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Pauline
May 10th, 2008, 06:49 PM
Does any body get the feeling of having to rush as if your in a big hurry ,John has to tell me to settle down but I get the feeling of having to rush as if l won't get done ,was wondering if it could be a side effect of the drugs :):):):)Pauline

tinkerbell
May 10th, 2008, 09:25 PM
hi,

yes my husbands always telling me to slow down


tinkerbell

MargieB
May 10th, 2008, 11:36 PM
Does any body get the feeling of having to rush as if your in a big hurry ,John has to tell me to settle down but I get the feeling of having to rush as if l won't get done ,was wondering if it could be a side effect of the drugs :):):):)Pauline

Dear Pauline,

It could be the medications combined with the PD. My husband Tony is always rushing and we have to tell him take it slow. For example, when the phone rings he tries to get to it as fast as he can. We tell him, let it ring, either we'll get it or the party calling us will wait. Or when we are getting ready to go somewhere, after one of us helps him on with his hat and coat, he stands at the door and tells us to come on, let's hurry, when I've got to shut the television and/or radio, the lights, etc.

With love,

Margie :)

ltd-addition
May 11th, 2008, 01:28 AM
Hold your horses , Im worn out seeing you all rush about !

Rushing about you could do yourselves an injury!! ha ha

When you think about it (the rushing ) Im of the opinion that your thoughts affect parkers. (Thats why I laugh a good belly laugh every day & think positive thoughts)

Well someone has got to win the lottery!!

Anyway its the thought of going out that opens the blood vessels further causing a rush of blood & medication to flow through like the Mississippi River. The excitment or worry will cause your body to over react and since Parkers people cant hide stress etc it shows in some as being in a hurry/rush.
Thats my opinion but I'd gladly hear other opinions

Ltd-addition

Pauline
May 11th, 2008, 08:16 AM
ITD addition You have such a good sense of humour you made me laugh again thank you

heather
May 11th, 2008, 12:40 PM
I haven't heard of it before , in PD
but i get it[carer] like when i need to do
things ,before i go out, I detest being late for anything,
it's a adrenalin rush, which makes/helps us cope in a situation.

susan wheatley
May 11th, 2008, 12:51 PM
i dont get the feeling that i have got to rush, but i feel as though i,ve got to be on the move doing somthing some days just cant sit still just cant settle never seem to warm a seat some days then it catches up and i feel exhausted for a couple of days then it starts again does anyone else feel like this or am i just strange maybe i,m just strange.

heather
May 11th, 2008, 01:08 PM
No Susan
you are not strange, be careful it's not stress,i do it when Jim is very poorly,if i sit i have time to think,if i keep on the go i don't have think about what's going on.
our bodies have a mechanism [spelling] in the brain,that can switches off when over tasked , hence the exhaustion, and if you don't listen to it,[rest] it will switch itself off,and you can be very poorly
take care my friend

susan wheatley
May 11th, 2008, 01:27 PM
hi heather, thanks for your advise you might be right about the stress, i seem to have been like this since i started taking levadopa and just asumed that it was down to that but then i associate everything thats wrong with me with the pd, i just have to let you know heather you a very nice lady and a foutain of knowledge thank you.

Orlan
May 11th, 2008, 02:21 PM
Hi Pauline.
I have this problem. When I am eating, I'm going 100 miles an hour. Even as I am typing, I have trouble settling down. I don't know what to do. It tires me out. I am going to neurologist Wednesday to see what can be done.So you aren't in this alone.Today is Mother's Day. We enjoyed having our two son's and their wife over. Also our daughter and her husband. We also had 3 grandson's and two granddaughters here.They range in age of 1 to 17.
So to all Mother's wish a Great day.
Orlan

