Still in shock

[Nancy D]

I was diagnosed with PD one year ago August. I am 58 and I think I actually had it 2 years before that. I am very independent and active and now I am very afraid that will all be taken away from me. I cannot stand taking medication with all of it's side effects. I am trying to find out if anyone believes of any natural remedies to slow down the effects of PD. I am trying to eat healthy and exercise. I know stress really has an effect on my symptoms. Does anyone have any suggestions on natural.....holistic......remedies? I would love to hear from you.
Also, Lianna thank you from the bottom of my heart.

[bobct]

Nancy,
We all understand since we've been there. Being diagnosed myself 2 years ago was very traumatic even though I suspected I had the disease for 5 years prior to that. It also seems to be prevalent in my father's side of the family. We went through very difficult years when my father had it so my diagnosis was doubly disturbing. However, that experience made me decide I would deal with the PD differently than my father could due to the limited solutions available to him at the time.

I, too, have difficulty with many medications and their side effects. Since I am in the early stages of PD and not on meds, I have opted to try non-conventional treatments. After some research on the internet, I have decided to try some experiments with fava beans which are high in natural L-dopa. Like all treatments, there are drawbacks and serious cautions such as the rare but dangerous reaction to the beans called favism. There are several other natural sources L-dopa as well.

Education is your greatest weapon and empowers you. Read all you can about PD and understand the subtle varieties of the symptoms you are manifesting. Since PD manifests in many different symptoms and each treatment effects certain symptoms more so than others, it's important you understand what your body is telling you. For example, my PD has less of tremors and more stiffness and loss of fine motor control. Others are exactly the opposite.

You're already on the right track with healthy eating and especially exercise. For me exercises, some from the net and others I make up myself are crucial for maintaining flexibility. I can't emphasize exercise more. It's probably as important as any medicine you'll opt for. You can even contact physical therapists, many now becoming familiar with therapy treatments that work for PD patients. Insurance might even cover it, although mine doesn't, hence my designing my own exercise plan.

I'll be sharing my fava bean results with the group in the coming weeks. I've decided to have my PD be my stimulus to empowerment. "Even if I knew for certain the world would end tomorrow, I would plant a tree today.'- Martin Luther

Bobct

[Pauline]

I was diagnosed with PD one year ago August. I am 58 and I think I actually had it 2 years before that. I am very independent and active and now I am very afraid that will all be taken away from me. I cannot stand taking medication with all of it's side effects. I am trying to find out if anyone believes of any natural remedies to slow down the effects of PD. I am trying to eat healthy and exercise. I know stress really has an effect on my symptoms. Does anyone have any suggestions on natural.....holistic......remedies? I would love to hear from you.
Also, Lianna thank you from the bottom of my heart.

Hi Nancy my name is Pauline and I was diagnosed with PD in Jan, I am still in shock and I guess like you Iam having troube dealing with it and Iam afraid to lose my independance my hobby is stained glass and I hate the thought of having to give it up . I am 58 and I thought I was to young to have it but I have learned that I am not to youg there is even younger
well hope to hear from you bye Pauline

[Gail]

Nancy,
We all understand since we've been there. Being diagnosed myself 2 years ago was very traumatic even though I suspected I had the disease for 5 years prior to that. It also seems to be prevalent in my father's side of the family. We went through very difficult years when my father had it so my diagnosis was doubly disturbing. However, that experience made me decide I would deal with the PD differently than my father could due to the limited solutions available to him at the time.

I, too, have difficulty with many medications and their side effects. Since I am in the early stages of PD and not on meds, I have opted to try non-conventional treatments. After some research on the internet, I have decided to try some experiments with fava beans which are high in natural L-dopa. Like all treatments, there are drawbacks and serious cautions such as the rare but dangerous reaction to the beans called favism. There are several other natural sources L-dopa as well.

Education is your greatest weapon and empowers you. Read all you can about PD and understand the subtle varieties of the symptoms you are manifesting. Since PD manifests in many different symptoms and each treatment effects certain symptoms more so than others, it's important you understand what your body is telling you. For example, my PD has less of tremors and more stiffness and loss of fine motor control. Others are exactly the opposite.

