternatively, most Council owned large parks will hire you a scooter for a limited period to enable both of you to enjoy the outdoors and get the most out of life together. For example we are frequent visitors to Kingsbury Water Park in Warwickshire and scooters are available free of charge for 3 hours which is more than enough time to go round the various attractions which are on offer. I highly recommend you look into this facility.
If finacies allow may I also recommend a cruise especially with P & O. We have had 2 to date and they do look after you. Nothing is too much trouble. I highly recommend them.
God Bless you both, Drew

Hi Drew,

I'm still learning my way around the Forum. I wrote you a reply as soon as I read your QUOTE to me. If you didn't receive it, I'll be glad to write it again. Please let me know.

One of the lady's I know through the Forum is going to give me some help on how to do things correctly on the Forum.

If you answered me, I didn't look in the right place because I didn't find anything. Please be patient with this newcomer. Tony and I appreciate it.

Say hi to Elaine for me.

God Bless

Margie

[heather]

Hi Heather,

Yes, I was last on Friday and then my computer went beserk. It got fixed by my son Chris and it was pretty good for awhile. Then it went bonkers again, got fixed again, and then Chris installed a little box about 7" x 2" and made a new hook up. Now the computer is running very smoothly and here I am back again :). It's so good to be here.

You are right on! I do feel like I'm in a terminal and all I want to do is SCREAM :eek: I'll let you in on a secret, sometimes when Chris takes his Dad out and I don't go along I WILL just let out one loud, heart rendering scream and then put on some soothing music and watch television and it helps a lot. If the neighbors hear me (I don't think so :rolleyes:) they must wonder what the one scream once in awhile means.
Have you ever given in to something like that?

There is a good sign. Tony has hung one of the canes near where he sits in our living room. I have hung the other one on the headboard on his side of the bed. I do believe he is trying to accept. As Pauline said, it takes awhile to get the head wrapped around what is happening. Tony has always been a very self motivated and independent person. I have just realized that if I think of this whenever I get frustrated that he isn't accepting the aids available to him because he has lost so much and is slowly adapting, it will not only help me but it will benefit Tony as well. In his own time he will use the aids as he needs them.

Yes, I realize we were doing almost everything for Tony. Even to get an apple. Today he asked for an apple and I very calmly said, "would you mind getting it, I'll be glad to cut it up for you?" Well, not only did he get the apple, I got a smile to go with it. Thanks Heather...slow but sure. And also what you said make as if an idea was mine or Chris' and handle it SLOWLY. I'm going to do just that.

Yes, with your help and dear Paulines and the other friends on the Forum, WE WILL GET THROUGH IT. I believe your "promise.

Me yelling or screaming for Tony to use an aid doesn't do anything positive. It puts him in a complete sulk of sadness. Then nothing is accomplished. Who better than me should know and realize this.

The butler's mobile tht you made for Jim sounds wonderful. I imaine it would be something like the special PD walker one of Tony's doctors wrote out a prescription for. It never got filled because Tony wants to wait on this and I understand. Maybe when he uses the cane he'll feel good about it.

Correction well taken about what I said: "I just know from what I reaad and guess. Being married to Tony for almost 46 years allows my guesses to be on target a lot of times."


So dear friend, welcome with me to the Guiness Bok of World Records. Yes you too can read Jim like a book but as you pointed outJim got lazy (part of PD) and he had no reason to work things out for himself because you were doing all the thinking for him, etc. I'm going to start "acting thick". I have the patience to do it and I love Tony so very much that I will do it to help him and it will make me happy also to see him do things and get a satisfaction from accomplishing something on his own.

You did definitely help me with your suggestions. I will be very careful in approaching him with ideas, suggestions, etc. and will go slowly. Your advice is going to help both me and Tony. Chris also.

I chuckled when I read Jim still has days when he gets d*** stubborn, we call it "I'm not going to do what you say day". Can I borrow that and use it here? :confused:

Oh Heather, what a beautiful picture with the little angel on it and what you wrote to Tony and me that you Said A Prayer For Us Today love Heather. I don't know how you got it to come through but am very grateful that it did. Thank you friend. It means a lot.

God Bless
Love, Margie

Hi Margie
hope all is well your end, the sun is shining so we are good

The secret i personally found is is take it slowly step by step, i would goon and on and it never worked , by taking my time and letting Jim think it was his decision [that's a man thing anyway lol lol] took the stress off us both, the only thing i did insist on was he did things for himself that i new he could do, and would just say "NO , use it or lose it" if he was tired then that was a different thing,

Man have i screamed, and cursed him in the sky, my daughter has a saying, that i have to laugh at,she says , "Mum heaven won't have you, and hell is afraid you will take over "
Any thing i put on hear you can use as long as you can repeat
it to the vicar
I'm glad you liked my picture, it is a little hobby of mine,[psp] but don't have the time to do it on a full scale
I did This post for parkie and Jane so it may help, Leanna said it was correct
-----------------------------------

Go to
Top left corner
If you click on Parkinsons Disease Forum ,that will take you to the main page ,look down it click on any of the main headings ,this will open up showing more topics ,just click on what interests you

if you want to answer the last post , then click on post reply type what you want, you can see what you typed by clicking on preview post, this will show you what your post will look like[using the scroll bar outside your post], you can scroll back down to your post, and change anything or add if you want to,if happy click on submit reply

If you want to answer a earlier post eg 1st 2nd etc above the last post ,then find the post, click on quote ,[bottom right hand corner] like i have on yours
type pass the [/QUOTE ] Heather [/QUOTE]
and do the same as the above

i also find [ top of the page] clicking on
User CP FAQ Members List Calendar New Posts Search Quick Links Log Out is good it shows you all the new posts since I last visited,

If you have clicked on the submit reply to soon you can
go into the edit and correct anything
it will say why edited but you don't have to put a reason if you don't want to
hope this helps

May be someone else can add more to it ,as i'm not familiar, with this particular forum[/QUOTE][/QUOTE]
hope this helps a little

I will do one in hobbies , under computer on how to post pictures on hear, then we can all share hobbies , and add things to our post's, it will take a time, so please bear with me, as it will have to be when nothing else to do

[MargieB]

Hi Margie
hope all is well your end, the sun is shining so we are good

The secret i personally found is is take it slowly step by step, i would goon and on and it never worked , by taking my time and letting Jim think it was his decision [that's a man thing anyway lol lol] took the stress off us both, the only thing i did insist on was he did things for himself that i new he could do, and would just say "NO , use it or lose it" if he was tired then that was a different thing,

Man have i screamed, and cursed him in the sky, my daughter has a saying, that i have to laugh at,she says , "Mum heaven won't have you, and hell is afraid you will take over "
Any thing i put on hear you can use as long as you can repeat
it to the vicar
I'm glad you liked my picture, it is a little hobby of mine,[psp] but don't have the time to do it on a full scale
I did This post for parkie and Jane so it may help, Leanna said it was correct
-----------------------------------

Go to
Top left corner
If you click on Parkinsons Disease Forum ,that will take you to the main page ,look down it click on any of the main headings ,this will open up showing more topics ,just click on what interests you

if you want to answer the last post , then click on post reply type what you want, you can see what you typed by clicking on preview post, this will show you what your post will look like[using the scroll bar outside your post], you can scroll back down to your post, and change anything or add if you want to,if happy click on submit reply

If you want to answer a earlier post eg 1st 2nd etc above the last post ,then find the post, click on quote ,[bottom right hand corner] like i have on yours
type pass the [/QUOTE ] Heather
and do the same as the above

i also find [ top of the page] clicking on
User CP FAQ Members List Calendar New Posts Search Quick Links Log Out is good it shows you all the new posts since I last visited,

If you have clicked on the submit reply to soon you can
go into the edit and correct anything
it will say why edited but you don't have to put a reason if you don't want to
hope this helps

May be someone else can add more to it ,as i'm not familiar, with this particular forum[/QUOTE][/QUOTE]
hope this helps a little

I will do one in hobbies , under computer on how to post pictures on hear, then we can all share hobbies , and add things to our post's, it will take a time, so please bear with me, as it will have to be when nothing else to do[/QUOTE]
Hi Heather,

Thanks so much for your guidelines. They are a help already with this quote. And thank you Lianna Marie for telling Heather it would be ok to give them to me.