Pauline
May 11th, 2008, 03:22 PM
Thank you Orlan thank you for sharing with me now I know it's not just me so glad you enjoyed your day with the family we just got back from having dinner with my daughter and son in law and granddaughter we are so fortunate to have family around the older we get the more we appreciate them :):):)Pauline

bruce
May 11th, 2008, 03:46 PM
Does any body get the feeling of having to rush as if your in a big hurry ,John has to tell me to settle down but I get the feeling of having to rush as if l won't get done ,was wondering if it could be a side effect of the drugs :):):):)PaulinePauline, I feel very much the way you are descibing. I tell myself there is no rush, but I keep on rushing. I have often wondered if this is a characteristic of people with pd. bruce

heather
May 12th, 2008, 07:06 AM
hi heather, thanks for your advise you might be right about the stress, i seem to have been like this since i started taking levadopa and just asumed that it was down to that but then i associate everything thats wrong with me with the pd, i just have to let you know heather you a very nice lady and a foutain of knowledge thank you.
Hi Susan
hope you are well
My knowledge is what i have learnt over the years,and just like to share,to just try and make life for others a tiny bit easier, but i have also gain so much,off this site, and learn so much each day.
At first i put it all down to Jim illness,i think it was just something to blame,over the years,i/we have learnt mainly the hard way it's not always correct , it's just trial and error,May be it was when you first started taking levadopa ,and it could be a mixture of both,I'm not up on Medication for PD,
only what i read on hear, But i have learnt that, when stressed i do get hyper, not only in doing things,but start talking quick and loud,{can talk for England},one of the girl's in work noticed it first

susan wheatley
May 12th, 2008, 08:45 AM
hi heather, how are you and jim today hope you are well, when i get stressed i find it hard to get my words out my husband would say thats not a bad thing, i am quite tired today i felt the same yesterday and i have just had a week off work and am ready for another week but i have gone mad painting and cleaning but am paying the price at the moment maybe tomorow i,ll feel alot better speak to you soon.:):)

heather
May 12th, 2008, 10:09 AM
Hi Susan
Jim has slept mostof the day,but that's not unusual
i have had a lovely day,i have been making our hanging baskets up , have made 2 large 1 small, got 1large and 2 more small ones to do yet, i have been saying for years i was going to do them, so i'm feel very relaxed

Pauline
May 12th, 2008, 10:31 AM
I find I get very tired very easily we went out to dinner yesterday and to day I am wiped right out Susan just be careful not to over due :):):)Pauline

susan wheatley
May 12th, 2008, 01:16 PM
hi pauline, thanks for the advise but like my husband says it falls on deaf ears he is always telling me to sit down but i will insist on pushing my self to the limit i think its because one day i might not be able to do the things i do now and that frightens me, anyway enough about me how are you today hope you are feeling happier god bless, susan.:):)

susan wheatley
May 12th, 2008, 01:20 PM
hi heather, dosent it make you feel better when you have had a good day and hanging baskets always add a nice bit of colour to the garden have you got a big garden mine,s small but perfectly formed well it is at the present.:):)

heather
May 12th, 2008, 01:47 PM
Hi Susan
it's quiet big
i have a shed that was full of Jim's junk [car parts etcetc, he was a hoarder ] his green house, we never bought a plant before,
i have had it stoned one side and slabbed the other, and all the front slabbed ,have some pix's somewhere
i love doing hanging baskets,it's so relaxing,and something i can just leave and go back to if Jim needs anything

grldnklly
May 12th, 2008, 02:19 PM
I haven't heard of it before , in PD
but i get it[carer] like when i need to do
things ,before i go out, I detest being late for anything,
it's a adrenalin rush, which makes/helps us cope in a situation.
Hi Heather,
I have to agree with you, as a fellow carer, I rush constantly. I am usually the one at the door waiting for my father. In his case, the parkinsons has really slowed him down. Although he gets really flustered if we are going anywhere, he is in slow motion. I couldn't ask him to go somewhere out of the blue, we have to talk about it and plan it. Do you think is this part of parkinsons?
God bless
Geraldine

susan wheatley
May 12th, 2008, 02:20 PM
hi heather, my husband michael is a hoarder keeps all sorts of useless things somtimes they are useful and am glad he kept them, we have just bought some nice pots for the garden so thats my next project to put some plants in them they are going to go on the decking lol susan.

heather
May 12th, 2008, 02:43 PM
hi heather, my husband michael is a hoarder keeps all sorts of useless things somtimes they are useful and am glad he kept them, we have just bought some nice pots for the garden so thats my next project to put some plants in them they are going to go on the decking lol susan.