You're already on the right track with healthy eating and especially exercise. For me exercises, some from the net and others I make up myself are crucial for maintaining flexibility. I can't emphasize exercise more. It's probably as important as any medicine you'll opt for. You can even contact physical therapists, many now becoming familiar with therapy treatments that work for PD patients. Insurance might even cover it, although mine doesn't, hence my designing my own exercise plan.

I'll be sharing my fava bean results with the group in the coming weeks. I've decided to have my PD be my stimulus to empowerment. "Even if I knew for certain the world would end tomorrow, I would plant a tree today.'- Martin Luther

Bobct I will be very interested in hearing about your fava beans. I think I was put on medication too soon. I was diagnosed and sent home with requip. My symptoms seem to worsen after I started the medication. I have stiffness and am losing fine motor skills, but don't suffer from tremors either. I am hesitant to experiment while I am still working, but once I retire, I would like to try something natural.

[harding51]

I don't know if it is legal where you live but have you tried medical marijuana I have heard that helps

[unborn]

I have been on WSN B12 for over a year now, 1000mg 3 times a day. I know it keeps my tremers down and keeps me more calm.

Stress makes PD worse.

Ruth

[heather]

Hi Ruth
sorry but can you tell me what W S N B12 is

we give patient's B12. 3 monthly for pernicious anemia

I found

Wellness
Support
Network

[norma g martinez]

hi
im new also and still in shock but it really gets alittle
easier just take a day at a time. and dont let it get you
down,easier said than done i know.
norma

[tinkerbell]

hi,

i was diagnosed in august 2006 i am 45 and am starting to come to terms with it even though it is hard. i have tried several different medications and am still learning really. so nancy d you are not alone we are all in the same boat.
i was afraid of losing my independance and still am, but you just learn to adjust. it is not easy but i think you have to learn to accept help when it is offered, the only thing i can think of naturally is vit b.
all the best tinkerbell

[heather]

hi
im new also and still in shock but it really gets alittle
easier just take a day at a time. and dont let it get you
down,easier said than done i know.
norma

hi Norma
hope you are on a good day
like you said it does get easier
I think one of the best things posted on hear, but i can't remember who said it
PD is a uninvited guest,

and as a uninvited guest ,i say" you don't make your self comfortable in our lives"
If something is not right, i don't wonder if it's Jim illness, i just ignore it and treat him as if he was not ill, this is my opinion , i just feel if i put everything down to his illness, then it's winning ,and all we will be doing is living and breathing his illness, I also stand back and think he is 65years [ my sugar daddy 6yearsolder than me] would this be happening anyway
I think we can be quick to put things down to illness, when it could be age
I do no that some things will be his illness , but some not
hope that makes sense

[bruce]

I was diagnosed with PD one year ago August. I am 58 and I think I actually had it 2 years before that. I am very independent and active and now I am very afraid that will all be taken away from me. I cannot stand taking medication with all of it's side effects. I am trying to find out if anyone believes of any natural remedies to slow down the effects of PD. I am trying to eat healthy and exercise. I know stress really has an effect on my symptoms. Does anyone have any suggestions on natural.....holistic......remedies? I would love to hear from you.
Also, Lianna thank you from the bottom of my heart.Nancy, Life and the realization that you have pd but it does not have you will become more and more relevant each day. Keep in mind that a fisty attitude are a great weapon. I have had to give up alot, but I have adjusted and find that I can still do some things and I am greatful. You will develop a frame of mind to deal with events as they happen. Your mind will defend you from dealing with more than you thing you can bare. Have faith in your inner strength and use it!!!! Keep the faith bruce

[bruce]

