My Dad

[Lizg1108]

Hi,
My name is liz, and my Dad is really suffering. He is 83, and he was diagnosed with PD about 7 years ago. He is not able to take any medications because they make him feel worse. He has tried everything. He has tremors and even though he uses a walker, he still falls sometimes. His neck is a constant source of pain for him. The only time he has any relief from the pain and tremors is when he is able to fall asleep. Are there other people with PD who can't tolerate the drugs? My Dad was so active and always on the go. This is such a sad state to see him in now. My sister and I are always searching the internet to see if there is anything that would help him. If anyone has any suggestions for us I would appreciate it.

[bobct]

Hi Liz,

I was diagnosed with PD two years ago but began manifesting symptoms in 2001. I am currently on no PD meds. I have tremendous difficulty with medications but I have been experimenting with fresh fava bean sprouts. These are high in natural L-dopa. So far the results are nothing to right home about but I have noticed some very brief symptom relief depending on how many sprouts I eat. You should ask your dad's doctor about trying fava bean sprouts as an alternative. Very important! A few people get a very serious allergic reaction to fava beans called favaism so you should definitely check with your dad's doctor first and don't do this on your own. Some interesting write ups are on the net. Google "fava beans and Parkinson's."

[suzie Q]

Hi bobct I have had parkinson 4 years I am 53 and have been on medication. that long.The past few months I have a lot of trouble with dyskenisia caused by the medication, at the moment i have gone off all my medication and am taking Mucuna Pruriens Powder.Which is a herb grown in India I read about it on the internet and thought it was worth a try . I am so pleased with the results.I have been taking it for 1 month and in that time have only had about 4 tablets of my normal medication . i don't suppose this will last foreever but while i am getting such good results i will continue with it.If it only gives me a drug free holiday for a while it is worth it just not to be taking all that medication .It does not seem to have the side effects that my other medication has.My family cant believe the difference in me since i have bewen taking it



Sue

[bobct]

Hi Sue,

I've read of it on the internet. What is the dosage and frequency you are taking? Also the concentration of the powder. What symptoms of your PD seemed to respond best to the MP? The reason I ask is my PD is less common with only some tremor in motion but much more stiffness and deteriorating fine motor control. Exercise is my main therapy which keeps symptoms somewhat at bay but I'd love to regain some of the fine motor control in my left hand so I can go back to playing classical guitar.

Bob

[suzie Q]

Hi Bob

I dont have visible tremors they are internal. I have really heavy shaky legs, like i have run a marathon they feel wobbly like jelly .I have trouble with my fine motor skills fumble fingers.and i feel strange in my head when i am off.i am not good with my balance .i was ok on my normal medication which was madopar and tasmar but it gave me too much dyskenisia after being on it 3 years .i read about the mucuna and thought it worth a tryi am so glad i that i did i have about 12 grams 3 times a day that is what the natropath said he said about 30 grams divided over the day some times 10 works but some times i need a little more it is a powder i have it in a little milk it is disgusting,but well worth it .I asked my neurololigist about it and he was not impressed i did not say i was on it just that i knew someone who was he said there is always something on the market that if it was any good they would have it there and it would not work .I can only go by how i feel and i feel so great i have only had 2 doses today and i am ok not as bad as when i was taking the other medication this time of night i would not be so good i havnt had anything since 2 oclock this afternoon it is now nearly 8 hours later .so i wwill keep on with for as long as it works.it is nice to sit without all that movement


Sue

[suzie Q]

Bob

sorry i dont know the concentration i am going to go into town and find out tomorrow i think that it has helped with everything i am stiff as well i had been finding it hard to get out of bed in the mornings but my husband said i get out much better.and i don't feel as stiff

sue

[ahop]

Hi to all of you interested in Mucuna Pruriens. I have been taking M.C for four months in addition to my perscibed Sinemet. I stopped taking it recently as I started to get itchy skin and the itching has now gone. It certainly helped with control of resting tremour and I am going to give it another try. I took a heaped teaspoon three times a day mixed with warm water. This was complete guesswork as there seems to be a lack of info. My Consultant thought it was hilarious as it also supposed to be an aphrodisiac (that bit didn't work for me!!!). But it is used in India as a recognised help for P.D. After he had finished laughing my Consultant was interested enough to ask for all the info. I had collected and is waiting to hear how it worked. It would be interesting to get some feed back from someone using it in India.
For me it was well worth trying. Good luck Tony

[ahop]

Hi to all of you interested in Mucuna Pruriens. I have been taking M.P for four months in addition to my perscibed Sinemet. I stopped taking it recently as I started to get itchy skin and the itching has now gone. It certainly helped with control of resting tremour and I am going to give it another try. I took a heaped teaspoon three times a day mixed with warm water. This was complete guesswork as there seems to be a lack of info. My Consultant thought it was hilarious as it also supposed to be an aphrodisiac (that bit didn't work for me!!!). But it is used in India as a recognised help for P.D. After he had finished laughing my Consultant was interested enough to ask for all the info. I had collected and is waiting to hear how it worked. It would be interesting to get some feed back from someone using it in India.
For me it was well worth trying. Good luck Tony

[Lizg1108]

Where do you buy Mucuna Pruriens?

[ahop]

I buy mine from a health mail order company in the U.K. I am sure if you Google it you will find distributors in the U.S. Good luck Tony.