Jim has every tool available,and i use lot's of them,so don't have to ask anyone
don't forget some pixs in hobbies
,i have done a section in computers in case you/anyone doesn't no how to post pixs,do you see the pix's on hear,or do you have to click on the link

heather
May 12th, 2008, 03:00 PM
Hi Heather,
I have to agree with you, as a fellow carer, I rush constantly. I am usually the one at the door waiting for my father. In his case, the parkinsons has really slowed him down. Although he gets really flustered if we are going anywhere, he is in slow motion. I couldn't ask him to go somewhere out of the blue, we have to talk about it and plan it. Do you think is this part of parkinsons?
God bless
Geraldine
Jim has never rushed ,he always went slowly,this is one of the things i first noticed was the gaiter walk, [don't no if you read Jim has a illness that mimics PD] Never had a problem ,with Jim going out, but i have always organised things like packing case
for holidays , doing jobs before going anywhere.
Sounds like may be dad gets panic attacks,[afraid he might fall etc] i think you are handling it well,as if you don't plan he will soon, refuse to go out, and become house bound
PD seems to have a mind of it's own,and finds the weak point
and this is your dad's weak point,when i think about,Jim's, his was walking /standing ,i had to make him walk,and when he had a awkward fall i had to get the ambulance men ,they took him up on his stair lift chair, then on to his glider chair, they wouldn't let him walk the top of the stairs, he never walked again :( only transferred

susan wheatley
May 13th, 2008, 11:16 AM
hi heather, i can see the pictures now without the links but dont know how to post pictures on the forum not very computer literate.

heather
May 13th, 2008, 01:51 PM
Hi Susan
glad you can see pictures

have you made/got a folder on your desk top ,with the pictures you want to post

I have done a post in Hobbies

computers [ not the one getting around the forum ]

if you have a folder for your pictures, you will only need to down load the host "photobucket " it's free and easy to use ,just click on the link and down load

any problems get back to me or ltd-addition [ she goes on holiday Friday :eek:],and we will help you

susan wheatley
May 13th, 2008, 01:54 PM
thanks heather will do that or at least try:confused:

grldnklly
May 13th, 2008, 02:07 PM
Hi Heather,
I fear that the same thing that happened Jim is going to happen my father. He is very unsteady on his feet but refuses to use a walking aid. Some day he is going to have a very bad fall. We were at the neurologist yesterday and he asked my father why he didn't use a walking aid and he told him that he didn't need it. The neurologist just laughed. Today the occupational therapist called and she also asked him to consider using a walking aid, but he refused point blank. He is a very stubborn man, which in one way is a good thing, but in another it holds him back. Sometimes it is very hard to be patient! But sure, these things are sent to try us!
God bless
Geraldine

heather
May 13th, 2008, 02:51 PM
thanks heather will do that or at least try:confused:
Slow but shore my friend,you will do it, just get back any :)problems

heather
May 13th, 2008, 03:14 PM
Hi Heather,
I fear that the same thing that happened Jim is going to happen my father. He is very unsteady on his feet but refuses to use a walking aid. Some day he is going to have a very bad fall. We were at the neurologist yesterday and he asked my father why he didn't use a walking aid and he told him that he didn't need it. The neurologist just laughed. Today the occupational therapist called and she also asked him to consider using a walking aid, but he refused point blank. He is a very stubborn man, which in one way is a good thing, but in another it holds him back. Sometimes it is very hard to be patient! But sure, these things are sent to try us!
God bless
Geraldine

Hi Geraldine

what i'm going to say now,you will find hard as it's your farther, and Jim is my husband

First remember the saying cruel to be kind,it's not your farther you are arguing with it's PD/the devil

Jim wouldn't have a stick, he would fall ,and i would help/physically pick him up, one day i had enough , so i told him to get himself up, his reply I can't,my reply this is the last time if you use a stick, i will pick you up any time,but will not if you wont help your self, "pride comes before a fall" after that for a few weeks he used his stick,then i noticed he started to go without it again,so i just looked at him and said , don't forget you fall you get your self up , few days later he fell,i checked he hadn't hurt himself,pushed a heavy chair by him and went out into the garden and cried, it took him quiet a time,he got up,but never went with out his stick again
i just felt it was make or brake time
like i keep saying this worked for us, you no dad ,and i do realise there is age difference,Jim was about 60