I was diagnosed with PD one year ago August. I am 58 and I think I actually had it 2 years before that. I am very independent and active and now I am very afraid that will all be taken away from me. I cannot stand taking medication with all of it's side effects. I am trying to find out if anyone believes of any natural remedies to slow down the effects of PD. I am trying to eat healthy and exercise. I know stress really has an effect on my symptoms. Does anyone have any suggestions on natural.....holistic......remedies? I would love to hear from you.
Also, Lianna thank you from the bottom of my heart.Nancy, Life and the realization that you have pd but it does not have you will become more and more relevant each day. Keep in mind that a fiesty attitude is a great weapon. I have had to give up alot, but I have adjusted and find that I can still do some things and I am greatful. You will develop a frame of mind to deal with events as they happen. Your mind will defend you from dealing with more than you think you can bare. Have faith in your inner strength and use it!!!! Keep the faith bruce

[JD2008]

I was also dx'd 1 yr ago, however had symptons a couple of years earlier. I'm not on any medication - resisting. Am very active (63) and try to eat well.Tremors are OK but walking not so good = walking sticks make a big difference. writing and typing is getting harder and slower! I have used different vitamins and gone to a alternate dr - but who knows what's helping......Still I can't complain = I can do everything I did before, just a bit differently. Keep in touch - I will respond. Jennifer

[susan wheatley]

hi nancy, i was diagnosed 5yrs ago i was 43 i resisted meds until last year then i felt it was time to start them, i think when your first told you have pd you go into denial and i think resisting the meds is part of that process if you dont take anything then you dont really have pd well thats the theory but just take each day as it comes and try to have a posative attitude it really does help one things for sure until they find a cure we,re stuck with it sorry to be so blunt dont mean to be, god bless susan.

[JD2008]

hi nancy, i was diagnosed 5yrs ago i was 43 i resisted meds until last year then i felt it was time to start them, i think when your first told you have pd you go into denial and i think resisting the meds is part of that process if you dont take anything then you dont really have pd well thats the theory but just take each day as it comes and try to have a posative attitude it really does help one things for sure until they find a cure we,re stuck with it sorry to be so blunt dont mean to be, god bless susan.

Hi Susan,

What medications did you start with and did you have any problems and more importantly, did they work???? I'm not on anything yet, but the reports from patients are scarey! Jennifer

[susan wheatley]

hi jennifer,
i startedon requip but it didnt agree with me and i could,nt swallow them, now i am on madapar, neupro patches and selegiline, they work some of the time and when they do i can see a difference, i was scared of taking any meds because of the side effects but not everyone has them they dont last its just till your body gets used to them, i didnt have any side effects with this combination i am lucky but only you will know when the time is right for you to start meds speak to you soon susan.

[JD2008]

Hi Susan,

Thanks for your reply. You probably have a point regarding not taking medication being part of the denial.........however when you only take an aspirin once every ten years or so, it's hard to start on meds. Sounds as if there's quite a few of us resisting, but I guess it will catch up with us eventually...Jennifer

[MargieB]

Hi Susan,

What medications did you start with and did you have any problems and more importantly, did they work???? I'm not on anything yet, but the reports from patients are scarey! Jennifer

Hi Jennifer,

My husband Tony was diagnosed 4 years ago. After his diagnosis we realized that he had shown signs of PD a few years before but he was never diagnosed.

Try not to be afraid of the medications. Every person is different in what will be good for them or not. Tony is on Senimet and Requip. In the beginning he had some stomach upset but that has all gone. The medications are working very well for him. He has some bad days but many, many good days. As yourself, his walking has slowed down, his typing and writing are not what they used to be...but there are things that he can do and enjoys. Believe me, there is definitely life after the onset of PD and the medications necessary.

Tony has proven this to me. He is a good man and a good trouper. We have been married 46 years this May 26...and are still in tune with each other. PD changes your way of life but we have made a different new life that suits us. PD will not win. It can't win because you and all of us here on the Forum WON'T LET IT. A positive attitude, as you seem to have, keeping active as much as you are able, laughing a lot (Havard University has done a study on the positive effects of laughter on PD patients...GO FOR IT!)

Always remember Jennifer, you and your husband are not alone in this. And who knows...a cure might be just around the corner. I firmly believe it and I'm no fool. Just a few weeks ago they made a breakthrough discovery in something that will greatly benefit the people afflicted with autism. A way to get through the barrier that disconnects the autistic individual with the rest of mankind. Isn't that wonderful! And there is so much being done to find a cure for PD.