Ok, I got it...if the vicar can hear it, I can post it :rolleyes:

Your daughter seems to have the same good sense of humor as you do. It's catching, I'm getting it ;).

What a wonderful hobby. I'm delighted that you are going to do it in hobbies. Of course I'll bear with you. Something good is always worth waiting for. Whenever your addition arrives on the Hobby Forum will be just the right time.
It should be fun for you, not something you have to rush when there are priorities.

Today is Tony's birthday and I'm getting a little favorite dinner prepared and a few little gifts. Then we'll watch some television and enjoy time together.

Remember about the apple I asked Tony to get for himself, and he did. Well last evening after supper he helped me put the dishes in the dishwasher. I was tempted to tell him, no, that's all right, I'll do it. But I thought of you and what you wrote. So I kept my big mouth shut :D. And we both wound up happy. It's starting Heather. Slowly but surely.

With love,

Margie

[MargieB]

[/COLOR]
and do the same as the above

i also find [ top of the page] clicking on
User CP FAQ Members List Calendar New Posts Search Quick Links Log Out is good it shows you all the new posts since I last visited,

If you have clicked on the submit reply to soon you can
go into the edit and correct anything
it will say why edited but you don't have to put a reason if you don't want to
hope this helps

May be someone else can add more to it ,as i'm not familiar, with this particular forum[/QUOTE]
hope this helps a little

I will do one in hobbies , under computer on how to post pictures on hear, then we can all share hobbies , and add things to our post's, it will take a time, so please bear with me, as it will have to be when nothing else to do[/QUOTE]
Hi Heather,

Thanks so much for your guidelines. They are a help already with this quote. And thank you Lianna Marie for telling Heather it would be ok to give them to me.

Ok, I got it...if the vicar can hear it, I can post it :rolleyes:

Your daughter seems to have the same good sense of humor as you do. It's catching, I'm getting it ;).

What a wonderful hobby. I'm delighted that you are going to do it in hobbies. Of course I'll bear with you. Something good is always worth waiting for. Whenever your addition arrives on the Hobby Forum will be just the right time.
It should be fun for you, not something you have to rush when there are priorities.

Today is Tony's birthday and I'm getting a little favorite dinner prepared and a few little gifts. Then we'll watch some television and enjoy time together.

Remember about the apple I asked Tony to get for himself, and he did. Well last evening after supper he helped me put the dishes in the dishwasher. I was tempted to tell him, no, that's all right, I'll do it. But I thought of you and what you wrote. So I kept my big mouth shut :D. And we both wound up happy. It's starting Heather. Slowly but surely.

With love,

Margie[/QUOTE]

[heather]

[/COLOR]
and do the same as the above

i also find [ top of the page] clicking on
User CP FAQ Members List Calendar New Posts Search Quick Links Log Out is good it shows you all the new posts since I last visited,

If you have clicked on the submit reply to soon you can
go into the edit and correct anything
it will say why edited but you don't have to put a reason if you don't want to
hope this helps

May be someone else can add more to it ,as i'm not familiar, with this particular forum[/QUOTE]
hope this helps a little

I will do one in hobbies , under computer on how to post pictures on hear, then we can all share hobbies , and add things to our post's, it will take a time, so please bear with me, as it will have to be when nothing else to do[/QUOTE]
Hi Heather,

Thanks so much for your guidelines. They are a help already with this quote. And thank you Lianna Marie for telling Heather it would be ok to give them to me.

Ok, I got it...if the vicar can hear it, I can post it :rolleyes:

Your daughter seems to have the same good sense of humor as you do. It's catching, I'm getting it

What a wonderful hobby. I'm delighted that you are going to do it in hobbies. Of course I'll bear with you. Something good is always worth waiting for. Whenever your addition arrives on the Hobby Forum will be just the right time.
It should be fun for you, not something you have to rush when there are priorities.

Today is Tony's birthday and I'm getting a little favorite dinner prepared and a few little gifts. Then we'll watch some television and enjoy time together.

Remember about the apple I asked Tony to get for himself, and he did. Well last evening after supper he helped me put the dishes in the dishwasher. I was tempted to tell him, no, that's all right, I'll do it. But I thought of you and what you wrote. So I kept my big mouth shut :D. And we both wound up happy. It's starting Heather. Slowly but surely.

With love,

Margie[/QUOTE]

Hi Marge please wish Tony a Happy Birthday,just a little something off us gang on hear, hope it's not to late
http://i10.photobucket.com/albums/a126/maesisaf/sit%20pictures%20not%20used/9779cce4.gif

you are doing so well,hope i'm not haunting you though lol
bet you both felt you won the lottery doing the dishwasher together, I no how you felt,if Jim says one word to me, we both have a big hug and a cry, it's such a lovely feeling
I promise before long, if you stand back a little, just be there as a safety net, Tony will start to enjoy things and start to except equipment,so he can be more independent [i mean that in a nice way]
Enjoy your night together will catch up tomorrow
http://i10.photobucket.com/albums/a126/maesisaf/c6e8768b.gif

[MargieB]

hope this helps a little

I will do one in hobbies , under computer on how to post pictures on hear, then we can all share hobbies , and add things to our post's, it will take a time, so please bear with me, as it will have to be when nothing else to do[/QUOTE]
Hi Heather,

Thanks so much for your guidelines. They are a help already with this quote. And thank you Lianna Marie for telling Heather it would be ok to give them to me.

Ok, I got it...if the vicar can hear it, I can post it :rolleyes:

Your daughter seems to have the same good sense of humor as you do. It's catching, I'm getting it

What a wonderful hobby. I'm delighted that you are going to do it in hobbies. Of course I'll bear with you. Something good is always worth waiting for. Whenever your addition arrives on the Hobby Forum will be just the right time.
It should be fun for you, not something you have to rush when there are priorities.

Today is Tony's birthday and I'm getting a little favorite dinner prepared and a few little gifts. Then we'll watch some television and enjoy time together.

Remember about the apple I asked Tony to get for himself, and he did. Well last evening after supper he helped me put the dishes in the dishwasher. I was tempted to tell him, no, that's all right, I'll do it. But I thought of you and what you wrote. So I kept my big mouth shut :D. And we both wound up happy. It's starting Heather. Slowly but surely.

With love,

Margie[/QUOTE]

Hi Marge please wish Tony a Happy Birthday,just a little something off us gang on hear, hope it's not to late
http://i10.photobucket.com/albums/a126/maesisaf/sit%20pictures%20not%20used/9779cce4.gif

you are doing so well,hope i'm not haunting you though lol
bet you both felt you won the lottery doing the dishwasher together, I no how you felt,if Jim says one word to me, we both have a big hug and a cry, it's such a lovely feeling
I promise before long, if you stand back a little, just be there as a safety net, Tony will start to enjoy things and start to except equipment,so he can be more independent [i mean that in a nice way]
Enjoy your night together will catch up tomorrow
http://i10.photobucket.com/albums/a126/maesisaf/c6e8768b.gif[/QUOTE]

:)Hi Heather,

The Happy Birtday wish is definitely not too late. I will extend it to Tony when I get off the Forum.

Yes, I am doing well. I've got a good "coach" who is NOT haunting me. Am grateful.

We felt great doing the little "chore" together. Having those moments with your spouse IS such a lovely feeling. May you and Jim, Tony and me share many more. Keep hoping.

Standing back a little is something I am learning to do. It will be easy if I remember this is for Tony and for me also. I am not being mean. It's like when a child is learning a new skill, you want to help that child learn and sometimes the adult goes faster than the child wants to or is capable of. Thanks Heather for your encouraging help.

We had a lovely evening watching television. Quiet but lovely.

Say hi to Jim from Tony and me.

Before I close I want to tell you if I ever don't answer something you send me, please be patient with me, I get lost doing stuff on the Forum still once in awhile. There is so much I want to read here and I get mixed up. Of course, when I am up at a crazy hour of the night after a long day doesn't help me. I'll master it soon :confused:

With love,

Margie :)

[MargieB]

hope this helps a little

I will do one in hobbies , under computer on how to post pictures on hear, then we can all share hobbies , and add things to our post's, it will take a time, so please bear with me, as it will have to be when nothing else to do
Hi Heather,

Thanks so much for your guidelines. They are a help already with this quote. And thank you Lianna Marie for telling Heather it would be ok to give them to me.