It has to be his decision, but he also has to realise he is playing with your health with out you,who will care for him
http://i10.photobucket.com/albums/a126/maesisaf/2b2da92c.gif

Pauline
May 13th, 2008, 04:51 PM
Hi Susan Thank you doing good today I know how you feel I keep pushing my self to the limit because I am so afraid that I won't be able to do it some day , I use to alway complain if John didn't help with the house work now I tell him to just let me do it ( and I neaver liked house work lolo)the only thing I will let him do with out an aurgument is the dishes and I still don't like doing them hope your hav:):)ing a good dayPauline

susan wheatley
May 14th, 2008, 08:25 AM
hi pauline, having a good day today had a good day at work which always makes me feel better hows your day been good i hope, god bless.

bobct
May 19th, 2008, 11:33 AM
Does any body get the feeling of having to rush as if your in a big hurry ,John has to tell me to settle down but I get the feeling of having to rush as if l won't get done ,was wondering if it could be a side effect of the drugs :):):):)Pauline

Definitely a side effect of the drugs. My brother is a pharmacist at MA General and the literature he has on certain PD meds indicates that the liver metabolizes PD meds down to several other chemicals, one of which is amphetamine. That's also the reason many PD patients on meds have trouble sleeping.

Bob CT:D

heather
May 19th, 2008, 11:52 AM
Hi bobct
Thank you very much for that information
is this a side effect of most PD medication
being a carer and my husband has only been on sinemet plus
I don't no much about medication.

Paulie
May 19th, 2008, 12:24 PM
i dont get the feeling that i have got to rush, but i feel as though i,ve got to be on the move doing somthing some days just cant sit still just cant settle never seem to warm a seat some days then it catches up and i feel exhausted for a couple of days then it starts again does anyone else feel like this or am i just strange maybe i,m just strange.

I feel that way also. Some days I (as you so eloquently put it) just can't seem to keep a seat warm. I often wonder if this is what Attention Deficit Disorder feels like and then other days I am so fatiqued I can't get out the door!

Diane
May 19th, 2008, 12:38 PM
I am so glad this subject was brought up. My husband sometimes moves in a way that seems agitated and impulsive. Sometimes, he will just pick things up and put them down quickly, and start pushing buttons on the tv controller and such. He'll start to sit down, then quickly stand up and go into another room. I did not know that amphetamines is a component of the PD drugs.

Diane

heather
May 19th, 2008, 01:43 PM
I feel that way also. Some days I (as you so eloquently put it) just can't seem to keep a seat warm. I often wonder if this is what Attention Deficit Disorder feels like and then other days I am so fatiqued I can't get out the door!
Hi Paulie1793
http://i10.photobucket.com/albums/a126/maesisaf/Welcomebears.jpg
Hope you enjoy being with us

bobct
May 19th, 2008, 03:49 PM
I am so glad this subject was brought up. My husband sometimes moves in a way that seems agitated and impulsive. Sometimes, he will just pick things up and put them down quickly, and start pushing buttons on the tv controller and such. He'll start to sit down, then quickly stand up and go into another room. I did not know that amphetamines is a component of the PD drugs.

Diane

Amphetamines are not a component of the med itself. Rather the amphetamines occur when the liver breaks down or metabolizes the med. Eldepryl was the one my father had the most trouble with. At present I am not on meds for precisely that reason. It's a good idea to get out the magnifying glass and struggle through the mice type that comes with the meds. That should tell you the chemicals that are metabolized out from the med. Otherwise ask your neurologist. If I read the lit correctly, one of the benefits of Azilect was it didn't metabolize out as an amphetamine. I might be wrong on that.

