Tricia7
May 15th, 2008, 05:56 AM
Hi everyone,
I was diagnosed with YOPD a little over 2 years ago. My first treatment was Requip. I had very little success with the Requip but the side effects were terrible - I fell asleep often even while driving.
A positive effect though is that while taking meds I became pregnant. I had a miscarriage about 5 wks in - though the Drs did not believe it had to do with my PD. My family Dr joked that he wondered what fertility drug was in the Requipp:rolleyes:
for several months following the miscarriage I stayed off meds as we tried to get pregnant again. Right after I started new meds (my symptoms were getting out of control) we found ourselves pregnant again. I immediately stopped meds and on Oct 8th we had a beautiful healthy baby boy. Because my symptoms were very bad w/o meds we chose to formula feed instead of the breastfeeding.
At this time we tried the patch - I had heard of people who had great success and since I am not really disaplined about taking meds the patch seemed a good idea. I found again very little success with the patch.
Dr put me on Azilect (very expensive even with good insurance) and Artane. Though he said the Artane was kind or archaic and not used often for PD anymore I had almost immediate success. Almost on day 1 I actually slept normally! I started to write and type again with my right hand and had an arm swing and almost normal walking gait. On the bad side I had terrible memory loss and was often confused - I would stand up from desk and then not remember what I was doing or where I was going.
When I saw Dr last he was not as pleased with the results as I was. He did not want to increase the Artane b/c of the memory loss so we decided to add Sinemet to my meds.
When I ran out of Artane and was off it for a few days everything stopped working - could not write or move my fingers - had trouble walking again.
Now I am still all 3 meds but I want to talk to my Dr about the azilect - at 60 dollars for only a month supply I am not sure there is benefit from the azilect.
Currently my side effects are memory loss and very dry mouth - I started sucking on my teeth and I sway when standing and rock when sitting. If I concentrate I can stop these movements but they start right up again.
I wonder if anyone else has these movement issues? I see Michael Fox and can relate to his constant movements.
I am so frustrated with meds right now. But again I can write and type (job requires me to be at a desk doing exactly these things) it is still hard to decide if the side effects are worse then PD itself.
Tricia
I was diagnosed with YOPD a little over 2 years ago. My first treatment was Requip. I had very little success with the Requip but the side effects were terrible - I fell asleep often even while driving.
A positive effect though is that while taking meds I became pregnant. I had a miscarriage about 5 wks in - though the Drs did not believe it had to do with my PD. My family Dr joked that he wondered what fertility drug was in the Requipp:rolleyes:
for several months following the miscarriage I stayed off meds as we tried to get pregnant again. Right after I started new meds (my symptoms were getting out of control) we found ourselves pregnant again. I immediately stopped meds and on Oct 8th we had a beautiful healthy baby boy. Because my symptoms were very bad w/o meds we chose to formula feed instead of the breastfeeding.
At this time we tried the patch - I had heard of people who had great success and since I am not really disaplined about taking meds the patch seemed a good idea. I found again very little success with the patch.
Dr put me on Azilect (very expensive even with good insurance) and Artane. Though he said the Artane was kind or archaic and not used often for PD anymore I had almost immediate success. Almost on day 1 I actually slept normally! I started to write and type again with my right hand and had an arm swing and almost normal walking gait. On the bad side I had terrible memory loss and was often confused - I would stand up from desk and then not remember what I was doing or where I was going.
When I saw Dr last he was not as pleased with the results as I was. He did not want to increase the Artane b/c of the memory loss so we decided to add Sinemet to my meds.
When I ran out of Artane and was off it for a few days everything stopped working - could not write or move my fingers - had trouble walking again.
Now I am still all 3 meds but I want to talk to my Dr about the azilect - at 60 dollars for only a month supply I am not sure there is benefit from the azilect.
Currently my side effects are memory loss and very dry mouth - I started sucking on my teeth and I sway when standing and rock when sitting. If I concentrate I can stop these movements but they start right up again.
I wonder if anyone else has these movement issues? I see Michael Fox and can relate to his constant movements.
I am so frustrated with meds right now. But again I can write and type (job requires me to be at a desk doing exactly these things) it is still hard to decide if the side effects are worse then PD itself.
Tricia