Ok, I got it...if the vicar can hear it, I can post it :rolleyes:

Your daughter seems to have the same good sense of humor as you do. It's catching, I'm getting it

What a wonderful hobby. I'm delighted that you are going to do it in hobbies. Of course I'll bear with you. Something good is always worth waiting for. Whenever your addition arrives on the Hobby Forum will be just the right time.
It should be fun for you, not something you have to rush when there are priorities.

Today is Tony's birthday and I'm getting a little favorite dinner prepared and a few little gifts. Then we'll watch some television and enjoy time together.

Remember about the apple I asked Tony to get for himself, and he did. Well last evening after supper he helped me put the dishes in the dishwasher. I was tempted to tell him, no, that's all right, I'll do it. But I thought of you and what you wrote. So I kept my big mouth shut :D. And we both wound up happy. It's starting Heather. Slowly but surely.

With love,

Margie[/QUOTE]

Hi Marge please wish Tony a Happy Birthday,just a little something off us gang on hear, hope it's not to late
http://i10.photobucket.com/albums/a126/maesisaf/sit%20pictures%20not%20used/9779cce4.gif

you are doing so well,hope i'm not haunting you though lol
bet you both felt you won the lottery doing the dishwasher together, I no how you felt,if Jim says one word to me, we both have a big hug and a cry, it's such a lovely feeling
I promise before long, if you stand back a little, just be there as a safety net, Tony will start to enjoy things and start to except equipment,so he can be more independent [i mean that in a nice way]
Enjoy your night together will catch up tomorrow
http://i10.photobucket.com/albums/a126/maesisaf/c6e8768b.gif[/QUOTE]

:)Hi Heather,

The Happy Birtday wish is definitely not too late. I will extend it to Tony when I get off the Forum.

Yes, I am doing well. I've got a good "coach" who is NOT haunting me. Am grateful.

We felt great doing the little "chore" together. Having those moments with your spouse IS such a lovely feeling. May you and Jim, Tony and me share many more. Keep hoping.

Standing back a little is something I am learning to do. It will be easy if I remember this is for Tony and for me also. I am not being mean. It's like when a child is learning a new skill, you want to help that child learn and sometimes the adult goes faster than the child wants to or is capable of. Thanks Heather for your encouraging help.

We had a lovely evening watching television. Quiet but lovely.

Say hi to Jim from Tony and me.

Before I close I want to tell you if I ever don't answer something you send me, please be patient with me, I get lost doing stuff on the Forum still once in awhile. There is so much I want to read here and I get mixed up. Of course, when I am up at a crazy hour of the night after a long day doesn't help me. I'll master it soon :confused:

With love,

Margie :)[/QUOTE]

[heather]

Margie
you are both welcome,thank you for your best wishes,we have every intentions,of staying around for some time yet
You have hit it in one,
Standing back a little is something I am learning to do. It will be easy if I remember this is for Tony and for me also. I am not being mean. It's like when a child is learning a new skill, you want to help that child learn and sometimes the adult goes faster than the child wants to or is capable of.

[bruce]

Hi Everyone,

I'm feeling sad. This past weekend a seventeen year old son of one of our good friends died in a car accident. It greatly upset us and everyone who knew him. He was much loved. My husband, who as you know is a PD patient took it very hard. His PD symptoms are acting up more than usual and his voice is almost inaudible. I'm hoping this shock won't have permanent results. I am so afraid.

Thanks for listening.

MargieHello Margie, I understand your husband,s reaction to stressful events. I loose my voice slowly. It continues to get lower and finally goes away. My wife works with me by getting me to start slowly and try to build up. I know it will pass and wait as patiently as I can. Does these type of things bring on more fatigue than usual? PRAYERS ARE WITH YOU AND HUSBAND!!! BRUCE

[MargieB]

Hello Margie, I understand your husband,s reaction to stressful events. I loose my voice slowly. It continues to get lower and finally goes away. My wife works with me by getting me to start slowly and try to build up. I know it will pass and wait as patiently as I can. Does these type of things bring on more fatigue than usual? PRAYERS ARE WITH YOU AND HUSBAND!!! BRUCE

Hi Bruce,
That's exactly what happens to Tony. He loses his voice slowly and then it gets lower and finally goes away or is such a slight whisper that it is inaudible. Then in time when we work together it slowly returns.

Some days Tony's voice is stronger than others. Being patient at these times is very hard Bruce. It does bring more fatigue than usual for Tony.

I believe that is because first it is scary when your voice goes away (that causes stress), then trying to be as patient as you can (that causes stress) and then worrying about when it will come back and get better ( that causes stress) and I know myself, when I get stressed I get very fatigued and I am not the partner that has PD. Be kind to yourself and make an allowance for your fatigue. Take a nap if you can sleep. It might help. Tony does this sometimes. Also, some of the meds you are taking might make you tired once in awhile.

One of Tony's doctors suggested that he read aloud a little every day, or sing a song out loud, or recite the alphabet a few times during the day, or say a favorite prayer out loud. He explained that the vocal chord is a muscle that needs exercise. And the above mentioned are the little exercises he suggested. One of the doctors (who was a fill in for Tony's regular Internist while he was on vacation) wanted Tony to go for speech theraphy. Tony wants no part of it. He'd rather keep doing what he does. Right now he is going through a hard period. Having to give up a lot of his independence is hitting him hard. But we won't give up. Hope! There is a strong possibility of a cure. I believe that.

Tony's Internist told us there is a new medication supposedly coming out next year for PD patients that should be a great help. Let's pray that it is approved by the government and that it benefits each and every PD patient, without any serious side effects. That's a dream that I truly believe can become a reality.

Tell your wife from me to hang tough, PD patients and their spouses/caregivers will get through everything. Just take one day at a time, or if necessary one moment at a time. Let us do it together and lick the h*** out of this PD.

PRAYERS WITH YOU AND YOUR WIFE TOO. :):)

So long for now.

Margie

[grldnklly]

Hi Margie,
I am sorry about not answering sooner, but I am still finding my way around the forum! Just like you do with Tony, I find it very tough when my father is having a bad day. It is next to impossible to get him to shift moods! He can be so contrary. I find this hard to deal with and have to keep reminding myself that he wasn't always like this. Many times I have to leave the room before I say something I would regret. But we are only human! The other morning I was trying to coaxe him into taking medication for his bowels (he has been told by several doctors to take it every day, but refuses to do so) and he said to me 'just you do what you want'. So I just replied that the last thing I wanted to be doing at 6.30 am was making up medicines for him that if I had my choice I would be lying at the pool side of a luxury hotel in a warm country. The both of us ended up laughing.
I too find myself feeling guilty about taking time for myself, but if we don't look after ourselves - who's going to look after them! The last thing a carer needs is bad health, should that be mentally or physically.
As well as looking after my father, I work full time. I am lucky in that I can more or less make my own hours and can take work home with me. When my father is having a bad time I find that I need to de-stress from work before dealing with him, so as soon as I get home (after having a quick cup of tea) I take the dog for a walk. That 30 minutes on my own is like a tonic! When I come in I can then share my day with my father.
It's only human to feel guilty, but we shouldn't really. No matter how hard the day is God is with us. 'If God brings you to it, He will bring through it'. I always keep this quote in mind.
God bless

[grldnklly]

Hi Margie,
I am sorry about not answering sooner, but I am still finding my way around the forum! Just like you do with Tony, I find it very tough when my father is having a bad day. It is next to impossible to get him to shift moods! He can be so contrary. I find this hard to deal with and have to keep reminding myself that he wasn't always like this. Many times I have to leave the room before I say something I would regret. But we are only human! The other morning I was trying to coaxe him into taking medication for his bowels (he has been told by several doctors to take it every day, but refuses to do so) and he said to me 'just you do what you want'. So I just replied that the last thing I wanted to be doing at 6.30 am was making up medicines for him that if I had my choice I would be lying at the pool side of a luxury hotel in a warm country. The both of us ended up laughing.
I too find myself feeling guilty about taking time for myself, but if we don't look after ourselves - who's going to look after them! The last thing a carer needs is bad health, should that be mentally or physically.
As well as looking after my father, I work full time. I am lucky in that I can more or less make my own hours and can take work home with me. When my father is having a bad time I find that I need to de-stress from work before dealing with him, so as soon as I get home (after having a quick cup of tea) I take the dog for a walk. That 30 minutes on my own is like a tonic! When I come in I can then share my day with my father.
It's only human to feel guilty, but we shouldn't really. No matter how hard the day is God is with us. 'If God brings you to it, He will bring through it'. I always keep this quote in mind.
God bless

