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harpo
April 22nd, 2008, 12:53 PM
Hi I've just been introduced to this forum which seems to me a much needed and welcome site for both sufferers,carers etc re PD
I am medically qualified and specialised in clinical haematology. However, nothing, not even my experience as a hospital consultant, quite prepares you for the day you have to stop pretending, faking and denying your own on-going symptoms and face up to the fact that you have PD. I was officially diagnosed 8 years ago and have been fortunate in that it has been fairly well controlled initially with my medication and that I am under a very good consultant neurologist with an interest and good experience in PD. Also the nurse specialists have been very available and helpful.

I was able to continue my work but chose to go part-time at 60 and retired two years ago at 63 so as to have more time to enjoy my family and to pursue my interests which, strangely, include playing jazz (Banjo) and golf( strange swing now but don't lose the ball so much and handicap better!) and writing.I have just published my first novel ('The Cure') which was fun to do but not a great literary effort. 'Banal', i think is the word!

I would agree with what I saw here when reading earlier that i think humour and music can be most helpful in fighting this condition and its symptoms and mental effects. Also i believe exercise within one's ability can only be helpful in putting of the progression to some extent.

I am pleased and grateful to have been introduced to this forum and hope to be able to gain some good tips to help me with my own personal fight and I hope ,possibly, to be able to contribute as well

thank you,

Harpo (aka Michael)

knock46@blueyonder.co.uk
April 22nd, 2008, 01:21 PM
:) My name is Ned Byrne and I was diagnosed in 2000. I was on all kinds of medicine for depression for one year, 1999. I am
at the freezing stage and struggling at the moment. My wife is
my carer.

Rod
April 23rd, 2008, 10:15 AM
I could not agree more, well done to Liana and many thanks for a job well done. I am sure the site will be of a great help to all of us.
We(my partner and I) both have looked after my Mom and Dad, my father had MND and my partners Dad had bone cancer and we still have his wife living with us at 82 and what a fantastic mother in law she is to. (no Jokes please)
In looking after and caring for them I can tell you it's made both of us better people and stronger and more able to cope with what life throws at you, take it one day at a time and stay stong all of you.
Love to you all out there,
Rod.

heather
April 29th, 2008, 04:30 PM
Hi I've just been introduced to this forum which seems to me a much needed and welcome site for both sufferers,carers etc re PD
I am medically qualified and specialised in clinical haematology. However, nothing, not even my experience as a hospital consultant, quite prepares you for the day you have to stop pretending, faking and denying your own on-going symptoms and face up to the fact that you have PD. I was officially diagnosed 8 years ago and have been fortunate in that it has been fairly well controlled initially with my medication and that I am under a very good consultant neurologist with an interest and good experience in PD. Also the nurse specialists have been very available and helpful.

I was able to continue my work but chose to go part-time at 60 and retired two years ago at 63 so as to have more time to enjoy my family and to pursue my interests which, strangely, include playing jazz (Banjo) and golf( strange swing now but don't lose the ball so much and handicap better!) and writing.I have just published my first novel ('The Cure') which was fun to do but not a great literary effort. 'Banal', i think is the word!

I would agree with what I saw here when reading earlier that i think humour and music can be most helpful in fighting this condition and its symptoms and mental effects. Also i believe exercise within one's ability can only be helpful in putting of the progression to some extent.

I am pleased and grateful to have been introduced to this forum and hope to be able to gain some good tips to help me with my own personal fight and I hope ,possibly, to be able to contribute as well

thank you,

Harpo (aka Michael)

Welcome harpo
hope you are on a good day
look forward to your post's, your qualifications in Haematology i'm sure will be be very valuable,but your own experiences will be great fully received.
You wrote a book [wow ],well you will have some fun reading my spelling and grammar , glad you like humour as mine is warped
look forward to your posts

heather
April 29th, 2008, 04:35 PM
:) My name is Ned Byrne and I was diagnosed in 2000. I was on all kinds of medicine for depression for one year, 1999. I am
at the freezing stage and struggling at the moment. My wife is
my carer.

Hi Ned
hope you are having a good day ,
Sorry to hear you are struggling at the moment , hope you get it sorted soon
Is your wife going to join us, we need more carer view's
take care

bruce
April 29th, 2008, 05:45 PM
Ned,Ive had freezing spells on and off. Im trrying to say they will probably pass. The less stress I had the less freezing. I have been treating depression since diagnased over 8 years ago. I cant go without meds. for depression and panic disorder. I like being level with my moods. The first time in nearly 50 years. It certainly makes dealin with pd easier!!!! bruce