Recently diagnosed

[mad]

Hi
I was dignosed last week and at the moment I am very afraid of what the future brings, I am 57.
I am very teary and finding it difficult to think positive.
I have been on medication for 1 week and still have the tremor in my arm.

[Pauline]

Hi
I was dignosed last week and at the moment I am very afraid of what the future brings, I am 57.
I am very teary and finding it difficult to think positive.
I have been on medication for 1 week and still have the tremor in my arm.

HI Mad
Sorry about your diagnoses I am 58 and was diagnosed in Jan, I know when I was diagnosed I found it very hard to be positive and I admit I still have my time's but you just have to take one day at a time and enjoy your good daysand forget about your bad one and we still have HOPE hang on to it , don't give in to PD, don't let it win by give in to your degative feeling is letting PD win , andsome time's it takes the medication time to work and they may have to do some adjusting hang in there and we are all here for you :):):)Pauline

[mad]

Thank you Pauline

[suzie Q]

Hi mad

sorry about your diagnoses .i have had p.d 5 years I am 53 so was about the same age as you As pauline said hang in there .be positive and take each day as it comes and remember that .It will take time for your medication to work .keep in touch we are all here for you .by the way another aussie i live in hobart tasmania.welcome to the forum

sue

[Pauline]

http://i302.photobucket.com/albums/nn95/Paulineby2000/hugs28a.jpg
Hi Madd
how are you doing I hope you are feeling a little better sometime just knowing your not alone helps hope you have a good day Pauline:):):)

[Gail]

Hi Madd, I don't think we would be human if we didn't get mad over this. We just can't let the anger win. Somedays that is harder than others, but that positve attitude everyone keeps talking about will get you through it.

[nursewithpd]

Hi
I was dignosed last week and at the moment I am very afraid of what the future brings, I am 57.
I am very teary and finding it difficult to think positive.
I have been on medication for 1 week and still have the tremor in my arm.

Hi recently diagnosed. I'm 55. Medications, in my experience, don't STOP the tremors, just make it better. I was diagnosed 1 year ago. I guess I never asked why me, because my brother has MS, and so much of the world is so much worse off. One of my best friends is dying of pancreatic cancer, and she's not even 50 yet and has a child still in high school. I promise you that if you'll exercise six days a week, your symptoms will improve. Also, stress makes them worse, so worry makes them worse. Just tell yourself this is a challenge God (or life, if you prefer) has given you so you can learn a lesson that's meant for you alone. Instead of asking why, I ask "What lessons can I learn from this?" I'm not Pollyanna; I don't WANT PD, but that doesn't mean I can't learn from it, accept it, and be thankful for the many things I AM blessed with. Hope this helps at all, Sheryl

[Pauline]

Hi recently diagnosed. I'm 55. Medications, in my experience, don't STOP the tremors, just make it better. I was diagnosed 1 year ago. I guess I never asked why me, because my brother has MS, and so much of the world is so much worse off. One of my best friends is dying of pancreatic cancer, and she's not even 50 yet and has a child still in high school. I promise you that if you'll exercise six days a week, your symptoms will improve. Also, stress makes them worse, so worry makes them worse. Just tell yourself this is a challenge God (or life, if you prefer) has given you so you can learn a lesson that's meant for you alone. Instead of asking why, I ask "What lessons can I learn from this?" I'm not Pollyanna; I don't WANT PD, but that doesn't mean I can't learn from it, accept it, and be thankful for the many things I AM blessed with. Hope this helps at all, Sheryl

Sheryl
what a nice way to put it , we can all look around and find someone worse off than us at least we still havve life , nothing better than that :):):) Pauline

[ltd-addition]

Hi
I was dignosed last week and at the moment I am very afraid of what the future brings, I am 57.
I am very teary and finding it difficult to think positive.
I have been on medication for 1 week and still have the tremor in my arm.

Hi Mad


I'm 45 now but dx at 38 yrs
Welcome & Hello (just don't worry i'm harmless )

Now then lets put your thoughts into perspective.
You are scared for your future and are too scared to look at what is going to happen to you next week never mind next year.
Well honey are you going to fight or just let the fear overtake you?

We understand !
We care and wish with all of our strength you hadn't been diagnosed
but you have, so how are you going to help you ?