[heather]

I think as carers,we all feel guilty,when we get tired and raise our voices,
i find i do it more if i have so many other jobs that need doing,
i do try to prioritise,job's, but the today list just never seems to get smaller, some days, the things Jim did wrong yesterday didn't bother me,but the next day,it becomes a issue/war zone


once a week i go to bingo with my only friend,and i feel guilty for leaving him on his own, even though he sleeps most of the time .
I like this quote grldnklly
If God brings you to it, He will bring through it'
God bless and keep well

[MargieB]

I think as carers,we all feel guilty,when we get tired and raise our voices,
i find i do it more if i have so many other jobs that need doing,
i do try to prioritise,job's, but the today list just never seems to get smaller, some days, the things Jim did wrong yesterday didn't bother me,but the next day,it becomes a issue/war zone


once a week i go to bingo with my only friend,and i feel guilty for leaving him on his own, even though he sleeps most of the time .
I like this quote grldnklly
If God brings you to it, He will bring through it'
God bless and keep well

Hi Geraldine,

Don't you dare worry about when you answer. I fully understand. Even though I am retired I still can't seem to find enough hours in the day to do everything that needs to be done and afford to have time to do something that I like.

Being on this Forum is something I look forward to. I also like to sketch and paint a little for relaxation. Sometimes I do these in the wee hours of the morning or late at night.

Yes, the mood swings are a tough one to take. Tony, also can be so contrary. Sometimes, when I don't remove myself (like you) from the situation I do explode and then I say something that I did in no way want to say. After it is out, saying I'm sorry doesn't help me or Tony. But, we all agree that we are only human. That's is so true.

Constipation is one of the symptoms of PD and some of the medications. Tony's has this problem too. All his doctors have told him he has to drink more liquids. He tries, but he has never been one to drink a lot of water or other berages. He loves his glass of Pepsi Cola but that is not what the doctors meant by liquids. They suggested primarily water and tea. With Tony it is a double whammy. He has PD and also cannot urinate on his own. He needs to be catheterized 4 to 5times a day, 24/7. So the more liquid he drinks, helps the constipation but also makes more liquid he has to get rid or. He takes all of this well, with the exception of when he is in a down mood.

It's so good that you ended up laughing with your father. What you said sounds so good to me too, " if I had my choice I would be lying at the pool side of a luxury hotel in a warm country." So, when time permits, we have to make our own luxury hotel by doing something that we like.

That's sure the truth. If we don't look after ourselves, and we get sick, who will look after our loved one. When Tony first was diagnosed, I got depressed. Thank God I have a good doctor that I could talk with. She prescribed some medication for me and that was a tremendous help. Now, that I have accepted the PD and Tony and I have gotten in to a routine, I am ok. It was just the shock of it and fear of what was going to happen.

I don't know how you do it. Working full time and being the caregiver for your father. As I mentioned above, I am retired for about four and a half years so I have much more time than you do. You keep walking that dog (what's his/her name?) and anything else you can find time to do to destress yourself. We used to have dogs and cats over the years but now I have the cutest little Guinea Pig. He is affectionate and loving and gentle. His name is Dickens. And, true to his name, he is also a dickens sometimes but he gives me much joy.

No, we shouldn't feel guilty. We are doing our best in a tough situation. Yes, God is always with us and will bring us through it. I truly believe this also.

What I goofed on were the three capital letters. I kept inserting them along with the others :(. But you and I kept at it and "Margie" finally figured it along with the help of your patience.

Looking forward to 'talking' with you again. Please, really, don't worry about when you write back. Same with me. We will correspond when time permits.

You be well and keep smiling along with me :):).

Your friend,
God bless,

Margie

[bruce]

Hi Bruce,
That's exactly what happens to Tony. He loses his voice slowly and then it gets lower and finally goes away or is such a slight whisper that it is inaudible. Then in time when we work together it slowly returns.

Some days Tony's voice is stronger than others. Being patient at these times is very hard Bruce. It does bring more fatigue than usual for Tony.

I believe that is because first it is scary when your voice goes away (that causes stress), then trying to be as patient as you can (that causes stress) and then worrying about when it will come back and get better ( that causes stress) and I know myself, when I get stressed I get very fatigued and I am not the partner that has PD. Be kind to yourself and make an allowance for your fatigue. Take a nap if you can sleep. It might help. Tony does this sometimes. Also, some of the meds you are taking might make you tired once in awhile.

One of Tony's doctors suggested that he read aloud a little every day, or sing a song out loud, or recite the alphabet a few times during the day, or say a favorite prayer out loud. He explained that the vocal chord is a muscle that needs exercise. And the above mentioned are the little exercises he suggested. One of the doctors (who was a fill in for Tony's regular Internist while he was on vacation) wanted Tony to go for speech theraphy. Tony wants no part of it. He'd rather keep doing what he does. Right now he is going through a hard period. Having to give up a lot of his independence is hitting him hard. But we won't give up. Hope! There is a strong possibility of a cure. I believe that.

Tony's Internist told us there is a new medication supposedly coming out next year for PD patients that should be a great help. Let's pray that it is approved by the government and that it benefits each and every PD patient, without any serious side effects. That's a dream that I truly believe can become a reality.

Tell your wife from me to hang tough, PD patients and their spouses/caregivers will get through everything. Just take one day at a time, or if necessary one moment at a time. Let us do it together and lick the h*** out of this PD.

PRAYERS WITH YOU AND YOUR WIFE TOO. :):)

So long for now.

MargieI really enjoyed hearing from you! Giving up anything that you have always done is very taxing! I have learned to accept what I cannot change,but that doesn't mean I have to like it!!!! HAHA I like a sense of humor especially sarcasm. The day I cannot find som ething to laugh about will be the day I know I am in real trouble. I really believe we can lick pd. I beleive we are helping the next generation to be free of the pd altogether. I look at my children and granchildren and hope that my handeling of pd and all that I learn from my new family will lead to them not having to face this diesease!!!!! bruce

[MargieB]

Hi Margie,
I am sorry about not answering sooner, but I am still finding my way around the forum! Just like you do with Tony, I find it very tough when my father is having a bad day. It is next to impossible to get him to shift moods! He can be so contrary. I find this hard to deal with and have to keep reminding myself that he wasn't always like this. Many times I have to leave the room before I say something I would regret. But we are only human! The other morning I was trying to coaxe him into taking medication for his bowels (he has been told by several doctors to take it every day, but refuses to do so) and he said to me 'just you do what you want'. So I just replied that the last thing I wanted to be doing at 6.30 am was making up medicines for him that if I had my choice I would be lying at the pool side of a luxury hotel in a warm country. The both of us ended up laughing.
I too find myself feeling guilty about taking time for myself, but if we don't look after ourselves - who's going to look after them! The last thing a carer needs is bad health, should that be mentally or physically.
As well as looking after my father, I work full time. I am lucky in that I can more or less make my own hours and can take work home with me. When my father is having a bad time I find that I need to de-stress from work before dealing with him, so as soon as I get home (after having a quick cup of tea) I take the dog for a walk. That 30 minutes on my own is like a tonic! When I come in I can then share my day with my father.
It's only human to feel guilty, but we shouldn't really. No matter how hard the day is God is with us. 'If God brings you to it, He will bring through it'. I always keep this quote in mind.
God bless

Hi Geraldine,

Don't you dare worry about when you answer. I fully understand. Even though I am retired I still can't seem to find enough hours in the day to do everything that needs to be done and afford to have time to do something that I like.

Being on this Forum is something I look forward to. I also like to sketch and paint a little for relaxation. Sometimes I do these in the wee hours of the morning or late at night.

Yes, the mood swings are a tough one to take. Tony, also can be so contrary. Sometimes, when I don't remove myself (like you) from the situation I do explode and then I say something that I did in no way want to say. After it is out, saying I'm sorry doesn't help me or Tony. But, we all agree that we are only human. That's so true.

Constipation is one of the symptoms of PD and some of the medications. Tony has this problem too. All his doctors have told him he has to drink more liquids. He tries, but he has never been one to drink a lot of water or other bevarages. He loves his glass of Pepsi Cola but that is not what the doctors meant by liquids. They suggested primarily water and tea. With Tony it is a double whammy. He has PD and also cannot urinate on his own. He needs to be catheterized 4 to 5 times a day, 24/7. So the more liquid he drinks helps the constipation but also makes more liquid he has to get rid of. He takes all of this well most of the time, with the exception of when he is in a down mood.