Bob CT

Pauline
May 20th, 2008, 06:55 PM
It's good to know why we get like this glad to know I'm not the only one Hi Paulie welcome Hi Susan glad your having a good day sorry I didn't answer right away was a way for a couple of day but glad to be back :):):)Pauline

heather
May 21st, 2008, 10:49 AM
HiPauline
nice to see you back, did you have a good time with the girls
most of all did you behave :p;)

Pauline
May 21st, 2008, 04:32 PM
:p:pYes thank you had a great time I felt so relaxed it was great did I behave my self :p(thats no fun:D:D) but didn't get into to much trouble was asked back so I guess I behaved my self lolo:):):)Pauline

heather
May 22nd, 2008, 01:41 PM
http://i10.photobucket.com/albums/a126/maesisaf/monkey8.gif

skyblue12
July 6th, 2008, 07:09 PM
[Hi,

I feel in a rush most of the time. I have to be busy. It's
hard to sit and rest. I seem to think I must get as much done in one day, because tomorrow I might not be able to accomplish anything. I don't think my husband truly understand the way I feel.

suzie Q
July 7th, 2008, 01:42 AM
hi sky blue12 welcome to our forum we love it

I too feel like that ..i do all i can while my body is working cause it might not tomorrow .it is soooo strange you could have a great morning and a bad afternoon so i reeckon strike while the irons hot..... .my daughter said this afternoon mum u havent stopped all afternoon .... yes i said my body did not work this morning i am doing all i can while i am ok ....My times lately when i dont work seem to be when i go into the city to do some shopping ...it does not stop me i just go a bit slower and still come home with bargains L.O.L


talk soon


sue

heather
July 7th, 2008, 04:29 AM
http://i10.photobucket.com/albums/a126/maesisaf/sit%20pictures%20not%20used/helloskyblue.gif

Hope you enjoy being with us
I'm Heather a carer for hubby Jim, who has a illness, that mimics PD , so can only talk as a carer, and from what i have learnt
This is what i have learnt off our PD friends on hear

I hear what your saying about rushing around
but what you have to remember,is that PD loves stress,so one of the reasons that you may be tired in the afternoon is the stress you are under[not knowingly] think you wont/must get things done , or in the morning could be catch uptime, from the day before stress

So please try and slow down, you have to be in control not PD
It's not easy, but as you read other posts on hear, you will see
that this can be done
don't forget to have a good laugh each day

http://i10.photobucket.com/albums/a126/maesisaf/e006d06a.gif

Gail
July 7th, 2008, 04:33 PM
Hi Sky Blue 12, Welcome to the forum. It looks like feeling like you can't sit sown is common for individuals with PD. My daughters are always after me to sit down, but I feel like if I stop, I won't ever get started again. So, I don't stop very often. Heather is right about the evils of stress. I do make every attempt to keep my life as stress free as possible while keeping busy. I hope you get as much out of the forum as I do. Gail

Filo
July 8th, 2008, 11:12 PM
[Hi,

I feel in a rush most of the time. I have to be busy. It's
hard to sit and rest. I seem to think I must get as much done in one day, because tomorrow I might not be able to accomplish anything. I don't think my husband truly understand the way I feel.

Hi everyone,
Just logged on and was reading posts, and was struck by these comments - just so like how it is for me. Sorry to hear about how everyone is struggling, but reassuring to know that someone else in the world understands how I feel. Family and friends are great and very supportive, but don't really understand everything. This forum is the only place I know, that you can listen to others, who say exactly what you are feeling. Thanks

Filo

Pauline
July 9th, 2008, 05:59 AM
Hi Filo
your right it is nice to know your not going through this a lone before I came on here that is how I felt as if I was going through this alone and with all these differant feeling at times I thought I was losing my mind witch scared me more
Hope your having a good day :):):)Pauline

Elaine May
July 10th, 2008, 05:52 AM
I have to agree with Heather on this matter.
For carers it is a nightmare when your loved one wears themselves out by trying to get everything done. You may feel like you have to "do it all" but could you just stop to think what would happen if you didn't?
The sky would not fall down, the world would not come to an end and nobody would die.
BUT also, you wouldn't get tired and stressed out and neither would your family/friends/carer get stressed watching you beat yourself up.
Learn to relax, and, if you pace yourself, you will have tomorrow to do the things that didn't get done today. And what is more your nearest and dearest will have you at your best to spend some quality time with them.
What is more important - your chores or your loved ones?