Ask questions for a start
Would you want me to ring you ?
Im giving you a big hug
With all my heart
Im here for you , we all are
Keep safe

[Gail]

Sheryl
what a nice way to put it , we can all look around and find someone worse off than us at least we still havve life , nothing better than that :):):) Pauline

Sheryl gives very good advice. Exercise and low stress makes all of the difference.

Gail

[Juanita Mullin]

Sheryl's advice is very good. I hadn't thought about it the way she explained but I have so much to be thankful for. I am 76 and was just diagnosed in January. My mother died at 46 from cancer leaving 5 us, the youngest only 3. I still have fairly good health. My symptons are not too terrible--my worst are tremors, stiffness and lack of energy. I plan to beat it! I so much enjoy my friends on this forum and am very grateful for you. :):):) Juanita

[suzie Q]

Juanita you are doing well to do all that you do.I enjoy talking to you ...i enjoy talkng to everyone and hearing about their day ,it is nice to sit down and read what everyone has been up to and to hear how each of us copes with p.d.After reading everyone's posts today i need to do more excercise ...i dont know why i don't i have good intensions .i recently lost 20 kilos and i did it without any excercise ...i need to keep it off so i am going to start doing a little each night ..i have the treadmill parked near the t,v so willl start on that ..

talk some more sue

[Gail]

Sue, it is amazing what a difference exercise makes, both physically and mentally. My sister and I were hiking almost every weekend, but haven't been able to go hiking in a couple of months. Mentally, it is like taking a mini vacation when we hike. Now that the babies are here, we hope to get in a couple of good hikes before the weather turns bad.

[Juanita Mullin]

It has been a most beautiful fall which makes it all the more pleasant to go for walks. The colors have been awesome! We used to go for long hikes when we camped at Mt. Rainier.
The fresh air helps to clear our minds -- or maybe it is the walking or hiking.
Juanita

[Gail]

Juanita,

I am going to Napa this weekend. That has to be one of the most beautiful places on earth during the fall when the grape vines are changing colors. We hike St Helena in Calistoga and have lunch at the top over looking all of the vineyards. I can't wait.e

[Pauline]

Juanita,

I am going to Napa this weekend. That has to be one of the most beautiful places on earth during the fall when the grape vines are changing colors. We hike St Helena in Calistoga and have lunch at the top over looking all of the vineyards. I can't wait.e

Jaunita
What a lovely weekend planned
We are going to the Casino to see a show I don't gamble but John doe's but I like to see the shows :):):)Pauline

[Gail]

I will be doing some serious wine tasting and shopping. Tuesday is a holiday and i took monday off, so no work for four days.

[heatherwilmot]

I will be doing some serious wine tasting and shopping. Tuesday is a holiday and i took monday off, so no work for four days.



Hello from:- Tryphena (Heather(W), 11.30 pm. Just read the letters from Juanita, Susie and Gail. a Sheryl was mentioned, sorry but I don't think we have chatted yet, I look forward to it. Your comments on exercise are so true, I used to walk each day, but when my left knee and right hip became so painful I gave up, now however my pain-killers are stronger and I am going to start again, if it ever stops raining. I could swear I am getting webs between my toes, sadly I cannot get down close enough to make sure!!!
Saturday here and the lst day of my promised 'week to myself', my family have bets on how long it will last, I had to start making some cards using my PC, classed as relaxation! to stop myself cleaning my kitchen floor. I have very shiny tiles, will rephrase that, I HAD shiney tiles, something has been spilt and I have to remove the last shine before putting on more, it is a lot of floor so I will need to feel energetic before I start. I must curb this enthusiasm, it is bad for me, and I cann't afford to pay the money out if I lose the bet.

Your trips sound wonderful, my sister-in-law lives in Acton, Mass. and sent us some beautiful pictures of Autumn in her part of the world, our trees are looking gorgeous at the moment, yellow, orange, red etc but nothing like your Fall. The only down side is sweeping them up, still they make a lovely scruncy noise when we walk through them. When it stops raining......

Must away, it is now tomorrow and I want to rise early to watch a tennis match, then have another nap, then go out for lunch, another nap in the afternoon to get over lunch, followed by Subday afternoon tea then TV programme 'Strictly come Dancing' I am addicted, I think you have a similaar show in the States but don't know on which channel.

have good hols all of you. Will catch up later

God Bless, Tryphena.