It's so good that you ended up laughing with your father. What you said sounds so good to me too, "if I had my choice I would be lying at the pool side of a luxury hotel in a wam country." So, when time permits, we have to make our own luxury hotel by doing something that we like. That'll be our luxury hotel :).

That's sure the truth. If we don't look after ourselves and we get sick, who will look after our loved one. When Tony first was diagnosed, I got depressed. Thank God I have a good doctor that I could talk with. She prescribed some medication for me and that was a tremendous help. Now, that I have accepted the PD and Tony and I have gotten in to a routine, I am ok. It was just the shock of it and fear of what was going to happen.

I don't know how you do it. Working full time and being the caregive for your father. Love is a very strong motivator. That's how we do it. As I mentioned above, I am retired for about four and a half years, so I have much more time than you do. You keep walking your dog (what's his/her name, please tell me about him/her) and anything else you can find time to do to de-stress yourself. We used to have dogs and cats over the years but now I have the cutest little Guinea Pig. He is affectionate, loving and gentle. His name is Dickens. And, true to his name, he is also a dickens sometimes but he gives me much joy.

No, we shouldn't feel guilty, but we do. We are doing our best in a tough situation. Yes, God is always with us and will bring us through it. I truly believe this also.

What I goofed on were the three capital letters. I kept inserting them along with the others :(. But you and I kept trying and "Margie" finally figured it out, along with your help.

Before closing for now I have a favorite quote that I would like to share with you. "Be not afraid, I go before you always. Come follow me and I will give you rest."

Sending hugs and smiles to you dear friend. Please say hello to your father from Tony and me.

Love,

Margie :)

[MargieB]

[QUOTE=heather;1135]I think as carers,we all feel guilty,when we get tired and raise our voices,
i find i do it more if i have so many other jobs that need doing,
i do try to prioritise,job's, but the today list just never seems to get smaller, some days, the things Jim did wrong yesterday didn't bother me,but the next day,it becomes a issue/war zone

Dear Heather,

You are absolutely right. We as carers all feel guilty when we get tired and raise our voices. Me too. When I have several other jobs that need doing, and I'm tired or out of sorts I panic sometimes. I blame that on being tired 'cause when I get some good sleep, it's not so bad.

Issue/war zone here to with Tony and our son. I've even been told by them what's gotten in to you? This same thing didn't bother you the other day? Then I feel angry :mad: and guilty :( at the same time.

You need to get out of the house. Try not to feel guilty about it. I know, that's easier said than done. But we have to take care of ourselves so that we can take care of our loved one. So be kind to yourself, whenever you can. I'm sure Jim understands and wants you to.

Hope you win the big one at bingo next time you go plus enjoying being there.

I've been having difficulty getting on the Forum. Every time I sign in and enter my password and click "Login" I get to a Forum. But when I tried to read and/or write I got sent back to a page that said You are not signed. I wrote the "Contact Us" but have not heard back. Then I thought, Margie, what's the matter with your thinking? Write Liana. I did. I haven't heard back from Lianna yet but I was able to get into the Forum and write to you.

Hope Jim is having a good day and you too dear friend.

Tony had several very difficult days but today is a GOOD ONE!

Say hello to Jim from us.

Hugs and lots of laughter/smiles.

With love,

Margie :)

[suzie Q]

Margie i ticked the box where it says, "'remember my password"' and i dont have to sighn in it just comes up when i click on the forum address.

sue

[MargieB]

I really enjoyed hearing from you! Giving up anything that you have always done is very taxing! I have learned to accept what I cannot change,but that doesn't mean I have to like it!!!! HAHA I like a sense of humor especially sarcasm. The day I cannot find som ething to laugh about will be the day I know I am in real trouble. I really believe we can lick pd. I beleive we are helping the next generation to be free of the pd altogether. I look at my children and granchildren and hope that my handeling of pd and all that I learn from my new family will lead to them not having to face this diesease!!!!! bruce

Hi Bruce,

It was great coming to the Forum and finding a post from you.

Yes, you are right, having to give up anything that you have done is very taxing. Tony won't even say it but I can see it in his face at certain times. We've been married 46 years this May. After all these years we know each other pretty well.

You gave me a few chuckles when you said you have learned to accept the things you cannot change, but that doesn't mean you have to like it - Way to go Bruce! That's what makes PD angry I think. Never give up. I am in full agreement with you that we can lick PD. I believe even in our lifetime, and then you and Tony and all the other PD people will be free of it. Yes, the next generation will benefit from all the progress being made. I might be repeating myself, but Tony's Internist told us that there is supposed to be a new medication coming out next year that will be greatly benficial to many PD patients. I pray that this will become a reality.

You, Tony are doing a tremendous good by being 'fighters' and 'learners' about PD for your family. Keep up the good work. Never give up. Winners never quit and quitters never win. You two are winners in my book.

You write about your children and grandchildren. We have three grown children. Two are married. One is single. Between the two married ones we have eight grandchildren. Two we see often because they live close by. The other six live far away so we only see them a few times during the year when they come to visit. We can't get to visit there home.

Keep that sense of humor going. And laugh out loud at something you really enjoy on television, or read, or whatever way makes you laugh. I just recently read an article. Harvard University made a clinical study on laughter in PD patients. The study showed that laughter produces the same as the PD meds to the same part of the brain. Isn't that something!
So keep on laughing with your family and friends and let's show PD who's boss :).

We can do it! I know we can.

Say hello to your wife from Tony and me.

Be talking with you when time permits.

Margie:D

[heather]

I really enjoyed hearing from you! Giving up anything that you have always done is very taxing! I have learned to accept what I cannot change,but that doesn't mean I have to like it!!!! HAHA I like a sense of humor especially sarcasm. The day I cannot find som ething to laugh about will be the day I know I am in real trouble. I really believe we can lick pd. I beleive we are helping the next generation to be free of the pd altogether. I look at my children and granchildren and hope that my handeling of pd and all that I learn from my new family will lead to them not having to face this diesease!!!!! bruce

hi Bruce
hope you are well
after reading the above I just had to post this

http://i10.photobucket.com/albums/a126/maesisaf/blinkie.gif
http://i10.photobucket.com/albums/a126/maesisaf/revengeImage2121.jpg
http://i10.photobucket.com/albums/a126/maesisaf/revengeImage1313.jpg

sorry but i do have a warped sense of humour, but i do take as good asi give :D:D:D:p

[MargieB]

Hi Geraldine,

Don't you dare worry about when you answer. I fully understand. Even though I am retired I still can't seem to find enough hours in the day to do everything that needs to be done and afford to have time to do something that I like.

Being on this Forum is something I look forward to. I also like to sketch and paint a little for relaxation. Sometimes I do these in the wee hours of the morning or late at night.

Yes, the mood swings are a tough one to take. Tony, also can be so contrary. Sometimes, when I don't remove myself (like you) from the situation I do explode and then I say something that I did in no way want to say. After it is out, saying I'm sorry doesn't help me or Tony. But, we all agree that we are only human. That's so true.

Constipation is one of the symptoms of PD and some of the medications. Tony has this problem too. All his doctors have told him he has to drink more liquids. He tries, but he has never been one to drink a lot of water or other bevarages. He loves his glass of Pepsi Cola but that is not what the doctors meant by liquids. They suggested primarily water and tea. With Tony it is a double whammy. He has PD and also cannot urinate on his own. He needs to be catheterized 4 to 5 times a day, 24/7. So the more liquid he drinks helps the constipation but also makes more liquid he has to get rid of. He takes all of this well most of the time, with the exception of when he is in a down mood.

It's so good that you ended up laughing with your father. What you said sounds so good to me too, "if I had my choice I would be lying at the pool side of a luxury hotel in a wam country." So, when time permits, we have to make our own luxury hotel by doing something that we like. That'll be our luxury hotel :).

That's sure the truth. If we don't look after ourselves and we get sick, who will look after our loved one. When Tony first was diagnosed, I got depressed. Thank God I have a good doctor that I could talk with. She prescribed some medication for me and that was a tremendous help. Now, that I have accepted the PD and Tony and I have gotten in to a routine, I am ok. It was just the shock of it and fear of what was going to happen.