I don't know if you have ever heard of Michael J. Fox. He is/was a television actor and also made some movies here in the USA. He has PD and he has done much individual work in getting enormous funds raised to find a cure for PD. He has given a lot of his own personal monies too. He has started: The Michael J. Fox Foundation for Parkinson's Research and have gotten over $120,000,000 for research for a cure for PD. You can try to go on: www.michaeljfox.org/ or type in: The Michael J. Fox Foundation for Parkinson's Research if you want to. You might be interested in looking at it.

So, what do you say Jennifer...be with us in fighting with all your might to not give in to PD. We are all in this together and in unity there is strength. A strength that will always be here for you. And if your doctors want to give you some medications, try and accept the meds. It might take a few different trials to find the best one(s) for you...but they will be found...and they will work for you.

We'll talk again.

Margie :)

[suzie Q]

Hi Jennifer

I have had parkinsons disease for 5 years .I started off with sinemit and after a few weeks cabasar was introduced .I went ok on this for about 12 months and then changed doctors. He put me on madapor and tasmar because the cabasar caused obsessive compulsive behaviours mainly gambling .(hard to think that a medication can do this to you but it did ).as soon as i changed medication it stopped ..anyway I was on this combination of medication for 12 months but had so much dyskenisia , that is a side effect of the medication that i was taking .... i read about a herbal medication mucuna pruriens ...i have been taking this for 4 months now, am off all my medication and feeling wonderful. i feel that i have my life back ...I did this with out my doctors approval .i phoned to tell him i said i know some one who has taken this , and his secretary started to give me a lecture said if there was anything better than what we have given you we would have it here ...so i didnt have the courage to say i had already been taking it and had great sucess ...anyway it has been great for me ...maybe it would not work for everyone but it is working for me i feel great after going off my reg medication ...i dont suppose it will last fore ever i guess that there will be a time when i have to go on the regular P.D.medication but while it is working for me i am going to give it my best shot .If you want to know more let me know and i will email you hope this helps talk to you soon

Sue

[Gail]

Hi Jennifer

I have had parkinsons disease for 5 years .I started off with sinemit and after a few weeks cabasar was introduced .I went ok on this for about 12 months and then changed doctors. He put me on madapor and tasmar because the cabasar caused obsessive compulsive behaviours mainly gambling .(hard to think that a medication can do this to you but it did ).as soon as i changed medication it stopped ..anyway I was on this combination of medication for 12 months but had so much dyskenisia , that is a side effect of the medication that i was taking .... i read about a herbal medication mucuna pruriens ...i have been taking this for 4 months now, am off all my medication and feeling wonderful. i feel that i have my life back ...I did this with out my doctors approval .i phoned to tell him i said i know some one who has taken this , and his secretary started to give me a lecture said if there was anything better than what we have given you we would have it here ...so i didnt have the courage to say i had already been taking it and had great sucess ...anyway it has been great for me ...maybe it would not work for everyone but it is working for me i feel great after going off my reg medication ...i dont suppose it will last fore ever i guess that there will be a time when i have to go on the regular P.D.medication but while it is working for me i am going to give it my best shot .If you want to know more let me know and i will email you hope this helps talk to you soon

Sue I admire you for taking your control of your medication and would be very intested in hearing more about the mucuna puriens. I have been on meds for three years and would love to try something else. Gail

[heather]

Hi Jennifer,

My husband Tony was diagnosed 4 years ago. After his diagnosis we realized that he had shown signs of PD a few years before but he was never diagnosed.

Try not to be afraid of the medications. Every person is different in what will be good for them or not. Tony is on Senimet and Requip. In the beginning he had some stomach upset but that has all gone. The medications are working very well for him. He has some bad days but many, many good days. As yourself, his walking has slowed down, his typing and writing are not what they used to be...but there are things that he can do and enjoys. Believe me, there is definitely life after the onset of PD and the medications necessary.