[Pauline]

Hi tryphena
glad you have had a good week I do enjoy reading your post they are very entertaining hpoe you win your bet :):):)Pauline

[suzie Q]

hi tryphena we have strictly dancing in australia i like those programes u sound like you are a work aholic i hope you have a great week for yourself and can leave the work for another time and you win the bet talk soon sue

[MargieB]

Hi tryphena
glad you have had a good week I do enjoy reading your post they are very entertaining hpoe you win your bet :):):)Pauline

Hi Pauline,
Just to let you know I'm thinking of you. Craziness here at my home. Waiting for tomorrow for Tony to go to special dentist for help. Very tired. But OK. Will write soon again. Joined the YMCA on Friday evening so I can go swimming in their pool once in awhile. Looking forward to it. Haven't been swimming in over thirty years :(. Loved it then. Will love it now. My Dad taught me when I was three years old and I could swim like a fish up until I stopped going. Tony hates the water. My daughter never wanted to go with me but my two sons like the water as much as I do. Well, that's all for today.

Talk with you soon.
Love,
Margie :)

[suzie Q]

hi Margie hope you are well nice to hear from you .i go swimming i love it i bought a year membership at a lovely place called savoy baths thety have facials massages etc very nice .Hope tony is ok and things are improving for you talk soon sue

[MargieB]

hi Margie hope you are well nice to hear from you .i go swimming i love it i bought a year membership at a lovely place called savoy baths thety have facials massages etc very nice .Hope tony is ok and things are improving for you talk soon sue

Oh Suzi, It's so good to hear from you. Between having difficulty with getting on the forum (I get booted off most of the time asking me to sign in, over and over again). But tonight I seem to be in luck. I've written Lianna a few times, last time tonight about the problem. I know she will help.

You are encouraging me even more to go swimming. As you probably read I haven't been swimming in over 30 years but when I did I LOVED IT! And went often.

Tony is not doing well at all. I hope to speak with his neuro on Thursday and update him about things. I keep hoping for something positive to happen but some days my hope takes a mini vacation. I'm always thankful when it returns.

Can't wait until I get the bathing suit that I ordered over the Internet so I can go swimming. The stores aren't selling swimwear now. The last one I went to said they stop selling them in the store at the end of July until the next spring/summer season. The store I ordered the swim suit from just notified me that it was shipped today. It's getting close and I'm allowing myself to get a little excited. Am a bit nervous too but that will pass.

Yes, talk with you soon :). Margie

[Gail]

Hi Tryphena, How did your week off work out for you? I will be very surprised if you actually took the week off. I am anxious to here what you did.

Gail

[Pauline]

Hi Tryphena, How did your week off work out for you? I will be very surprised if you actually took the week off. I am anxious to here what you did.

Gail

I haven'yt seen Tryphena on the forum she must be taking a break from us to i do miss her prattle hope you are doing good Pauline

[Gail]

I haven'yt seen Tryphena on the forum she must be taking a break from us to i do miss her prattle hope you are doing good Pauline

hi Pauline, Maybe she extended her week off. I am back from my weekend away and will catch up with you soon. gail

[sue wheely]

hang in there.... it"s hard to be positive, but just keep telling yourself there is alot worse things to have, just only take it one day at a time and them it doesn"t overwhelm you so bad. keep praying.

[Anne Sinclair]

Hi,

I live in Perth Western Australia, I am 55 and was diagnosed 2 weeks ago.

It is the fear of the unknown that is bothering me. How progressive will my symptoms be? Does getting PD at a younger age, mean that the symptoms will be more severe that getting PD at age 70 for example.

I have a trembling right hand and a limp now. I also wake up in the morning and sometimes during the night with sore hands.

Anne

[Pauline]

Hi Ann
Sorry about your Diagnoses I was diagnosed just over a yr ago
best advise I can give you is Take one day at a time Enjoy the good day forget about the bad and don't worry to much about the future it will look after it self ,and remember you not in this fight alone we are all in it together :):):)Paulinehttp://i302.photobucket.com/albums/nn95/Paulineby2000/hugs28a.jpg

[Patsy]

Hi Anne

I have PD for 15yrs. also in my right side. I know what you are going through, i have been there, the fear the anxiety.
Your first step is ACCEPTANCE, then you have to be POSITIVE. do not dwell on the future live for the moment, one day at a time.
I can still do most things for myself, (slower than i used to) but i have come to accept that and learned to live with it.
Avoid stress and anxiety, they will make you feel worse, that i know from experience.
Why not download and read Lianna's book, there is so much information and tips on how to live with PD. it has helped me such a lot.
Just think i am 15yrs down the road and i hope for many more years do not despair, try to live your life as normal as possible. Here at this forum there are so many people who are willing to listen and understand, do let us know how you are coping.
Regards; :):):) Patsy.