I don't know how you do it. Working full time and being the caregive for your father. Love is a very strong motivator. That's how we do it. As I mentioned above, I am retired for about four and a half years, so I have much more time than you do. You keep walking your dog (what's his/her name, please tell me about him/her) and anything else you can find time to do to de-stress yourself. We used to have dogs and cats over the years but now I have the cutest little Guinea Pig. He is affectionate, loving and gentle. His name is Dickens. And, true to his name, he is also a dickens sometimes but he gives me much joy.

No, we shouldn't feel guilty, but we do. We are doing our best in a tough situation. Yes, God is always with us and will bring us through it. I truly believe this also.

What I goofed on were the three capital letters. I kept inserting them along with the others :(. But you and I kept trying and "Margie" finally figured it out, along with your help.

Before closing for now I have a favorite quote that I would like to share with you. "Be not afraid, I go before you always. Come follow me and I will give you rest."

Sending hugs and smiles to you dear friend. Please say hello to your father from Tony and me.

Love,

Margie :)

When you read this quote, pay no attention to the paragraph that talks about the three capital letters. I was so tired that
I put this in to your QUOTE. It was to be written to someone
else on the Forum :(. You won't know what I was talking
about. This taught me that I should not push to my limits. When I am tired...I should get to sleep. Now all I have to do is follow my own advice :D:D ha! ha!.

[heather]

It's because the site is so addictive,grndlklly
some times i look at the clock it's 1-2am and i have work the next day :eek:

[MargieB]

It's because the site is so addictive,grndlklly
some times i look at the clock it's 1-2am and i have work the next day :eek:

It sure is addictive but comforting. It's almost 4 AM here in Queens, NY and I still can't sleep. Guess I'll stay on the Forum a little longer.

Hope all is well with both of you.

With love,

Margie :)

[MargieB]

Margie i ticked the box where it says, "'remember my password"' and i dont have to sighn in it just comes up when i click on the forum address.

sue

Hi Sue,

Thanks so very much. I just know this is going to do the trick and I'll not be thinking I broke my entry to the Forum. That would be a disaster. I'd sign up all over again. It's great isn't it? I'll let you know how I made out in getting on to the Forum, ok? :confused:

I hope for you a very good weekend.

Talk with you soon again.

Margie :)

[bruce]

Hi Bruce,

It was great coming to the Forum and finding a post from you.

Yes, you are right, having to give up anything that you have done is very taxing. Tony won't even say it but I can see it in his face at certain times. We've been married 46 years this May. After all these years we know each other pretty well.

You gave me a few chuckles when you said you have learned to accept the things you cannot change, but that doesn't mean you have to like it - Way to go Bruce! That's what makes PD angry I think. Never give up. I am in full agreement with you that we can lick PD. I believe even in our lifetime, and then you and Tony and all the other PD people will be free of it. Yes, the next generation will benefit from all the progress being made. I might be repeating myself, but Tony's Internist told us that there is supposed to be a new medication coming out next year that will be greatly benficial to many PD patients. I pray that this will become a reality.

You, Tony are doing a tremendous good by being 'fighters' and 'learners' about PD for your family. Keep up the good work. Never give up. Winners never quit and quitters never win. You two are winners in my book.

You write about your children and grandchildren. We have three grown children. Two are married. One is single. Between the two married ones we have eight grandchildren. Two we see often because they live close by. The other six live far away so we only see them a few times during the year when they come to visit. We can't get to visit there home.

Keep that sense of humor going. And laugh out loud at something you really enjoy on television, or read, or whatever way makes you laugh. I just recently read an article. Harvard University made a clinical study on laughter in PD patients. The study showed that laughter produces the same as the PD meds to the same part of the brain. Isn't that something!
So keep on laughing with your family and friends and let's show PD who's boss :).

We can do it! I know we can.

Say hello to your wife from Tony and me.

Be talking with you when time permits.

Margie:DHi, Margie, I have not really said much about myself,so her goes. I was diagnoised 9 years ago after going through many test wrong diagnoses. I am a school teacher. I taught middle school,6th,7th and 8th. I retired relunctantly 3 years ago, with 30 years of service. I say relunctantly, because I was afraid of retirement. I know that might sound bazarr, but I wasn't mentally ready. However, my physical condition was awful. The doctors had wanted me to retire 1and half years sooner. I kept pushing, but finally had to give in. It took me 4 months to get back on my feety. This past August , I started teaching part time. woked with young and older adults working for their GED. This is for their high school diploma. I have to retire from that too. I have 3 children. One son and 2 daughters. I have 6 grandchildren. I love gardening especially my roses. I really enjoy auctions and collecting antiques. My wife and I had ashop for several years. I also had I can do anything business while teaching. I landscaped,painted homes, refinished wordwork mantels and floors in larger older homes. I also refinished furniture. I took care of older people. I worked 7 days aweek for over 30 years. I needed to because that was me and I wanted to give my family as much as I could. I hoped you can understand me better as aperson and know that I do not accept any type of defeat!But we have to learn to be realistic about things and go from there. I do my best to stay active ,both pysically and mentally.My wife is retiring this June. she has taught 31 years. I can not wait!!!!!!!!!I have really opened up. I hope I have not bored you. bruce[/I]

[grldnklly]

Hi Margie,
Believe it or not, the weather here in Ireland was beautiful this weekend. I spent most of Saturday and Sunday weeding and planting flower beds and managed to complete the front garden. We have only lived here two years and this is the first opportunity I have had to get the garden (well the front garden) into shape. I even managed to get my father to sit out in the garden! Besides going for a walk in the morning my father hardly ever leaves the house. Even though father can't do the physical things he acted as supervisor. You asked about my dog, he is a three year old minature schnauzer called Buddy (father chose this name because he said that he would be his buddy while I am at work). He is a great dog, but small enough to get out of every hole in the hedge. I don't know how many times I had to leave my work and go looking for him as he kept taking notions to visit the neighbourhood! It was a lovely day.
My father and I are going to see the Neurologist this afternoon. I have spent my time this morning going through the forum and taking note of all the symptoms that my fahter has in common with the other pd sufferers and I am going to present this list to the Neurologist. I don't know if it will do any good, but we will see.
I hope you and Tony are well. What did you do over the weekend?
God bless
Geraldine

[heather]

Hi, Margie, I have not really said much about myself,so her goes. I was diagnoised 9 years ago after going through many test wrong diagnoses. I am a school teacher. I taught middle school,6th,7th and 8th. I retired relunctantly 3 years ago, with 30 years of service. I say relunctantly, because I was afraid of retirement. I know that might sound bazarr, but I wasn't mentally ready. However, my physical condition was awful. The doctors had wanted me to retire 1and half years sooner. I kept pushing, but finally had to give in. It took me 4 months to get back on my feety. This past August , I started teaching part time. woked with young and older adults working for their GED. This is for their high school diploma. I have to retire from that too. I have 3 children. One son and 2 daughters. I have 6 grandchildren. I love gardening especially my roses. I really enjoy auctions and collecting antiques. My wife and I had ashop for several years. I also had I can do anything business while teaching. I landscaped,painted homes, refinished wordwork mantels and floors in larger older homes. I also refinished furniture. I took care of older people. I worked 7 days aweek for over 30 years. I needed to because that was me and I wanted to give my family as much as I could. I hoped you can understand me better as aperson and know that I do not accept any type of defeat!But we have to learn to be realistic about things and go from there. I do my best to stay active ,both pysically and mentally.My wife is retiring this June. she has taught 31 years. I can not wait!!!!!!!!!I have really opened up. I hope I have not bored you. bruce[/I]

Hi Bruce
Thank you for sharing
I though you may have been a teacher or similar,from your post's ,so i apologise for spelling etc haa haa ,you and your wife have had a very busy colourful life, so i can understand how it was so hard for you to adjust.It was nice to read you didn't give up work when they said,but when you new it was time.
Jim was off sick for a few months , they offered him a golden hand shake we couldn't refuse[he worked for a chemical factory].he always wondered,if he could have done his job,but was never given the chance to find out, and that's when the depression set in

"I do not accept any type of defeat!But we have to learn to be realistic about things and go from there"