Tony has proven this to me. He is a good man and a good trouper. We have been married 46 years this May 26...and are still in tune with each other. PD changes your way of life but we have made a different new life that suits us. PD will not win. It can't win because you and all of us here on the Forum WON'T LET IT. A positive attitude, as you seem to have, keeping active as much as you are able, laughing a lot (Havard University has done a study on the positive effects of laughter on PD patients...GO FOR IT!)

Always remember Jennifer, you and your husband are not alone in this. And who knows...a cure might be just around the corner. I firmly believe it and I'm no fool. Just a few weeks ago they made a breakthrough discovery in something that will greatly benefit the people afflicted with autism. A way to get through the barrier that disconnects the autistic individual with the rest of mankind. Isn't that wonderful! And there is so much being done to find a cure for PD.

I don't know if you have ever heard of Michael J. Fox. He is/was a television actor and also made some movies here in the USA. He has PD and he has done much individual work in getting enormous funds raised to find a cure for PD. He has given a lot of his own personal monies too. He has started: The Michael J. Fox Foundation for Parkinson's Research and have gotten over $120,000,000 for research for a cure for PD. You can try to go on: www.michaeljfox.org/ or type in: The Michael J. Fox Foundation for Parkinson's Research if you want to. You might be interested in looking at it.

So, what do you say Jennifer...be with us in fighting with all your might to not give in to PD. We are all in this together and in unity there is strength. A strength that will always be here for you. And if your doctors want to give you some medications, try and accept the meds. It might take a few different trials to find the best one(s) for you...but they will be found...and they will work for you.

We'll talk again.

Margie :)

Hi Margie
thank you for the link, I have always had so much admiration for M.J.Fox. as he has never used his illness to make money,or to better his career, he has done so much to help raise, money for PD
Thank you

[heather]

Hi Jennifer

I have had parkinsons disease for 5 years .I started off with sinemit and after a few weeks cabasar was introduced .I went ok on this for about 12 months and then changed doctors. He put me on madapor and tasmar because the cabasar caused obsessive compulsive behaviours mainly gambling .(hard to think that a medication can do this to you but it did ).as soon as i changed medication it stopped ..anyway I was on this combination of medication for 12 months but had so much dyskenisia , that is a side effect of the medication that i was taking .... i read about a herbal medication mucuna pruriens ...i have been taking this for 4 months now, am off all my medication and feeling wonderful. i feel that i have my life back ...I did this with out my doctors approval .i phoned to tell him i said i know some one who has taken this , and his secretary started to give me a lecture said if there was anything better than what we have given you we would have it here ...so i didnt have the courage to say i had already been taking it and had great sucess ...anyway it has been great for me ...maybe it would not work for everyone but it is working for me i feel great after going off my reg medication ...i dont suppose it will last fore ever i guess that there will be a time when i have to go on the regular P.D.medication but while it is working for me i am going to give it my best shot .If you want to know more let me know and i will email you hope this helps talk to you soon

Sue

Hi Sue, hope you are well
Good on you, standing up for your rights, and if it's not broken then don't mend it i say

Every time i have asked about medication for Jim they say nothing will work, but never given the chance to try anything
So can you please tell me what mucuna pruriens, does ,and if
it's available in the UK

[susan wheatley]

hi sue,
where did you get this remedy from i would like to learn more about it i am on madapar and have slight dyskinisias, i saw my pd nurse today and she told me i could increase it but am sacred of the dyskinisias getting more pronouced my e-mail address is on my profile if you could send me some info that would be great and well done for standing up to the doctor, god bless susan.

[suzie Q]

Hi Heather and susan



Am off to work now will send the info tonight .It would be worth it to give it a try .
I knew the first dose that it was working for me .talk soon Sue

[heather]

Hi Sue
hope work went down OK
what does it do never heard of it, i was going to goggle it but my computer on go slow tonight,taking ages to load anything

[MargieB]

Hi Susan,

Thanks for your reply. You probably have a point regarding not taking medication being part of the denial.........however when you only take an aspirin once every ten years or so, it's hard to start on meds. Sounds as if there's quite a few of us resisting, but I guess it will catch up with us eventually...Jennifer

Hi Jennifer,

Tony, my husband (Parkie) hardly ever took medication in his life up until his PD diagnosis. An aspirin now and then...but nothing steady. So I understand what you are saying.

