View Full Version : Learning to live with it
Peggy T.
June 25th, 2008, 10:12 PM
At this moment, I'm O.K. In 2 minutes, I'll concede to another limitation (like having to type with 2 fingers), and go crashing down. I'm 58, diagnosed 7 years ago, coasted on Requip for 6 1/2 years. Now I'm twisted, hunched, shuffling, and shaky, and scared to go on Sinemet. Please share with me--good, bad, alternatives. This can't be as good as I'll ever be.
MargieA
June 25th, 2008, 11:46 PM
At this moment, I'm O.K. In 2 minutes, I'll concede to another limitation (like having to type with 2 fingers), and go crashing down. I'm 58, diagnosed 7 years ago, coasted on Requip for 6 1/2 years. Now I'm twisted, hunched, shuffling, and shaky, and scared to go on Sinemet. Please share with me--good, bad, alternatives. This can't be as good as I'll ever be.
Hi Peggy T.
My husband Tony is on Sinemet and has had excellent result with it. He takes a combination of Sinemet and Requip and it has proven to be very good for him. He was diagnosed 4 years ago but we now realize that he had several symptoms way before his diagnosis.
I hope you get over being afraid to go on Sinemet. I also hope for you that it proves to be as good for you as it is for my husband, or better.
God bless you.
Margie :)
Peggy T.
June 25th, 2008, 11:57 PM
Thank you, Margie. It's 3 a.m. I should go to bed, but I keep searching...
Peg
MargieA
June 26th, 2008, 12:06 AM
Thank you, Margie. It's 3 a.m. I should go to bed, but I keep searching...
Peg
Hi Peggy T.,
I know what you mean. It's 4:03 AM here in Jamaica, Queens, NY and I should go to bed too. But I keep searching and reading and getting comfort out of having this Forum and my dear friends.
Talk with you soon again. Hope you have a really good day.
Margie :)
Gail
June 26th, 2008, 01:29 AM
Peggy, I was diagnosed three years ago and take requip and sinement. I was also scared to go on sinement. I made the decision that my quality of life today was too important to not give it a try. I haven't had any problems with it. I am still looking at other alternatives, but in the meantime, it keeps me moving. Gail
grldnklly
June 26th, 2008, 01:50 AM
Hi Peggy,
Indeed this is not as good as you get. There are lots of different medications out there and there are a lot of people benefitting for them. There is also a medication just for you. When you give up hope that is when it is as good as it gets.
I will keep you in my prayers
God bless
Geraldine
Drew Saunders
June 26th, 2008, 03:29 AM
Hi Peggy
Sinemet is my salvation. I was diagnosed 8 years ago and with the usual trial and error on various meds sinemet and azilect does it for me. I would suggest you start on 62.5 strength sinemet. I have noticed a lot of people are prescribed 125 strength but that is like using a sledge hammer to crush a grape. By starting on a lowish dose you can always increase to get the correct level for you. I also take azilect 1mg once per day which helps the sinemet get to where it is needed faster. I think of it as my super highway. Hope this info helps
God Bless
heather
June 26th, 2008, 09:14 AM
Hi Peggy T.
My husband Tony is on Sinemet and has had excellent result with it. He takes a combination of Sinemet and Requip and it has proven to be very good for him. He was diagnosed 4 years ago but we now realize that he had several symptoms way before his diagnosis.
I hope you get over being afraid to go on Sinemet. I also hope for you that it proves to be as good for you as it is for my husband, or better.
God bless you.
Margie :)
Hi Peggy
sorry missed this post
so a late
http://i10.photobucket.com/albums/a126/maesisaf/welcome.gif
Jim has been on sinemet plus for 12 years, and never had a days trouble, everyone is different, please try it, and if doesn't suit you, you come off it
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