This is me,but i call it common sense :D
30 years is a long time, to work , http://i10.photobucket.com/albums/a126/maesisaf/slider_wow.gif
hope you and your wife,both enjoy your retirement,in just a few weeks,
There is no way you have board us, it was nice to think you could share your life/family with us
Again thank you for sharing

[bruce]

hi Bruce
hope you are well
after reading the above I just had to post this

http://i10.photobucket.com/albums/a126/maesisaf/blinkie.gif
http://i10.photobucket.com/albums/a126/maesisaf/revengeImage2121.jpg
http://i10.photobucket.com/albums/a126/maesisaf/revengeImage1313.jpg

sorry but i do have a warped sense of humour, but i do take as good asi give :D:D:D:pI relly enjoyed your post. I love sarcasm! I enjoy a good laugh anytime. bruce

[heather]

have you been in the jokes corner ,maybe you can add to it
I love Maxine,and have loads of them
http://i10.photobucket.com/albums/a126/maesisaf/revengeImage1717.jpg
http://i10.photobucket.com/albums/a126/maesisaf/revengeImage1010.jpg

this is for you
http://i10.photobucket.com/albums/a126/maesisaf/word0158.gif

[MargieB]

have you been in the jokes corner ,maybe you can add to it
I love Maxine,and have loads of them
http://i10.photobucket.com/albums/a126/maesisaf/revengeImage1717.jpg
http://i10.photobucket.com/albums/a126/maesisaf/revengeImage1010.jpg

this is for you
http://i10.photobucket.com/albums/a126/maesisaf/word0158.gif

Hi Heather,

Yes, I've read all the jokes you posted. I actually have sat here and laughed out loud.

I'm not much of a joke teller. Usually, when I try to tell a joke I forget some part of it...sometimes the ending after tell the entire joke up until the end. But I'm a very good joke appreciator...and love a good laugh.

The saying you sent just for me...Thank you for the goodness of it.

Hope Jim is having a good day and you as well.

Margie :)

[jane]

Hi Heather,

Yes, I was last on Friday and then my computer went beserk. It got fixed by my son Chris and it was pretty good for awhile. Then it went bonkers again, got fixed again, and then Chris installed a little box about 7" x 2" and made a new hook up. Now the computer is running very smoothly and here I am back again :). It's so good to be here.

You are right on! I do feel like I'm in a terminal and all I want to do is SCREAM :eek: I'll let you in on a secret, sometimes when Chris takes his Dad out and I don't go along I WILL just let out one loud, heart rendering scream and then put on some soothing music and watch television and it helps a lot. If the neighbors hear me (I don't think so :rolleyes:) they must wonder what the one scream once in awhile means.
Have you ever given in to something like that?

There is a good sign. Tony has hung one of the canes near where he sits in our living room. I have hung the other one on the headboard on his side of the bed. I do believe he is trying to accept. As Pauline said, it takes awhile to get the head wrapped around what is happening. Tony has always been a very self motivated and independent person. I have just realized that if I think of this whenever I get frustrated that he isn't accepting the aids available to him because he has lost so much and is slowly adapting, it will not only help me but it will benefit Tony as well. In his own time he will use the aids as he needs them.

Yes, I realize we were doing almost everything for Tony. Even to get an apple. Today he asked for an apple and I very calmly said, "would you mind getting it, I'll be glad to cut it up for you?" Well, not only did he get the apple, I got a smile to go with it. Thanks Heather...slow but sure. And also what you said make as if an idea was mine or Chris' and handle it SLOWLY. I'm going to do just that.

Yes, with your help and dear Paulines and the other friends on the Forum, WE WILL GET THROUGH IT. I believe your "promise.

Me yelling or screaming for Tony to use an aid doesn't do anything positive. It puts him in a complete sulk of sadness. Then nothing is accomplished. Who better than me should know and realize this.

The butler's mobile tht you made for Jim sounds wonderful. I imaine it would be something like the special PD walker one of Tony's doctors wrote out a prescription for. It never got filled because Tony wants to wait on this and I understand. Maybe when he uses the cane he'll feel good about it.

Correction well taken about what I said: "I just know from what I reaad and guess. Being married to Tony for almost 46 years allows my guesses to be on target a lot of times."


So dear friend, welcome with me to the Guiness Bok of World Records. Yes you too can read Jim like a book but as you pointed outJim got lazy (part of PD) and he had no reason to work things out for himself because you were doing all the thinking for him, etc. I'm going to start "acting thick". I have the patience to do it and I love Tony so very much that I will do it to help him and it will make me happy also to see him do things and get a satisfaction from accomplishing something on his own.

You did definitely help me with your suggestions. I will be very careful in approaching him with ideas, suggestions, etc. and will go slowly. Your advice is going to help both me and Tony. Chris also.

I chuckled when I read Jim still has days when he gets d*** stubborn, we call it "I'm not going to do what you say day". Can I borrow that and use it here? :confused:

Oh Heather, what a beautiful picture with the little angel on it and what you wrote to Tony and me that you Said A Prayer For Us Today love Heather. I don't know how you got it to come through but am very grateful that it did. Thank you friend. It means a lot.

God Bless
Love, Margie

Hello Margie this is Jane If you are reading this now you are up at this early hour so I hope you see it later No real reson to contact you Just to say hello and i am thinking of you Jane

[MargieB]

Hello Margie this is Jane If you are reading this now you are up at this early hour so I hope you see it later No real reson to contact you Just to say hello and i am thinking of you Jane

Hello Jane,

What a nice surprise. Your greeting of hello and telling me you are thinking of me warms my heart.

Yes, I'm up. I haven't gone to sleep yet. It's 12:38 AM here in Queens, New York. My husband fell asleep on the sofa. He will be waking soon to make the transfer to the bed. Then I will go to sleep too, hopefully.

Your greeting left me with such a good feeling. Thank you so much.

Hope your day is really good tomorrow.

Talk with you again I hope.

Margie :)

[susan wheatley]

hi margie, just thought i would say hello and hope you had a good nights sleep both of you its half the battle if your well rested i have pd but thankfully it,s not to severe yet i just take each day as it comes, speak to you soon god bless susan.

[MargieB]

hi margie, just thought i would say hello and hope you had a good nights sleep both of you its half the battle if your well rested i have pd but thankfully it,s not to severe yet i just take each day as it comes, speak to you soon god bless susan.

Hi Susan,

Hello to you too. What a delightful surprise hearing from you. Yes, both Tony and I did have a good night sleep. You are so right...having a good night's sleep is balf the battle.

Maybe your PD will stay the way it is. It is not written in stone that PD must progress. I hope and pray that this is true in your case.

One day at a time is our motto also. Worrying about tomorrow will cheat you of today. And worry doesn't help one little bit, although we all do it. The trick is to lessen it as much as we can.

Hope your day and evening and night all are very good.

We'll talk again soon.

God bless you too.

Margie :)

[heather]

Hi Both hope you are both well
when Jim started with his illness,I decided to put our house in order, sorted out everything,that i thought were important
shelved it all,and then started living ,we have had a good 12years,and we have been able to concentrate, on looking after each other, and now Jim needs me more,i don't have to sort things out,they are on that top shelf,with 12 years of dust on them, when i need them,it will be like a dust storm :D:D:D
"Maybe your PD will stay the way it is. It is not written in stone that PD must progress."

this is so true Margie, who knows what's round the corner
just keep positive Susan,

[Pauline]

Hi Margie hope you and Tony are having a good day I like Heathers idea of putting everything on the top shelf and just living I keep telling my self One day at a time Tomorrow will take care of it self some night when I can't sleep I come on and you are here you must have trouble sleeping to :):):)Pauline

[MargieB]

Hi Margie hope you and Tony are having a good day I like Heathers idea of putting everything on the top shelf and just living I keep telling my self One day at a time Tomorrow will take care of it self some night when I can't sleep I come on and you are here you must have trouble sleeping to :):):)Pauline

Hi Pauline,

Right now Tony is sound asleep for the night...while here I am still awake (well just barely). Heather is right on. Putting everything on the "top shelf and just living" is good advice.
Most times I can do that. We have just been through a rough patch but today was much better.

Yes, I do have trouble sleeping some nights. My doctor prescribed some sleeping pills but I don't use them very often. I'd rather sit at my computer until I get drowsy and then go to bed. Usually that does the trick for me and I fall asleep right away then.

Hope that you are sleeping by now and that you will enjoy a really good day tomorrow.