Hope you are feeling good and continue to do so. Only the best.

Margie :)

[suzie Q]

Hi Susan Gail Heather any one else interested

I read about Mucuna on the internet it is a plant and has been used in India for P.D.they use the pod of the plant.It also has a few other names Velvet bean ,Cowage a long list that i cant remember ,if you google Mucuna Pruriens it will come up.I talked to our local natropath chemist about it and he said that it does work.I have always been told that i am very sensetive to the levedopa that i have been on so may be that this is why it works for me.I bought the ground up powder from the nat chemist it was a really dark brown and i mixed it with a little milk and drank it .It was revolting very unrefined had little pieces of sticks in it was like drinking dirt BUT IT WORKED I could tell thye first dose that it would work .I got 6 hours out of each dose with no side effects ...;This is the good part there are no side effects at all .Allo of a sudden I was still .The other gave me so much dyskenisia that I was getting embarresed to go out.I took about 10 grams 3 times a day.There have been a few trials over the years and from what i could understand about it you could only take up to 30 grams divided over the day .I was so pleased all my Friends and family could not believe how much better i looked .and it was so nice to sit down each night and watch t.v with out the dyskenisia.But the stuff was revolting iwould feel sick aqbout an hour before the dose thinking of it,also each batch that i bought was different it took about a week to get the right dose.(you coudn't guarantee that the percentage of dopamine was the same in each dose )Anyway i went to another natropath because i needed to have someone to monitor me because my Neuroligist was not interested in natural things.
this new natropath said he had a more fefined powder the same as i was taking ground much finer it was 50 % pure l dopa i tried this and it was even better than the other .i have been on this for about 3 weeks and am still even better and taking no P.D meds other than the mucuna


When the reg P.D.medication ran out i went down hill for a couple of hours until it kicked in and i came on again.But with the mucuna i seem to be not as bad when i am off ...i hope that you can understand all this it is hard to write .the mucuna sems to kick in quicker than the reg meds ....The natropath charged me $167.00 for one bottle .but i found on the internet a place in America that sells it for $39.95 i bet he got it for $39 .95 all they want to do is take your money cause they know we are so desperate to get anything to make us feelo normal >He is going to get a surprise when i next visit him and tell him i got my own supply


Look up and read everything you can about it I read on another forum in america people were on it some still took there P.D meds as well only not as much .I have been lucky that i have not had to take any of my reg meds .The forum i read it on was neuro talk communities look in the P.D.at their archived posts


With the new powder that i take it is more concentrated i only take about 2 gramms 3 times a day .



if you want to email me that is ok hope this helps you .We are too young to have this rotten thing happening to us i have lots to do to let this get the better of me .Talk soon


Sue

Susan i tried to email you but it would not send so here it is on the forum

[Gail]

Hi Susan Gail Heather any one else interested

I read about Mucuna on the internet it is a plant and has been used in India for P.D.they use the pod of the plant.It also has a few other names Velvet bean ,Cowage a long list that i cant remember ,if you google Mucuna Pruriens it will come up.I talked to our local natropath chemist about it and he said that it does work.I have always been told that i am very sensetive to the levedopa that i have been on so may be that this is why it works for me.I bought the ground up powder from the nat chemist it was a really dark brown and i mixed it with a little milk and drank it .It was revolting very unrefined had little pieces of sticks in it was like drinking dirt BUT IT WORKED I could tell thye first dose that it would work .I got 6 hours out of each dose with no side effects ...;This is the good part there are no side effects at all .Allo of a sudden I was still .The other gave me so much dyskenisia that I was getting embarresed to go out.I took about 10 grams 3 times a day.There have been a few trials over the years and from what i could understand about it you could only take up to 30 grams divided over the day .I was so pleased all my Friends and family could not believe how much better i looked .and it was so nice to sit down each night and watch t.v with out the dyskenisia.But the stuff was revolting iwould feel sick aqbout an hour before the dose thinking of it,also each batch that i bought was different it took about a week to get the right dose.(you coudn't guarantee that the percentage of dopamine was the same in each dose )Anyway i went to another natropath because i needed to have someone to monitor me because my Neuroligist was not interested in natural things.
this new natropath said he had a more fefined powder the same as i was taking ground much finer it was 50 % pure l dopa i tried this and it was even better than the other .i have been on this for about 3 weeks and am still even better and taking no P.D meds other than the mucuna


