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SBSooz
May 6th, 2008, 12:22 PM
Hi all,
I was formally diagnosed with PD two and a half years ago, but started seeing a neurologist about six and a half years ago. I was originally diagnosed with peripheral neuropathy (?), and later on with possible familial tremor.
I started originally taking Neurontin for the shaky hands, and have now supplemented that with Sinemet (25-100mg) two tablets @ day. Plus 1 tab. of Senekot at night to help with the constipation problem----my Dr. says that it is perfectly OK to continue this (Senekot) indefinitely.
So far so good-----I am 73 yrs. old or young---- depending on how you look at it. I am retired, have lots of interests (from art to travel, walking, computers, movies/theatre/ and TV entertainment, listening to music and much much more, and am determined not to let PD get me down.
I make a good effort at eating well (although I make a darn good effort also at polishing off yummy desserts whenever possible), and try to get some type of exercise (mostly walking) at least 5 days a week. I have just recently started taking Tai Chi (hopefully this will help out with my balance probs) once a week, and love it, although I am a little slow at remembering the many steps. I guess that the thing that I get the most concerned about is my increased problems with my memory-----I don't know if this is just an "age thing", or attributable in some way to the Parkinson's. A friend got me to check out a website , http://www.lumosity.com , on the Internet, and I have had some fun, and frustration, working with these "brain games"-----it seems like a good way to keep those old brain cells firing away. There is a free trial period, I think two weeks, and this gives you a pretty good idea about whether you like it well enough to sign on as a member. They do have senior rates.
I think that Lianna has done a fabulous job of connecting us PD-ers with each other, and giving us the opportunity to ask questions, get support, or just share our experience, strength and hope.
I feel blessed to be a part of this great support group!
Hugs to you all :), Suzan

ltd-addition
May 7th, 2008, 06:08 PM
Hi all,
I was formally diagnosed with PD two and a half years ago, but started seeing a neurologist about six and a half years ago. I was originally diagnosed with peripheral neuropathy (?), and later on with possible familial tremor.
I started originally taking Neurontin for the shaky hands, and have now supplemented that with Sinemet (25-100mg) two tablets @ day. Plus 1 tab. of Senekot at night to help with the constipation problem----my Dr. says that it is perfectly OK to continue this (Senekot) indefinitely.
So far so good-----I am 73 yrs. old or young---- depending on how you look at it. I am retired, have lots of interests (from art to travel, walking, computers, movies/theatre/ and TV entertainment, listening to music and much much more, and am determined not to let PD get me down.
I make a good effort at eating well (although I make a darn good effort also at polishing off yummy desserts whenever possible), and try to get some type of exercise (mostly walking) at least 5 days a week. I have just recently started taking Tai Chi (hopefully this will help out with my balance probs) once a week, and love it, although I am a little slow at remembering the many steps. I guess that the thing that I get the most concerned about is my increased problems with my memory-----I don't know if this is just an "age thing", or attributable in some way to the Parkinson's. A friend got me to check out a website , http://www.lumosity.com , on the Internet, and I have had some fun, and frustration, working with these "brain games"-----it seems like a good way to keep those old brain cells firing away. There is a free trial period, I think two weeks, and this gives you a pretty good idea about whether you like it well enough to sign on as a member. They do have senior rates.
I think that Lianna has done a fabulous job of connecting us PD-ers with each other, and giving us the opportunity to ask questions, get support, or just share our experience, strength and hope.
I feel blessed to be a part of this great support group!
Hugs to you all :), Suzan

Hi Suzan Here's a big Hug & Hello for you from England

ltd-addition

MargieB
May 7th, 2008, 07:53 PM
Hi all,
I was formally diagnosed with PD two and a half years ago, but started seeing a neurologist about six and a half years ago. I was originally diagnosed with peripheral neuropathy (?), and later on with possible familial tremor.
I started originally taking Neurontin for the shaky hands, and have now supplemented that with Sinemet (25-100mg) two tablets @ day. Plus 1 tab. of Senekot at night to help with the constipation problem----my Dr. says that it is perfectly OK to continue this (Senekot) indefinitely.
So far so good-----I am 73 yrs. old or young---- depending on how you look at it. I am retired, have lots of interests (from art to travel, walking, computers, movies/theatre/ and TV entertainment, listening to music and much much more, and am determined not to let PD get me down.
I make a good effort at eating well (although I make a darn good effort also at polishing off yummy desserts whenever possible), and try to get some type of exercise (mostly walking) at least 5 days a week. I have just recently started taking Tai Chi (hopefully this will help out with my balance probs) once a week, and love it, although I am a little slow at remembering the many steps. I guess that the thing that I get the most concerned about is my increased problems with my memory-----I don't know if this is just an "age thing", or attributable in some way to the Parkinson's. A friend got me to check out a website , http://www.lumosity.com , on the Internet, and I have had some fun, and frustration, working with these "brain games"-----it seems like a good way to keep those old brain cells firing away. There is a free trial period, I think two weeks, and this gives you a pretty good idea about whether you like it well enough to sign on as a member. They do have senior rates.
I think that Lianna has done a fabulous job of connecting us PD-ers with each other, and giving us the opportunity to ask questions, get support, or just share our experience, strength and hope.
I feel blessed to be a part of this great support group!
Hugs to you all :), Suzan

Hi Suzan,

WELCOME! to this wonderful Forum. Glad to have you aboard.

My name's Margie and my husband Tony (he has PD) live in Queens, New York.

We too are determined not to let PD get us down. Tony is limited in what he can do but we make the best of it and still have nice days together.

I'm still getting used to using the Forum correctly so if you find a post and/or a quote from me answering you in the wrong place, please be patient with me.

Have a good day.

Margie :)

tinkerbell
May 7th, 2008, 09:28 PM
hi sbsooz,

welcome from me too, i am tinkerbell and i am 45 years young had pd for two years. life is for living. if you can laugh once a day everything is worth it.

tinkerbell

SBSooz
May 8th, 2008, 11:19 PM
Thank you all for your notes------my computer is about to go on the fritz:mad:, so I may not be able to get back to this for a week or so------but I love hearing from any and all of you:)! Will answer any notes, questions etc. when the 'puter returns! Suzan

heather
May 9th, 2008, 05:20 AM
welcome Suzan
hugs from wet Wales {UK}