Love,

Margie ;)

[MargieB]

Hi Both hope you are both well
when Jim started with his illness,I decided to put our house in order, sorted out everything,that i thought were important
shelved it all,and then started living ,we have had a good 12years,and we have been able to concentrate, on looking after each other, and now Jim needs me more,i don't have to sort things out,they are on that top shelf,with 12 years of dust on them, when i need them,it will be like a dust storm :D:D:D
"Maybe your PD will stay the way it is. It is not written in stone that PD must progress."

this is so true Margie, who knows what's round the corner
just keep positive Susan,

Hi Heather,

Dust storm :confused:? There won't be a dust storm...all the energy you use doing good will have cleared the dust already.

Yes, Heater and Susan, I believe in the positive attitude 100%. I've seen the results of positiveness many times in my life and I ain't giving it away ever :D!

Good night dear friends.

Talk with you soon.

Love,
Margie :)

[susan wheatley]

hi margie and heather, you are so right posative thinking is the only way to be, i believe what ever will be will be, and i read that a posative attitude helps with any illness, the secret is to not let things get on top of you (easier said than done sometimes) keeping busy helps take your mind of things, hope you are all well today, i am just going to make something for the family to eat they all complaining of hunger but none of them will offer to make anything so i,ll have to go speak to you both soon god bless, susan.

[Pauline]

Yes I had a good sleep the last 2 or 3 nights have been good hope you and tony have a really good day and every one on this forum have such a positive attitude it is contagious bye for now Pauline:):):)

[MargieB]

Yes I had a good sleep the last 2 or 3 nights have been good hope you and tony have a really good day and every one on this forum have such a positive attitude it is contagious bye for now Pauline:):):)

Hi Pauline,

Glad you had a good sleep the last 2 or 3 nights. Tony has been sleeping well. Me, I have got to get some more Zzzz's.

Yes, everyone on the Forum does have such a positive attitude it is contagious.

The picture is excellent. Sent you an e-mail and card.

Love,
Margie :)

[heather]

don't no how you 2 find time to sleep

http://i10.photobucket.com/albums/a126/maesisaf/FRUIT121.gif

;):D

[Pauline]

Heather I love the little captions they give a smile every timewhere do you find them and how do you post them I think I wll get my self a book computers for dummies that me lolo Pauline:):):)

[heather]

Hi Pauline

i ask Jeeves or goggle for my pictures,just right click on what i like and click on "save image as" it will bring up your album /or maybe your desk top if so look for your album ,click on open and save

You will need to down load "photobucket" [bellow is the link]
i have also put a link to loads of pictures/subjects to start you off

her are the instructions

Equipment needed

1. make a new folder on your desktop [ right click on mouse, on desk top Click on folder go down to New,and click on first one ] and name it.
[mine named "my pictures" ]

2. need to down load a Image hosting, the one below i use it's FREE and easy

2a Image hosting, free photo sharing & video sharing at Photobucket

www.photobucket.com/


now to start :)

1.b. http://www.uselessgraphics.com/ [Lot's pictures to start you off ]
find a picture ,right click on mouse,click on"save as " [if this doesn't come up in the list then it has copy rights and you can't copy it]

it will ask you where you want to save it
it may say the name of your folder,or you may have to click on drop down, click on "desk top" look for your folder, click on it, and then on save .

open Photobucket or what ever imaging host you use,i have done this using photobucket

1.Click on brows,it will open in your folder, find picture [one short click will turn all around blue] click open.

you will automatically go back to brows click on UPLOAD

it will take a little time to load ,a bar will come up say how much loaded once 100% ,after a few seconds you will see your picture [Almost finished :D]

2. at the bottom you will see [image code]right click on this and it will say copied

3.go to your post on hear
Right click
click on paste


and that's it

[MargieB]

don't no how you 2 find time to sleep

http://i10.photobucket.com/albums/a126/maesisaf/FRUIT121.gif

;):D

Hi Heather,

I don't know either how we find time to sleep. But my doc has told me I had better :eek::(.

Hope Jim is enjoying a good day along with you.

Tony's going through a rough patch. His legs are getting stiffer and stiffer. We tried one exercise out last night for a few minutes. I don't want to get him discouraged but he said there are so many things that have to be done for me each day, how can I possibly fit in a few exercises? Being that he did one...that is a start. Now, I'll figure out the best time for a few others. They are very simple exercises. The Neurologist gave me a phamplet with the exercises.

Most times I stay up not because I can't sleep...I push myself to stay awake so that I can relax and unwind from the day.

Love you,
Margie :)

Love you,

Margie

[heather]

Hi Heather,

I don't know either how we find time to sleep. But my doc has told me I had better :eek::(.

Hope Jim is enjoying a good day along with you.

Tony's going through a rough patch. His legs are getting stiffer and stiffer. We tried one exercise out last night for a few minutes. I don't want to get him discouraged but he said there are so many things that have to be done for me each day, how can I possibly fit in a few exercises? Being that he did one...that is a start. Now, I'll figure out the best time for a few others. They are very simple exercises. The Neurologist gave me a phamplet with the exercises.

Most times I stay up not because I can't sleep...I push myself to stay awake so that I can relax and unwind from the day.

Love you,
Margie :)

Love you,

Margie

Hi Margie
i find it difficult to go to bed ,as i like you need to wind down first, or my mind starts to work over time,once i get into bed

I found the best time, to do anything with Jim was mid morning,after getting him showered dressed feed etc etc , he would go in his chair and have a nap , then do exercise etc, I found after showering him etc, he got tired, and it was pointless trying to get him to do anything, and same after lunch , unless he had a small nap, by evening he was even more tired

[MargieB]

Hi Margie
i find it difficult to go to bed ,as i like you need to wind down first, or my mind starts to work over time,once i get into bed

I found the best time, to do anything with Jim was mid morning,after getting him showered dressed feed etc etc , he would go in his chair and have a nap , then do exercise etc, I found after showering him etc, he got tired, and it was pointless trying to get him to do anything, and same after lunch , unless he had a small nap, by evening he was even more tired

Hi Heather,
That's exactly what happens to Tony. We get one thing accomplished and then he gets sleep on some days and has to nap. Other days he will be awake the entire day.

He hasn't done any exercises today and it is 11:26 PM. So it's too late today. Well, tomorrow is another day and maybe we'll have success with one or two exercises. Hope so.

Margie:)

[grldnklly]

Hi Margie,
I am sorry to hear that Tony is not too good. I will keep him and you in my prayers. I think I should be praying for another 24 hours in the day for you! Your doctor is right - you should be taking it easier.
I have a bit of good news - my father has agreed to go into hospital, and do you know, since he has made that decision he is a lot better! I can't stop praising God!
I am getting ready to go to work now, so have to go.
God bless
Geraldine

[heather]

Hi Heather,
That's exactly what happens to Tony. We get one thing accomplished and then he gets sleep on some days and has to nap. Other days he will be awake the entire day.

He hasn't done any exercises today and it is 11:26 PM. So it's too late today. Well, tomorrow is another day and maybe we'll have success with one or two exercises. Hope so.

Margie:)

hi Margie
hope you and Tony are on a good day
I have been in contact with Jim's GP
because they say he has to have bed rest, because of his bum
he is starting to seize up, his arms are getting difficult to straighten,to put his top on , and his legs/knees difficult to bend :mad::mad:, and the same to put him in his wheelchair, so i asked for a muscle relaxant, he said he would give him Diazipan, only problem is it may make him sleepy, and to think about it
I feel it's a catch 22, and i'm number 11 , Is he sleeping a lot,because he is laying in bed board , he is getting more depressed being in bed, and the sun shining,and his new second hand converted van on the drive makes him worse, he has started to cry a lot
I was thinking of starting him on them for about 1 week , and then re assessing how he is, i Feel we need quality in our life, if he is happy and his bum not to pain full, for us to go out, then that's what we are doing ,if he is going to give up,laying in bed, what difference does his bum make,as long as he is happy
what do you think. honest opinion please,or i wouldn't be asking

[MargieB]

Heather I love the little captions they give a smile every timewhere do you find them and how do you post them I think I wll get my self a book computers for dummies that me lolo Pauline:):):)

Hi Pauline,

Just got notified from the postmaster on my AOL that your card was undeliverable. I will try again in a little while.

Hope you are having a good day and have had a good night sleep.

With love,
Margie:)