When the reg P.D.medication ran out i went down hill for a couple of hours until it kicked in and i came on again.But with the mucuna i seem to be not as bad when i am off ...i hope that you can understand all this it is hard to write .the mucuna sems to kick in quicker than the reg meds ....The natropath charged me $167.00 for one bottle .but i found on the internet a place in America that sells it for $39.95 i bet he got it for $39 .95 all they want to do is take your money cause they know we are so desperate to get anything to make us feelo normal >He is going to get a surprise when i next visit him and tell him i got my own supply


Look up and read everything you can about it I read on another forum in america people were on it some still took there P.D meds as well only not as much .I have been lucky that i have not had to take any of my reg meds .The forum i read it on was neuro talk communities look in the P.D.at their archived posts


With the new powder that i take it is more concentrated i only take about 2 gramms 3 times a day .



if you want to email me that is ok hope this helps you .We are too young to have this rotten thing happening to us i have lots to do to let this get the better of me .Talk soon


Sue

Susan i tried to email you but it would not send so here it is on the forum Sue, This is great informayion....thanks. I googled it and everything I found was in caplet form. I didn't find any powder. Were you advised against taking the caplets?

[suzie Q]

Hi Gail I think we on line together I was told the powder was better .But i could not get the caps i have some ordered and will try them the powder is a bit inconveniet.Although the finer one i only take 2 grams and i mix it in a luttle scoop like a teaspoon measure ,i find that much better than thye other one i was taking .i suppose i took a risk going off my medication but the parkinson clinic that i go to for 2 weeks at a time get you to do that to try new meds so i could not see the harm and it paid off ..It would be soreat if it worked for you I am soooo happy about it

Sue

[suzie Q]

oh Gail the place i found in america is Global supplements.com


Let me know if you have any trouble finding it


It is made by E.S.E.Labs It is in a white plastic bottle called L-Dopa extract Mucuna Pruriens 60 gram .It is good for other things besides p.D.It is also in a black bottle with a black and red label let me know how u go


sue

[Gail]

oh Gail the place i found in america is Global supplements.com


Let me know if you have any trouble finding it


It is made by E.S.E.Labs It is in a white plastic bottle called L-Dopa extract Mucuna Pruriens 60 gram .It is good for other things besides p.D.It is aqlso in aq black bottle with a black and red label let me know how u go


sueThanks..we were on at the same time and my battery went dead on my computer just as I was goinng to respond to you. I am plugged back in and ready to go. I should be sleeping, but that is easier said than done. Thanks for the information. I will be ordering some today and will let you how it works for me. Gail

[suzie Q]

Gail when i first started sometimes i would take 1/2 a madapor if it did not kick in you will know if you have taken enough or not enough ...too much gives a little dyskenesia but nothing like i got withy the P.D and not enough i suppose every one is different but i know when i have not had enough my body tells me how much i need ..hopefully it will work I am so excited that someone else is going to try it i wont be able to sleep

[Gail]

Gail when i first started sometimes i would take 1/2 a madapor if it did not kick in you will know if you have taken enough or not enough ...too much gives a little dyskenesia but nothing like i got withy the P.D and not enough i suppose every one is different but i know when i have not had enough my body tells me how much i need ..hopefully it will work I am so excited that someone else is going to try it i wont be able to sleepI don't mean to soulnd ignorant, but what is a madapor/?

[suzie Q]

madapor is like sinemet. levedopa .i was on sinemet but it was changed to madapor

[Gail]

madapor is like sinemet. levedopa .i was on sinemet but it was changed to madapor I take sinement and requip. I don't mind taking the requip, but am concerned about the side effects of the sinement, which is why I want to try something else. Okay, I need to pretend I had a good nights sleep and get ready for work. I will be talking to you soon. Gail