nursewithpd
July 2nd, 2008, 06:57 PM
Hi, I'm a former nurse just diagnosed with PD. I'm unbelievably ignorant about current treatments and issues with PD, though I've done my best to update my info through the internet. It's tough, and no one really knows how tough until they have it themselves. I actually don't feel sorry for myself, because I believe there is a purpose to all our challenges in life, as well as potential to grow. I'm still figuring out where it all fits in my life.
I have a question. I've read in Lianne's book that muscle spasms do occur in people with PD. That's something even my own neurologist didn't seem familiar with. I've been having spasms in my hands; at times I can't even move my fingers until the spasm goes away. Does that happen often? My calcium was low, but after treatment with Vitamin D it is now normal. However, I continue to occasionally have the same spasms.
I feel the need to talk to others with PD, because it makes me feel more "at home" with Parkinson's. I think I often get better information when it's first hand. I'm also curious whether anyone can let me know their experience with DBS. My neurologist is talking about that as a possibility within the next year or two. I've read research that says it is more effective in controlling tremors when people do it at a younger age and/or earlier on (I was diagnosed last fall and I'm almost 55). I've also read research that says that isn't true. I'm taking 12 mg of Requip a day and do get relief, but it doesn't last.
How about joint pain? Is that common? Thanks to anyone who can address my questions. I guess I'm also curious about side effects from DBS. It's probably not the picnic some would have us believe, but how common are side effects? What have some of you experienced? Thanks so much for your time. SJ
I have a question. I've read in Lianne's book that muscle spasms do occur in people with PD. That's something even my own neurologist didn't seem familiar with. I've been having spasms in my hands; at times I can't even move my fingers until the spasm goes away. Does that happen often? My calcium was low, but after treatment with Vitamin D it is now normal. However, I continue to occasionally have the same spasms.
I feel the need to talk to others with PD, because it makes me feel more "at home" with Parkinson's. I think I often get better information when it's first hand. I'm also curious whether anyone can let me know their experience with DBS. My neurologist is talking about that as a possibility within the next year or two. I've read research that says it is more effective in controlling tremors when people do it at a younger age and/or earlier on (I was diagnosed last fall and I'm almost 55). I've also read research that says that isn't true. I'm taking 12 mg of Requip a day and do get relief, but it doesn't last.
How about joint pain? Is that common? Thanks to anyone who can address my questions. I guess I'm also curious about side effects from DBS. It's probably not the picnic some would have us believe, but how common are side effects? What have some of you experienced? Thanks so much for your time. SJ