Drew Saunders
August 27th, 2008, 04:39 PM
I have had Pd for about 11 years. Was diagnosed 9 years ago. The neuro's have put me through all sort of hoops to make my quality of life better. The meds I currently take give me that. BUT that does not stop my carer, my wife Elaine, from worrying about me.
I do not think that there is enough emphasis given to the carers or caregivers (depending on which side of the pond you reside, it's just the different way we say things ). They observe your every movement and sometimes unable to help or contribute to the PD person. How frustrating it must be. Elaine and I have discussed this at length. No matter how I try and mask my situation she knows when I am "off". As a "Parkers" person I just get on with it - that's the easy part but to be a carer must be, at times, so difficult that regardless of your input nothing you say or do will make any difference must be, well, hellish. The carers give their love unconditionally which is wonderful - a gift from God. I thank God every day that Elaine is with me - every stuttering step of the way.
So please do not forget the role of the carer - the unsung heroes - God Bless you all.
I do not think that there is enough emphasis given to the carers or caregivers (depending on which side of the pond you reside, it's just the different way we say things ). They observe your every movement and sometimes unable to help or contribute to the PD person. How frustrating it must be. Elaine and I have discussed this at length. No matter how I try and mask my situation she knows when I am "off". As a "Parkers" person I just get on with it - that's the easy part but to be a carer must be, at times, so difficult that regardless of your input nothing you say or do will make any difference must be, well, hellish. The carers give their love unconditionally which is wonderful - a gift from God. I thank God every day that Elaine is with me - every stuttering step of the way.
So please do not forget the role of the carer - the unsung heroes - God Bless you all.