[Pauline]

Hi Ann Welcome
listen to Patsy she gave you good advise couldn't have said it better your attitude plays a big part in your treatment of PD, if you keep a open mind and try and stay positive you will do much better and we are all hear like Patsy said for each other if your having a bad day come on their will always some one hear to listen and give you a encouraging word but just know you not in this alone
http://i302.photobucket.com/albums/nn95/Paulineby2000/hugs28a.jpg
:):):) Pauline

[Janice]

[QUOTE=Anne Sinclair;7130]Hi,

I live in Perth Western Australia, I am 55 and was diagnosed 2 weeks ago.

It is the fear of the unknown that is bothering me. How progressive will my symptoms be? Does getting PD at a younger age, mean that the symptoms will be more severe that getting PD at age 70 for example.

I have a trembling right hand and a limp now. I also wake up in the morning and sometimes during the night with sore hands.


Dear Anne
I am so sorry to hear about your diagnosis. It is a big shock isin't it.
I am 43 was diagnosed 2 years ago. I wasted a whole year worrying about how my symptoms would progress.

It is not worth even thinking about Anne every one of us is different and we all progress at different rates.

Your PD will not progress any quicker because you are younger it just means that it is going to be with you for more years.

My father had PD pretty bad so of course I thought the worse.

What I have learned in two years I will sum up for you in two lines.

Just live your life Anne, carry on as normal, Exercise, a good healthy diet, a positive attitude and a good Neurologist and you will be fine.

I have seen many young poeple with PD live long, happy, normal lives. If they can do it we can too.

You are not alone , we are all here to help each other.
Best of luck
from Janice :)

[Mary]

Hi Anne
Read Janice's words do not think anyone could say it any better.We have all been down the road of worry and soon realise it nevers improves things live for today if tomorrow does bring a problem you can deal with it then.
Mary

[heather]

Annie

http://i10.photobucket.com/albums/a126/maesisaf/wel21.gif


what Janice and lonely said so true
live for today, NO one knows what tomorrow will bring, so why sit around and ponder

[ltd-addition]

Anne

Welcome you've a lovely name.

My Gran had the same name.

You are in good company .

This is an exceptional club.

Non of us could make a cup of tea & serve it if you wanted a full cup.
So if we are that way inclined we could have a lazy life but that would only cause us to seize up.

Use it or lose it , but don't keep repeating the action of use.

Over exaggerate your movements (when alone or if in public expect some people to stare ! ha haa ha

Muscles have memory & if we use our affected side it means our muscles start to react instinctively even though no dopamine signals are getting to it with much verosity. Use & dont forget to include it in every activity even when getting up use those muscles, extend those fingers.

You wouldnt repeatedly stand from sitting so don't repeat the same excercise or movement more than 4 times.

Go with the flow ! Laugh Dance & red wine is medicinal so girl we got a lot going for us
ltd known as Gazelle

[suzie Q]

Hi,

I live in Perth Western Australia, I am 55 and was diagnosed 2 weeks ago.

It is the fear of the unknown that is bothering me. How progressive will my symptoms be? Does getting PD at a younger age, mean that the symptoms will be more severe that getting PD at age 70 for example.

I have a trembling right hand and a limp now. I also wake up in the morning and sometimes during the night with sore hands.

Anne
Hi Anne

Sorry to hear about your diagnoses,but welcome to the forum.i am 53 and have P.d.6 years,and I also live in Australia ,actually Tasmania. hope you enjoy the forum as much as i do. Keep positive ,hope to hear more from you soon


Sue

[Gail]

Hi Anne,

I am 54 and was diagnosed with PD 4 years ago. As I think someone has already mentioned, acceptance is the hardest part, but once you get past the acceptance you will realize that you still have a long productive life ahead of you. You can't let worrying about what is going to happen tomorrow ruin your today. Keep a positive attitude and a good sense of humor. It is amazing what healing powers those two things have.