mappergal
July 10th, 2008, 06:39 AM
Hi Elaine,
We do care for our loved ones, but it is a drive within us. Since our bodies don't work right, we need to prove to ourselves that we are still useful and that there are things we can still do despite our limitations. No one wants to feel useless so doing the chores is very important. Since I was forced onto disability by my work (3 weeks ago), it was that or be laid off, chores are what I have. I push myself too as I don't know what tomorrow will bring. I am actually doing OK and I am proud of what I can still do, but I do understand your concern of your husband. Your husband is lucky to have such a caring wife

heather
July 10th, 2008, 02:53 PM
Hi Elaine,
We do care for our loved ones, but it is a drive within us. Since our bodies don't work right, we need to prove to ourselves that we are still useful and that there are things we can still do despite our limitations. No one wants to feel useless so doing the chores is very important. Since I was forced onto disability by my work (3 weeks ago), it was that or be laid off, chores are what I have. I push myself too as I don't know what tomorrow will bring. I am actually doing OK and I am proud of what I can still do, but I do understand your concern of your husband. Your husband is lucky to have such a caring wife

Hi mappergal
hope you are well

so sorry to hear about you, been forced to give up work

I /we no you all love your loved ones, and it's a catch 22, as we love you all, and i think it's a little easier for men[for want of a better phrase] women have always seen the chores that must/need doing around the house.
I confess when i get stressed when Jim's not on a good day, I do exactly the same, but it is not as harmful for me, it's not good, but not as medically harmful

I also hear what you say about
we need to prove to ourselves that we are still useful and that there are things we can still do despite our limitations. No one wants to feel useless so doing the chores is very important.


We no our loved ones are still useful, it getting it over to you
is the heard problem

As for tomorrow, today is so much more important, none of use no what tomorrow will bring, but it will come so much quicker if you don't try to slow down. I mean my next statement in the nicest way, Is it a drive with in you, or are you letting PD drive you ,think about it my friend, please remember PD is a crafty devil and thrives on stress

Hope you take all the above, with the love and kindness it was posted

Gail
July 10th, 2008, 05:30 PM
Mappergal expressed it perfectly saying

we need to prove to ourselves that we are still useful and that there are things we can still do despite our limitations. No one wants to feel useless so doing the chores is very important.

I am that way both at work and home. It drives my family crazy, but for the most part they understand why. It is good to hear the carers prospective on these issues. But at this time, it would be very hard to slow down. Gail

Elaine May
July 11th, 2008, 04:38 AM
I totally understand the need to be useful. I am sure that when I get to retire next January that I may be a little lost at first.
After my Mom died (some years ago now) I got obsessed by doing all the chores - I think it filled the void.
A few years later I had a serious back injury and was not allowed to bend, sweep or use the vacuum cleaner for over 3 months. I worried at first but then I realised that if I was to recover completely then I would have to obey orders from my surgeon. Guess what - nothing major happened! Now I put my energies into what I like doing, and do what is necessary in the house to keep it clean (with the help of my darling Drew of course).
When I was at college a lecturer said that the reason we all go to work is for status. We all laughed and said no we go to work for the money. I have now come to realise that he was so right. When you HAVE to give up work - or does work give you up? - you lose your sense of identity. Try to turn it around and think that you are still a wife, husband, mother, father, daughter or son. You are judged by what you are and how you treat other people and NOT by how many chores you can do.
Sorry for the lecture. I hope you take this as it was meant - with lots of love.:)

mappergal
July 12th, 2008, 03:18 PM
Hi Heather, thank you for your kind words. I have slowed down, PD kinda forces me to. I can't go shopping like I used nor do I do as much stuff as I used to around my house, but I still push myself too but I do the pushing at a slower rate.
However, I am more inclined to let something go if I know it may be detrimental to me. For example, I had a friend who past away 2 weeks ago. Her service was over 3 hours away. Driving 6 hours in one day is too much, thankfully the family had an online memorial where I could express my feelings about my friend. I find compromises for myself and the goals I set forward and I don't beat myself up if I can't do something, but I applaud myself for the things I can do and get done.
My 17 year old daughter is only with me half of the time as I am divorced, so I have to push myself because there is no one else here and some jobs just need to be taken care off--like my dogs and turtles.