Gail

[heather]

Ann what Gail says is very true
Acceptance is the hardest part, and once you can do that you can then move on
this site is hear for everyone, people with PD and their carers
our aim is to help people except there diagnoses, and then cope with it
you will see as you look through the topics, we don't spent all our time discussing PD we have lot's of laughing, but we also are hear for the times when you need to talk about PD, and if need be shout shout shout, we have all gone through or going through the different stages, so we feel we can help, and that's what it's all about
take care my friend,

[kellhug]

[QUOTE=Anne Sinclair;7130]Hi,

I live in Perth Western Australia, I am 55 and was diagnosed 2 weeks ago.

It is the fear of the unknown that is bothering me. How progressive will my symptoms be? Does getting PD at a younger age, mean that the symptoms will be more severe that getting PD at age 70 for example.

I have a trembling right hand and a limp now. I also wake up in the morning and sometimes during the night with sore hands.


Dear Anne
I am so sorry to hear about your diagnosis. It is a big shock isin't it.
I am 43 was diagnosed 2 years ago. I wasted a whole year worrying about how my symptoms would progress.

It is not worth even thinking about Anne every one of us is different and we all progress at different rates.

Your PD will not progress any quicker because you are younger it just means that it is going to be with you for more years.

My father had PD pretty bad so of course I thought the worse.

What I have learned in two years I will sum up for you in two lines.

Just live your life Anne, carry on as normal, Exercise, a good healthy diet, a positive attitude and a good Neurologist and you will be fine.

I have seen many young poeple with PD live long, happy, normal lives. If they can do it we can too.

You are not alone , we are all here to help each other.
Best of luck
from Janice :)

Hi Janice,

I am new to this forum. I have already introduced myself under another topic. I am 41 years old and just recently been diagnosed (over 3 weeks ago). You are the first person I have read about being my age that was diagnosed with PD. I would sure love to chat with you more. I know everyone progresses differently, but it would be interesting to know how you have come along these past 2 years.

Thanks

[Rikki]

Hi Mad,
In this place we are all in the same predicament. We're all scared and anxious about what will happen to us and how this horrid disease will deal with us.

The good news is that you are not alone! There are countless stories of people younger than youself diagnosed with PD who manage to live a long and fruitful life.

It is not easy, nor is it what wwe'd choose for ourselves (or anyone else), but you can get some control of your life again. There is lots of support and advice here - I recommend you use it.

I wish you well and don't let PD get to you.
Rikki:cool:

[ltd-addition]

Rikki
how are you doing ?

[Gleneagle]

I too am from Australia (Queensland) and recently told by my GP that I have what he suspects is early PD symptoms. Apparently going on medication is the only way to know for sure. At this stage I don't feel that I need medication so have opted to take nothing for the time being. I have slight tremor in my right arm and leg and am told I 'walk funny'. Also have problems with handwriting - gradually gets smaller unless I keep lifting the pen from the paper. I've had CT scans and an MRI, ruling out stroke, MS & ??? I'm 62 years old and have had some of the symptoms for a couple of years. I too am anxious about the future but keeping positive and hoping that I don't become a burden on my family in the years to come. When asked how I feel I always say I could have been diagnosed with a terminal illness as so many of my friends have been, so consider my self lucky. That's not to say I am less than impressed with having PD. :(:

Carol

[ltd-addition]

Gleneagles welcome

I cannot get over how many neighbours Sue in Tasmania is getting !

Every one is individual and so is choice of medication.

My consultant indicates that research has implied that to start medication straight away has a neuro protecting cover and it is very much left up to the individual to decide.

Parker's is the kind of condition which is difficult to get your thoughts around. Because you don't know how it affects you till you realize you cant do something or because your told how you are looking or something is obvious to you that has become difficult to attempt again.

But just remember the quality of life is more important and there are massive scopes with medication nowadays. So be kind to yourself and accept help and medicines when you feel you can psychologically tolerate them.

Keep using your affected side because the more you use it the more your muscles remember how to work instinctively instead of reactively waiting for a signal.

We are never a burdon to our family, we are a worry but then again it depends on your outlook !

I say to others " It's me own fault I got Parker's cos I was listening into a conversation God was having. He was giving it to someone I knew couldn't cope so I volunteered to take it myself, knowing I'm a stronger person "

Now I will say afterwords that it serves myself right because I should have bought industrial ear plugs !

We are only human and I'm 8 years on with Parkers so I guess it's taken me 8 yrs to keep my sense of humour out of the cupboard and in my mind.!

We are here and will give you as much help as possible when we can, keep safe