Pauline
July 12th, 2008, 06:50 PM
Hi
I think knowing there is going to be a day that we can't do a lot of thing that is a the reason we push our selfs so much .At least that is the way I feel as if I have to get everything in today because I may not have a lot of tomorrows and it like there is something in me that is driving me to do everything.
I know I drive my poor hubby crazy :):):)Pauline

Drew Saunders
July 13th, 2008, 03:36 PM
Today Elaine and I went to the "railway". For those not familiar with above go to www.ewr.com (http://www.ewr.com) and have a look. We took a friend, George, who is recovering from a double heart bypass. We took my mobility scooter which enabled me to see round the rest of the park - Kingsbury Water Park, between Coventry and Birmingham. Helped out at the railway then home and fiddled around the garden weed culling etc. (First opportunity since rotten weather last week). Enjoyed our day BUT having eaten dinner and got comfy in front of the telly tremors kicked in big time. Initally surprised but on count back realised had done too much. Even after 8 years of PD have not learned the trick of taking life little by little. Unusal for a man (!) I can and do multi-task but if I had just thought things out then maybe I could have taken things a little slower and rested more between activities.
I can hear "ltd" saying "so what! No pain no Gain" but if only I had paced myself then all gain no pain. If I am up for it then I give 110% but it does not have to be that way. Take your time and then by doing so you can enjoy the rest of your day with your partner, wife, kids and anybody else who is important to you and they can enjoy being with you rather than worrying about your well-being and watching you struggle to get back on the straight and narrow. Does this strike a chord with the way you approach life on a day to day basis? There is always tomorrow and if you are having an "off" day then there is always the day after or the day after that. Do not feel guilty if you do not feel like doing anything. Be kind to yourself and to those you care about. Quality of life is paramount both for you and the people who care about you so - be cool, chill out take it easy.
Have the best day that you can,
Drew

susan wheatley
July 14th, 2008, 12:04 PM
hi skyblue12,
welcome to the forum like you i can never sit still got to be doing something all the time you have hit the nail on the head when you said you feel you have to do as much as you can because tomorow you might not be able to do so, my family go mad with me but they dont seem to understand they keep telling me to sit down it must be a side effect of pd, how does it affect you if you dont mind me asking.

susan wheatley
July 14th, 2008, 12:08 PM
drew you might think i,m not very bright but is where you live close to warwickshire i have family there just curios, am not very good at geography sorry.

MargieB
July 14th, 2008, 02:45 PM
I have to agree with Heather on this matter.
For carers it is a nightmare when your loved one wears themselves out by trying to get everything done. You may feel like you have to "do it all" but could you just stop to think what would happen if you didn't?
The sky would not fall down, the world would not come to an end and nobody would die.
BUT also, you wouldn't get tired and stressed out and neither would your family/friends/carer get stressed watching you beat yourself up.
Learn to relax, and, if you pace yourself, you will have tomorrow to do the things that didn't get done today. And what is more your nearest and dearest will have you at your best to spend some quality time with them.
What is more important - your chores or your loved ones?

Hi Elaine May,

Thanks for sharing your positive and meaningful thoughts. You have hit on truths that if I only followed more, I would be much more relaxed and if I would pace myself (which I don't--as of yet) you are right...I will have tomorrow to do the things that I didn't get done today. As a carer I have to apply what you wrote...more each day. Our life style has changed so much I'm still getting used to it. My husband has PD and before he had it he was so independent and active. Now, I feel I have to make up for what he can't do and what I have to do...that makes me rush, rush, rush. I'm going to try to remember what you have written. It struck a very deep core in me.

Margie

Pauline
July 14th, 2008, 03:39 PM
Hi With me it could be a combination of PD, and medication because it is some thing that drives me , what ever it is I have to get it done today no matter how tired I am I have to get it done today I can't wait till tomorrow , logic tells me it would me better if I paced my self but so far I can't do it maybe one day I will learn mean while I drive Poor John crazy :):):)Pauline